Predictive factors of health related quality of life in children and adolescents with celiac disease: An Italian multicenter study on behalf of the SIGENP
Digestive and Liver Disease,
Год журнала:
2025,
Номер
unknown
Опубликована: Янв. 1, 2025
Язык: Английский
Gluten‐free diet management and well‐being in children with celiac disease: A qualitative study
Pediatric Allergy and Immunology,
Год журнала:
2025,
Номер
36(3)
Опубликована: Март 1, 2025
Abstract
Background
Management
of
celiac
disease
(CD)
requires
adherence
to
a
strict
gluten‐free
diet
(GFD).
However,
little
is
known
about
how
children
with
CD
manage
the
GFD.
This
qualitative
study
sought
gain
comprehensive
understanding
experience
and
navigate
GFD,
focusing
on
their
dietary
preferences,
perceptions,
challenges,
as
well
impact
these
experiences.
Methods
Fifteen
CD,
aged
8–13
years,
who
had
been
following
GFD
for
minimum
one
year,
were
interviewed
parents
management
Reflexive
thematic
analysis
was
used
analyze
data.
Results
Children
described
range
strategies
managing
While
some
adopt
problem‐focused
such
planning
ahead
carrying
foods
person,
others
exhibit
heightened
anxiety
persistent
doubts,
indicating
need
tailored
healthcare
support.
Importantly,
uncovers
socioecological
influences,
including
social
roles,
communication
patterns,
environmental
factors,
which
shape
children's
beliefs
coping
strategies.
Conclusions
The
underscores
importance
monitoring
gluten‐related
distress,
beliefs,
behaviors
in
broader
context
lives.
To
better
support
holistic
may
target
well‐being
alongside
management.
Язык: Английский
Hub-and-Spoke regional system supported by telehealth for managing coeliac disease in Liguria: a mixed-methods survey followed by an observational pilot study
BMC Health Services Research,
Год журнала:
2025,
Номер
25(1)
Опубликована: Март 18, 2025
Due
to
the
need
reorganize
care
network
for
national
screening
mandated
by
law,
a
new
healthcare
model
was
required
management
of
coeliac
disease.
The
hub-and-spoke
is
organizational
system,
here
we
describe
its
application
(supported
telehealth),
in
pediatric
disease
(CD)
Liguria.
results
pilot
phase
are
presented
and
system's
strengths
weaknesses
discussed.
A
mixed-methods
survey
followed
an
observational
study
performed.
multiphase
approach
used
including
preparation
setting,
operative
planning
application.
involves
single
primary
center.
reduction
families'
expenditure
environmental
impact
assessed
using
Viamichelin
calculator.
regional
meeting
(specifically
developed
this
study)
needs
analysis
highlighted
priority
have
efficient,
up
date
homogeneous
assistance
throughout
network.
diagnostic
therapeutic
pathway
(PDTC)
working
group.
project
involved
986
Ligurian
families
allowed
90%
distance
traveled
residing
within
center's
catchment
area,
saving
€177
113
kg
CO2
on
average
per
family
year.
Gaslini
Diffuso
system
managing
CD
Liguria
exemplifies
commitment
enhancing
efficiency
patient
care,
reducing
cost
both
system.
Язык: Английский
Quality of Life in Children with Celiac Disease: An Observational Study
Anna Rozensztrauch,
Paulina Mostyńska
Nutrients,
Год журнала:
2025,
Номер
17(6), С. 1085 - 1085
Опубликована: Март 20, 2025
Background/Objectives:
Celiac
disease
(CD)
is
one
of
the
most
common
chronic
autoimmune
disorders
affecting
children
worldwide.
The
aim
to
explore
significance
quality
life
(QOL)
research
in
pediatric
CD,
highlighting
importance
assessing
both
physical
and
psychosocial
aspects
well-being.
Materials
Methods:
study
used
a
self-administered
questionnaire,
which
consisted
questions
on
sociodemographic
clinical
characteristics,
as
well
general
assessment
QOL
by
using
validated
PedsQL™
4.0.
Results:
Dietary
restrictions
were
associated
with
social
challenges,
reported
43%
respondents
who
indicated
their
child
had
experienced
exclusion
or
distress
during
family
gatherings,
while
48%
encountered
difficulties
school
setting.
overall
score
mean
68.9
(SD
=
15.00),
median
67.4,
ranged
from
41.3
100.0,
reflecting
individual
variations
perceived
Age
significant
factor
influencing
children’s
interactions
experiences
within
educational
settings,
likely
due
increased
academic
demands,
pressures,
developmental
changes.
Conclusions:
suggests
that
significantly
influences
functioning
life,
its
impact
emotional,
social,
domains
comparatively
lower.
Язык: Английский
A systematic review of guidelines on screening for celiac disease in children with thyroid disease and vice versa
Frontiers in Pediatrics,
Год журнала:
2025,
Номер
13
Опубликована: Март 31, 2025
Autoimmune
thyroid
diseases
(ATD)
are
the
most
prevalent
autoimmune
disorders
associated
with
celiac
disease
(CD).
Both
conditions
can
often
be
detected
through
serological
screening
in
asymptomatic
patients
over
several
years.
Various
guidelines
for
(TD)
available
children
CD
and
vice
versa.
We
conducted
a
systematic
review
to
identify
recent
relevant
guidelines,
comparing
their
recommendations
analyze
key
differences
suggesting
practical
clinical
approach.
Out
of
1,294
articles
reviewed,
we
identified
20
published
between
January
2013
2024.
These
primarily
from
gastroenterological
organizations
Europe
North
America,
recommend
different
timings
methods
co-occurrence
these
diseases,
both
at
diagnosis
during
follow
up.
Some
only
follow-up
without
routine
screening.
There
is
limited
consensus
on
TD
[using
thyroid-stimulating
hormone
test
(TSH)]
newly
diagnosed
CD,
even
less
agreement
anti-transglutaminase
antibodies
(tTG)
immunoglobulin
A
(IgA)
total
IgA]
TD.
No
standardized
procedures
exist
managing
isolated
low
tTG
human
leukocyte
antigen
(HLA)
genotyping
rarely
recommended
as
first-
line
method.
Over
past
decade,
there
has
been
growing
recognition
importance
identifying
who
could
benefit
early
treatment,
absence
symptoms.
However,
international
still
show
lack
regarding
frequently
notable
use
HLA
testing
protocols.
Язык: Английский
A Child with Crohn’s Disease: Problems and Stress Level of Parents–Caregivers—A Cross-Sectional Study
Nursing Reports,
Год журнала:
2024,
Номер
14(1), С. 444 - 454
Опубликована: Фев. 16, 2024
Crohn’s
disease
(CD)
is
a
chronic
inflammatory
bowel
disease.
The
perception
of
the
disease,
its
troublesome
symptoms
and
highly
involved
treatment
mean
that
living
with
CD
requires
not
only
affected
child
having
to
learn
cope
it,
but
also
their
parents.
aim
study
was
examine
problems
levels
stress
in
parents–caregivers
children
CD.
cross-sectional
conducted
using
diagnostic
survey
method.
An
original
questionnaire
used
assess
socio-demographic
situation
caring
for
CD,
standardised
PSS-10
added.
group
consisted
60
parents
who
accompanied
during
hospitalization.
surveyed
caregivers
found
it
difficult
maintain
specialised
diet
deal
need
hospitalization
use
medications.
Access
necessary
knowledge
about
posed
least
difficulty
everyday
life
vast
majority
(50,
83.34%)
felt
high
level
related
and,
simultaneously,
lack
acceptance
child’s
(39,
65%).
age
respondents
did
have
statistically
significant
effect
on
occurrence
functioning.
by
informal
reduced
level.
Parents
could
count
support
from
relatives
but,
unfortunately,
institutional
properly
provided.
Язык: Английский
SARS-CoV-2 Vaccination Coverage in Italian Children with Celiac Disease
Journal of Clinical Medicine,
Год журнала:
2024,
Номер
13(19), С. 5851 - 5851
Опубликована: Сен. 30, 2024
Background:
Celiac
disease
(CD)
is
the
most
common
multisystemic
autoimmune
disorder
affecting
pediatric
population.
However,
little
data
available
regarding
SARS-CoV-2
vaccination
coverage
in
patients
with
CD.
This
study
aims
to
evaluate
adherence
national
recommendations
for
children
and
adolescents
CD
its
variation
over
time.
Methods:
We
retrospectively
analyzed
medical
charts
electronic
registry
records
of
aged
0–19
years
diagnosed
a
tertiary
center.
The
was
evaluated
according
age
groups
(young
children,
adolescents),
considering
patients’
eligibility
at
different
times.
Results:
Among
172
enrolled,
44.8%
received
least
one
dose
vaccine,
showing
no
significant
differences
compared
Italian
population
similar
age.
Vaccination
demonstrated
progressive
reduction
after
an
initial
peak
(up
65.5%
December
2021)
concomitant
gradual
extension
vaccinable
falling
infections.
Histological
diagnosis
presence
other
associated
diseases
were
higher
levels
vaccination.
Conclusions:
Adherence
young
very
low,
while
it
better
diseases.
Vaccine
hesitancy
remains
concern,
particularly
among
those
using
biopsy-sparing
approach.
Hesitancy
increased
during
pandemic
period,
suggesting
need
ongoing
efforts
improve
recommendations.
Язык: Английский
Life Challenges and Quality of Life of People Living With Coeliac Disease: Time of Diagnosis Matters
Journal of Human Nutrition and Dietetics,
Год журнала:
2024,
Номер
38(1)
Опубликована: Дек. 24, 2024
Abstract
Background
Previous
studies
have
examined
the
quality
of
life
patients
with
coeliac
disease.
There
is
a
lack
understanding
about
potential
changes
in
emotional
responses
and
challenges
after
diagnosis.
This
exploratory
study
aimed
to
evaluate
impact,
people
living
disease
Germany.
Methods
An
online
survey
was
conducted
among
assess
difficulties
implementing
gluten‐free
diet
daily
activities,
including
food
shopping
preparation,
eating
away
from
home,
as
well
additional
costs
time
money.
Furthermore,
questionnaire
assessed
diagnosis,
emotions
felt
diagnosis
today,
compliance
regarding
sociodemographic
data.
Participants
were
recruited
2022
via
social
media,
newsletters
websites.
Out
1286
participants
who
had
taken
part
survey,
766
met
inclusion
criteria
included
data
analysis.
Results
The
majority
respondents
(aged
18–83
years)
female
(93%)
almost
50%
diagnosed
more
than
5
years
ago.
Negative
emotion
ratings
related
associated
age
at
passed
since
While
high
89%
strictly
adhering
diet,
reported
mainly
situations
involving
such
out‐of‐home
consumption
restaurants,
work
while
travelling.
These
appear
persist
over
time.
Conclusions
are
negatively
impacting
individuals
disease,
particularly
first
months
Particularly
adolescents
young
adults
be
impacted.
emphasises
need
improve
all
impacted
areas
through
better
guidance
improved
training
health
professionals
providers
outside
home
psychological
counselling
year
help
their
life.
Язык: Английский