Supportive Care in Cancer, Год журнала: 2023, Номер 31(6)
Опубликована: Май 29, 2023
Язык: Английский
Systematic Reviews, Год журнала: 2025, Номер 14(1)
Опубликована: Янв. 28, 2025
Head and neck cancers (HNC) are devastating, thus imposing a negative impact on the appearance of an individual as well vital activities such eating, swallowing, speaking, breathing. Therefore, HNC patients undergo distress, while their caregivers become overburdened. Religion spirituality can be helpful for from diverse cultural backgrounds to cope with cancer. Though established in palliative care, religion rarely incorporated into usual early oncological care. Despite availability heterogeneous literature examining influence cancer patients, there is notably limited research this topic across trajectory. scoping review attempts answer "What or different contexts?" will map evidence contexts including geographical areas, cultures, health care systems, study settings. This was formulated using guidelines Joanna Briggs Institute (JBI) manual synthesis: reviews reported confirming Preferred Reporting Items Systematic Meta-Analyses extension Scoping Reviews (PRISMA-ScR checklist). A comprehensive search strategy include Embase, CINAHL, Scopus, APA PsycINFO. The OPENGREU.EU Google Scholar used gray sources complimented by searches. Our eligibility criteria follow population, concept, context (PCC) framework. Patients aged ≥ 18 years diagnosed informal, nonpaid > included. data extracted piloted extraction form sociodemographic, disease-related, treatment-related factors outcomes, analyzed through descriptive statistics thematic analysis. results narratively synthesized. aim explore existing summarize findings studies that examine among vice versa over range physical, psychological, social outcomes quality life. We also identify gaps. would generate better inform providers countries cultures management due consideration caregivers.
Язык: Английский
Процитировано
0
Journal of Education and Health Promotion, Год журнала: 2025, Номер 14(1)
Опубликована: Фев. 1, 2025
BACKGROUND: Caregivers of stroke patients always have various concerns in the process patient care, which requires full attention and support healthcare professionals. Understanding their needs is essential for careful care planning. The present study aimed to discover explain caregivers patients. MATERIALS AND METHODS: This qualitative content analysis was conducted with 24 purposefully selected participants who provide home Chaharmahal Bakhtiari province, Iran, during 2019–2020. Data gathering done through semi-structured interviews. Conventional done, trustworthiness investigated peer checking, member prolonged engagement based on Lincoln Guba’s criteria. RESULTS: main emerged themes showed caregivers’ including physical empowerment (to overcome overwhelming exhaustion, deficit self-care), emotional-social relieve mental disrupted family relationships, social relations), coping stigma cope guilt fear others’ reactions delegated care), dynamics educational (big concern hospital discharge constant effort learn, seeking help). CONCLUSION: basic, complex, multidimensional are unmet. Forgotten afraid care. Formal organizations training support, providing temporary cares, planning destigmatizing relatives required.
Язык: Английский
Процитировано
0
Journal of Psychosocial Oncology, Год журнала: 2025, Номер unknown, С. 1 - 15
Опубликована: Март 13, 2025
Background Family caregivers of patients with cancer face numerous challenges, leading to a heightened risk psychological distress. Problem-solving abilities may influence coping and be relevant in anticipating the level support needed from palliative care.
Язык: Английский
Процитировано
0
Supportive Care in Cancer, Год журнала: 2024, Номер 32(3)
Опубликована: Фев. 27, 2024
Abstract To assess the level of supportive care needs caregivers colorectal cancer patients and explore related key influencing factors. Totaling 283 with were investigated in this study. Firstly, invited to complete a set questionnaires, including general information questionnaire, Supportive Care Needs Survey-Partners Caregivers patients, Caregiver Preparedness Scale, Benefit Finding Comprehensive Score for Financial Toxicity. Univariate multivariate linear regression performed investigate associated factors needs. The have moderate needs, scored at 2.71 ± 0.42. preparedness, benefit finding, financial toxicity significantly negatively ( r = − 0.555, P < 0.001; 0.534, 0.615, 0.001, respectively). Our analysis identified some that directly affected caregivers, duration illness, tumor stage, age educational caregiver R 2 0.574, F 23.337, 0.001). are common among patients. Higher tend ease these Healthcare workers should an in-depth understanding actively provide targeted financial/informational/technical/emotional support promote nursing skills reduce caregivers’ burdens.
Язык: Английский
Процитировано
3
BMC Nursing, Год журнала: 2024, Номер 23(1)
Опубликована: Дек. 2, 2024
Gastrointestinal cancers, including gastric and colorectal are major contributors to cancer-related morbidity mortality worldwide, placing significant burdens on patients their informal caregivers. This study aims evaluate the level of supportive needs among caregivers with gastrointestinal cancer identify key factors influencing these needs. We conducted a descriptive survey involving 335 at large hospital in Shanghai, China, from September 2023 April 2024. Multivariate linear regression analysis was employed examine potential affecting needs, demographic information, caregiver burden, self-efficacy. The average score 113.59 ± 52.97. positively correlated burden (r = 0.363, P < 0.001), self-efficacy 0.224, patients' Karnofsky Performance Status (KPS) 0.119, 0.05). revealed that care experience, duration caregiving, relationship (sibling), self-efficacy, KPS patients, treatment type were for elderly (P Informal often have increased levels Clinical practice should include comprehensive assessments development targeted interventions improve caregiving skills reduce thereby enhancing quality life both patients.
Язык: Английский
Процитировано
2
Psycho-Oncology, Год журнала: 2024, Номер 33(9)
Опубликована: Сен. 1, 2024
ABSTRACT Objective Understanding survivorship issues among people with head and neck cancer (HNC) is important as survival rates increase. Most research has focused on urban patients, leaving a gap in understanding the challenges faced by those rural areas. This study aims to summarise literature needs for HNC Methods PubMed, PsycINFO, Scopus, Medline, CINAHL, Web of Science, Embase were searched from database inception 10 July 2024, no restriction publication period, country, or language. Data aims, methodology, major findings related survivors areas extracted. Study quality was assessed using Joanna Briggs Institute critical appraisal checklists. Results Twenty‐one studies met inclusion criteria. Eight qualitative, 11 quantitative, two adopted mixed‐methods approach. demonstrate impact complex treatments physical ( n = 13) psychosocial 14) functioning. also emphasises multifaceted challenges, including reduced access specialised services, resulting greater travel financial burden, extending caregivers. Hence, primary healthcare services are crucial supporting these patients closer home. Conclusions Addressing gaps equitable post‐treatment care requires an even distribution funding workforce Future could target develop tailored interventions models care, such shared ease burden.
Язык: Английский
Процитировано
1
Expert Review of Pharmacoeconomics & Outcomes Research, Год журнала: 2024, Номер 24(8), С. 883 - 897
Опубликована: Июль 20, 2024
Long-term care (LTC) refers to and support services that are required by individuals who lack the ability perform important daily routines may be dependent on others for personal, social, medical needs over a sustained period of time. LTC broadly categorized into formal informal care, where is provided professionals compensated provide these captures without compensation family members, friends, or other unpaid individuals.
Язык: Английский
Процитировано
0
Clinical Cancer Investigation Journal, Год журнала: 2024, Номер 13(1), С. 51 - 55
Опубликована: Янв. 1, 2024
Cancer can cause many problems in all family, economic, social, psychological, and physical dimensions for the elderly. The present research was conducted to examine supportive care requirements of elderly with cancer. In this descriptive-analytical study, a total 248 (144 men 104 women) an average age 67.17 ± 6.94 years cancer were referred Seirei Mikatahara General Hospital, Japan, using non-probability available sampling 2023. data coll
Язык: Английский
Процитировано
0
Supportive Care in Cancer, Год журнала: 2024, Номер 32(11)
Опубликована: Окт. 28, 2024
Abstract Background Patients with head and neck squamous cell carcinoma (HNSCC) face several physical, emotional, psychological challenges throughout treatment. Cisplatin-based chemoradiotherapy (CRT) is an effective but toxic treatment, increased risk for toxicities in patients low skeletal muscle mass (SMM). Consequently, these are anticipated to experience greater treatment-related difficulties. We aimed explore the experiences of HNSCC SMM regarding cisplatin-based CRT. Methods A descriptive qualitative study was conducted, interviewing seven 3 months after CRT using a topic guide. Thematic analysis semi-structured interviews create multi-dimensional understanding patients’ during Results Prior themes included pre-treatment information, expectations towards treatment trial, psychosocial circumstances, supporting network. During toxicities, impact, After reflection on period CRT, informal support from networks healthcare workers, ongoing toxicities. Conclusion Most as life-changing distressing life event cope through various strategies networks. Tailored counseling, ideally on-demand consultations, recommended. No differences were noted perceptions their cisplatin regimen.
Язык: Английский
Процитировано
0
Journal of integrative nursing and palliative care, Год журнала: 2023, Номер 2(1), С. 11 - 16
Опубликована: Янв. 1, 2023
Язык: Английский
Процитировано
1