Exploring Communication, Eating, and Swallowing Challenges among Malaysian Head and Neck Cancer Patients: A Qualitative Study DOI

Giuditta Smith,

Ting Ying Boey,

Shin Ying Chu

и другие.

Research Square (Research Square), Год журнала: 2024, Номер unknown

Опубликована: Сен. 23, 2024

Abstract Purpose This study investigated the challenges and coping strategies among Malaysian HNC patients who are still verbal communicators with respect to eating, swallowing, communication habits. Methods Ten (nine males, age range 49–73) were recruited from a single hospital in Malaysia. In-depth individual interviews (IDIs) conducted by trained graduate research assistant guided semi-structured interview guide. Transcribed data IDIs analyzed using thematic analysis, following six-step approach described Braun Clarke. Results Respondents identified several key issues that sorted into three themes: (1) “You eat because you have survive”: losing pleasure food, (2) “I only talked about what I wanted”: becoming different communicator, (3) “…health back. That is hope”: negotiating life after cancer. Patients reported change eating habits, loss of when behaviour talking, societal withdrawal. Most mechanisms such as resorting religion or shared experiences other cancer patients. Conclusion highlights need assess late effects its treatment during each long-term follow-up visit on psychosocial health patients, focusing their mastication swallowing decreases vocal quality. Therefore, speech language pathology services crucial for addressing HNC.

Язык: Английский

Quality of life in 583 head and neck cancer survivors assessed with the FACE-Q head and neck cancer module DOI Creative Commons
Anthony M. Tonsbeek, Caroline A. Hundepool,

Jantien Roubos

и другие.

Oral Oncology, Год журнала: 2024, Номер 153, С. 106813 - 106813

Опубликована: Апрель 30, 2024

Long-term health-related quality of life (HRQOL) is frequently affected in head and neck cancer (HNC) survivors. Due to the shortage studies investigating long-term patient-reported outcomes, we investigated HRQOL using novel FACE-Q HNC Module. A retrospective cross-sectional single-center study was performed, including all patients who underwent curative treatment for between 2006 2013. All eligible (n = 863) were invited participate whom 540 completed questionnaires. Additionally, a prospective longitudinal cohort 43 treated 2020 2022 included preoperatively filled FACE-Q, at three, six, 12 months postoperatively. domain scores analyzed visualize group characteristics by tumor site type surgical resection. Both non-surgical treatments predominantly functional domains (eating, salivation, speech, swallowing), eating distress, speaking with distinct profiles depending on treatment. In contrast, few intergroup differences observed appearance, smiling, drooling smiling distress. Longitudinal data showed significant deterioration across short-term following Patients reported long-lasting negative effects follow-up domains, whereas psychological near-complete recovery level. At long-term, various function-related psychosocial still are The results may serve better inform regard specific highlight which potentially be optimized.

Язык: Английский

Процитировано

7
Predictors of survival among head and neck cancer patients after radiotherapy based on health-related quality of life indices and symptoms-specific outcomes: a systematic review DOI

Siti Nur Akmal Ghazali,

Hanani Abdul Manan, Caryn Mei Hsien Chan

и другие.

Quality of Life Research, Год журнала: 2025, Номер unknown

Опубликована: Апрель 11, 2025

Язык: Английский

Процитировано

0
Development and validation of the head and neck cancer psychosocial distress scale (HNCPDS) to identify patients at high risk for psychological problems : a multicenter study DOI Creative Commons

Xu Jun,

Feng Li,

Wan Fangyun

и другие.

Scientific Reports, Год журнала: 2024, Номер 14(1)

Опубликована: Авг. 10, 2024

To develop the Head and Neck Cancer Psychosocial Distress Scale (HNCPDS) with aim of identifying high-risk individuals for psychosocial distress among patients, to assess its reliability, validity applicability. Using classical test theory, a total 435 head neck cancer patients from six tertiary hospitals in China were recruited developing HNCPDS. Delphi expert consultation item analysis used improve content preliminary Factor (FA) Structural equation modeling (SEM) structural Cronbach's alpha coefficient, Spearman-Brown coefficient Intra-class correlation (ICC) internal consistency retest reliability Multiple stepped-linear regression was analyze risk factors psychological disorder, Pearson between quality life (QOL). The HNCPDS consisted 14 items, which divided into 3 subscales: items discrimination, 5 anxiety depression, 6 social phobia. had good [KMO 0.947, Bartlett's 5027.496 (P < 0.001), Cumulative variance contribution rate 75.416%, all factor loadings greater than 0.55], (Cronbach's 0.954, 0.955, test-retest 0.845) acceptability [average completion time (14.31 ± 2.354 min) effective 90.63%]. Financial burden, sex, age personality found be independent 0.05), higher scores reported lower QOL 0.01). is reliable early identification assessment level cancer, can provide an basis health education, counseling, support future.

Язык: Английский

Процитировано

0
Psychological Distress in Patients with Head and Neck Cancer: Exploring the Biological Connections DOI
Daniel Paixão Pequeno,

Diogo Back Sartoretto,

Juliana Carron

и другие.

Опубликована: Янв. 1, 2024

Язык: Английский

Процитировано

0
Limited consensus on the diagnosis and treatment of lymphedema after head and neck cancer: results from an International Delphi study DOI Creative Commons
Coralie R. Arends, Kaat Van Aperen, Lisette van der Molen

и другие.

Disability and Rehabilitation, Год журнала: 2024, Номер unknown, С. 1 - 9

Опубликована: Июнь 14, 2024

To explore current practice variation and degree of consensus among international clinical experts regarding the diagnosis, classification, measurement, treatment head neck lymphedema (HNL) after cancer treatment.

Язык: Английский

Процитировано

0
Exploring Communication, Eating, and Swallowing Challenges among Malaysian Head and Neck Cancer Patients: A Qualitative Study DOI

Giuditta Smith,

Ting Ying Boey,

Shin Ying Chu

и другие.

Research Square (Research Square), Год журнала: 2024, Номер unknown

Опубликована: Сен. 23, 2024

Abstract Purpose This study investigated the challenges and coping strategies among Malaysian HNC patients who are still verbal communicators with respect to eating, swallowing, communication habits. Methods Ten (nine males, age range 49–73) were recruited from a single hospital in Malaysia. In-depth individual interviews (IDIs) conducted by trained graduate research assistant guided semi-structured interview guide. Transcribed data IDIs analyzed using thematic analysis, following six-step approach described Braun Clarke. Results Respondents identified several key issues that sorted into three themes: (1) “You eat because you have survive”: losing pleasure food, (2) “I only talked about what I wanted”: becoming different communicator, (3) “…health back. That is hope”: negotiating life after cancer. Patients reported change eating habits, loss of when behaviour talking, societal withdrawal. Most mechanisms such as resorting religion or shared experiences other cancer patients. Conclusion highlights need assess late effects its treatment during each long-term follow-up visit on psychosocial health patients, focusing their mastication swallowing decreases vocal quality. Therefore, speech language pathology services crucial for addressing HNC.

Язык: Английский

Процитировано

0