Adaptation and validation of the French version of the Hypoparathyroid patient questionnaire 28 (HPQ 28) in the ComPaRe-epi-hypo e-cohort
JBMR Plus,
Год журнала:
2025,
Номер
9(3)
Опубликована: Янв. 17, 2025
Abstract
Chronic
hypoparathyroidism
is
a
rare
disease
associated
with
an
impaired
quality
of
life.
Recommendations
suggest
frequent
monitoring
life,
but
for
French-speaking
people,
only
generic
scales
are
available
despite
the
fact
that
chronic
has
specific
symptoms
and
impact.
The
aim
this
study
was
to
adapt
validate
French
version
Hypoparathyroid
Patient
Questionnaire
28
(HPQ28),
already
validated
tool
in
patients
living
hypoparathyroidism,
English
German.
HPQ28
translated
back-translated
from
into
French.
Translations
were
harmonized
original
author.
Assessment
psychometric
properties
performed
ComPaRe-Epi-Hypo
e-cohort,
nationwide
cohort
adult
France.
Internal
consistency
evaluated
using
Cronbach’s
alpha.
Dimensional
validity
studied
confirmatory
factor
analysis
(CFA).
Construct
compared
answers
those
EQ-5D-5L,
EQ-5D-VAS,
MYMPO2
instruments.
Reliability
by
intra-class
correlation
coefficient
(ICC)
test–retest
within
2-wk
interval.
Between
August
2023
2024,
183
completed
HPQ28,
EQ-5D,
MYMOP2
scales.
majority
(92%)
participants
women,
median[IQR]
age
52[44;60].
Etiology
neck
surgery
genetic
abnormalities
82%
8%
cases,
respectively.
good
(Cronbach’s
alpha
0.93,
95%
CI
0.91
0.94).
CFA
found
unidimensional
structure
questionnaire.
showed
positive
(r
=
0.64)
negative
correlations
EQ-5D
VAS
−0.49)
EQ-5D-5L
−0.64)
scores,
as
hypothesized.
adequate,
ICC
0.88
(95%
0.84
0.91).
In
conclusion,
we
adapted
suffering
hypoparathyroidism.
It
can
therefore
now
be
used
both
research
clinical
follow-up.
Язык: Английский
Systematic review of the needs and health-related quality of life domains relevant to people surviving cancer in Europe
Quality of Life Research,
Год журнала:
2025,
Номер
unknown
Опубликована: Янв. 23, 2025
Abstract
Purpose
To
systematically
review
qualitative
studies
on
outcomes,
needs,
experiences,
preferences,
concerns
and
health-related
quality
of
life
(HRQoL)
people
surviving
cancer
in
Europe
the
last
decade.
Methods
Protocol
registered
(
https://www.crd.york.ac.uk/PROSPERO
,
ID575065).
Inclusion
criteria:
with
methods,
constructs
related
to
HRQoL,
adults
Europe.
The
search
was
conducted
PubMed
Scopus
since
2013.
Abstracts
full
text
were
revised,
data
extracted
study
risk
bias
assessed
independently
by
two
researchers.
primary
outcomes
themes
arising
from
each
study.
A
thematic
analysis
stratified
according
objective
undertaken
grouping
into
categories.
Results
Of
18,256
articles
identified,
43
fulfilled
inclusion
16
a
generic
27
specific
objectives.
Seven
categories
(57
themes)
emerged
focus:
Clinical
Management
(n
=
16),
Symptoms
Physical
Function
5),
Psychological
21),
Social
18),
HRQoL
3),
Life
Disruption
6),
Individual
Factors
1).
12
focused
treatment
care
experiences
stand
out
among
those
objectives,
most
fitting
same
seven
Conclusions
clearly
showed
predominance
social
psychological
function
domains
over
physical
cancer,
additionally
identifying
needs
clinical
management,
such
as
information
communication,
relationship
support
professionals.
Therefore,
these
aspects
should
be
incorporated
evaluation
patient-centred
initiatives
for
cancer.
Limitations:
only
databases
searched,
European
countries
not
represented.
Язык: Английский
Physiotherapists' Use of Attentional Focus Instructions and Feedback in the Philippines: A Survey Study
Physiotherapy Research International,
Год журнала:
2025,
Номер
30(2)
Опубликована: Фев. 7, 2025
Verbal
instructions
and
feedback
are
critical
motor
learning
elements
within
physiotherapy
practice.
With
evident
advantages
associated
with
that
direct
learner
attention
externally,
it
has
been
recommended
knowledge
about
the
focus
of
(FOA)
be
translated
into
However,
most
existing
information
on
this
topic
comes
from
non-Asian
high-resourced
settings.
This
study
aims
to
fill
gap
regarding
context-specific
practice
patterns
by
examining
preferences
physiotherapists
in
Philippines
for
external
or
internal
FOA
when
delivering
across
various
areas.
We
also
explored
how
professional
characteristics
relate
these
considerations
feedback.
employed
a
cross-sectional
survey
design.
A
total
223
completed
an
online
survey,
which
182
answered
questions
their
based
clinical
scenarios.
The
collected
participants'
backgrounds,
conscious
planning
feedback,
varying
participants
tended
prefer
was
not
educational
background,
years
experience,
specialisation,
geographic
region,
setting,
familiarity.
While
only
approximately
half
respondents
were
familiar
concept
FOA,
majority
consciously
plan
delivery
clients'
cognitive
impairment
levels.
There
is
overall
preference
among
Philippines.
Work
needed
enhance
practitioners'
evidence
related
facilitate
translation
enables
utilisation
research
Язык: Английский
Perceptions of Information Transferred in Review of Systems Forms: A Qualitative Description
Journal of General Internal Medicine,
Год журнала:
2025,
Номер
unknown
Опубликована: Фев. 20, 2025
Язык: Английский
Exploring the Integration of Patient-Reported Outcome Measures in Clinical Practice: A Cross-Sectional Survey of EORTC Healthcare Professionals
European Journal of Cancer,
Год журнала:
2025,
Номер
220, С. 115333 - 115333
Опубликована: Март 1, 2025
Using
patient
reported-outcome
measures
(PROMs)
in
routine
care
has
significant
potential
to
benefit
patients
with
cancer,
but
it
is
unclear
how
widely
they
are
used
practice.
We
conducted
a
cross-sectional
survey
(November
2023-April
2024)
among
healthcare
professionals
(HCPs)
the
European
Organisation
for
Research
and
Treatment
of
Cancer
(EORTC).
Descriptive
statistics
chi-square
tests
assessed
PROM
use
patterns,
regional
differences,
barriers.
Binary
regression
models
compared
barriers
between
users
non-users.
Of
3733
EORTC
members
contacted,
784
responded
(21
%
response
rate),
predominantly
physicians.
Among
HCPs
(50
women),
338
(43
%)
did
not
PROMs,
214
(27
were
occasional
users,
232
(30
PROMs
regularly.
was
significantly
higher
Western
Europe
than
Central/Eastern
Europe.
primarily
monitoring
health
status
enhancing
communication.
highest
treating
bone,
soft
tissue,
genito-urinary,
gynecological
cancers,
lowest
lung
cancer.
Key
included
lack
time
(reported
by
70
respondents)
insufficient
support
on
(73
%).
Compared
non-users,
more
frequently
identified
patient-level
barriers,
such
as
accessibility
concerns,
relevant
(Odds
Ratio
3.5,
95
Confidence
Interval
2.4-5.3).
varies
cancer
type,
setting,
region.
Addressing
constraints,
providing
support,
overcoming
key
broader
integration.
Ensuring
equitable
access
tools
across
regions
settings
vital
promoting
equity
care.
Язык: Английский