
medRxiv (Cold Spring Harbor Laboratory), Год журнала: 2024, Номер unknown
Опубликована: Дек. 12, 2024
ABSTRACT Introduction Long COVID is a multisystem condition that negatively impacts daily function. Pacing self-management strategy to mitigate symptoms. Our aim was describe experiences of pacing from the perspectives adults living with COVID. Methods We conducted community-engaged qualitative descriptive study involving one-on-one online interviews Canada, Ireland, United Kingdom, and States explore disability. asked participants about strategies they used deal health challenges Interviews were audio recorded transcribed verbatim. analyzed data using group-based content analytical techniques. Results Among 40 COVID, majority women (n=25; 63%), white (n=29;73%) heterosexual (n=30;75%). The median age 39 years (25th, 75th percentile: 32, 49). Most (n=37;93%) or prevent Participant described across five main areas: 1) as (pacing multidimensional challenges; applying many types activities; process experienced moving target; helpful strategy, but not cure for COVID); 2) learning how pace (acquiring knowledge pacing; developing skills support pacing); 3) encountering (learning pace; experiencing inequitable access stigma judgement; undergoing psychological emotional adjustment beliefs ‘fighting’ ‘pushing through’ balancing rest activity; making sacrifices; unexpected obstacles); 4) consequences 5) conceptualising describing analogies metaphors. Discussion challenging complex symptoms Healthcare providers should work collaboratively patients further refine implement this when appropriate.
Язык: Английский