Perspectives and Experiences of Patients With Thyroid Cancer at a Global Level: Retrospective Descriptive Study of Twitter Data (Preprint) DOI
Sununtha Meksawasdichai, Tassanee Lerksuthirat, Boonsong Ongphiphadhanakul

и другие.

Опубликована: Май 7, 2023

BACKGROUND Twitter has become a popular platform for individuals to broadcast their daily experiences and opinions on wide range of topics emotions. Tweets from patients with cancer could offer insights into needs. However, limited research been conducted using data understand the needs despite substantial amount health-related posted daily. OBJECTIVE This study aimed uncover potential perspectives thyroid at global level. METHODS retrospective descriptive collected tweets relevant in 2020 scraping tool. Only English-language were included, preprocessing was performed remove irrelevant tweets, duplicates, retweets. Both users manually classified various groups based content. Each tweet underwent sentiment analysis as either positive, neutral, or negative. RESULTS A total 13,135 related analyzed. The authors included (3225 24.6%), patient’s families friends (2449 18.6%), medical journals media (1733 13.2%), health care professionals (1093 8.3%), organizations (940 7.2%), respectively. most discussed living (3650 27.8%), treatment (2891 22%), diagnosis (1613 12.3%), risk factors prevention (1137 8.7%), (953 7.3%). An average 36 pertaining Notably, release film addressing public disclosure news reporter’s personal resulted significant escalation volume tweets. From analysis, 53.5% (7025/13,135) neutral statements 32.7% (4299/13,135) expressed negative had highest proportion emotion (1385/3225 42.9%), particularly when discussing symptoms. CONCLUSIONS provides new valuable source cancer. may provide an opportunity improve patient physician engagement apply source.

Язык: Английский

Partnering With Social Media Influencers to Equitably Improve Adolescent and Young Adult Cancer Outcomes: A Novel Strategy to Support Cancer Care Delivery DOI
Alexandra M. Psihogios, Michael Roth,

Chelsey Gomez

и другие.

JCO Oncology Practice, Год журнала: 2024, Номер 20(6), С. 755 - 760

Опубликована: Фев. 26, 2024

Язык: Английский

Процитировано

4
Impact of Social Media on Oncology Care DOI
Rojine Ariani, Ann C. Raldow

Hematology/Oncology Clinics of North America, Год журнала: 2025, Номер unknown

Опубликована: Янв. 1, 2025

Язык: Английский

Процитировано

0
Cancer Framing and Psychological Characteristics in Online Cancer Diaries: A Mixed-methods Study in China DOI

Lingyun Yu,

Yuhang Li, Chenghui Wu

и другие.

Social Science & Medicine, Год журнала: 2025, Номер 377, С. 118120 - 118120

Опубликована: Апрель 24, 2025

Язык: Английский

Процитировано

0
Development of Quality of Life in Adolescents and Young Adults With Cancer Using a Patient Support Smartphone App: Prepost Interventional Study DOI Creative Commons
Line Bentsen, Signe Hanghøj, Maiken Hjerming

и другие.

JMIR Cancer, Год журнала: 2023, Номер 9, С. e49735 - e49735

Опубликована: Окт. 27, 2023

Adolescents and young adults often experience existential concerns in addition to side effects during a cancer trajectory, which they carry alone. Thus, cohesion with other adolescents is essential but difficult due the relatively small, widely dispersed nationwide population. In cocreation, smartphone app has been developed includes an information bank, symptom tracker, social community platform, aiming improve quality of life (QoL) this patient group.This nationwide, multicenter study aimed investigate QoL undergoing trajectory as used for 6 weeks.Via youth support initiatives, participants were recruited from hospitals all regions Denmark. Inclusion criteria patients aged 15-29 years who either initiated any treatment or started follow-up after within 30 days. Participants weeks. Before weeks use, completed European Organization Research Treatment Cancer Quality Life Questionnaire Core (EORTC QLQ-C30). The divided into group analysis. A high score functional scale global health overall represents healthy level functioning QoL, respectively; however, item symptomatology.Overall, 81 recruited. However, 4 did not answer questionnaire use app. (n=36), significant improvement was found 2 domains: "Role functioning" (baseline median 33.33, IQR 16.67-83.33 vs 66.67, 33.33-83.33; P=.04) "Pain" 16.67-50.00 16.67, 0.00-33.33; P=.04). "Global health/Overall QoL" remained stable 58.33, 45.83-77.08 62.50, 41.67-75.00; P=.25). (n=35), 3 "Physical 79.23, 73.33-93.33 82.86, 73.33-100.00; P=.03), "Cognitive 62.38, 50.00-83.33 69.52, 50.00-100.00; P=.02), "Social 76.19, 50.00-100.00 85.71, 83.33-100.00; P=.05), well 57.14, 83.33-100.00 75.0, 62.91-85.73; P<.001).In study, we specific scales both when using improved significantly group. group, it stable.RR2-10.2196/10098.

Язык: Английский

Процитировано

5
Factors associated with intention to use tele-delivered supportive care among recently diagnosed breast cancer survivors during COVID-19 in Hong Kong: Applying the Unified Theory of Acceptance and Use of Technology (Preprint) DOI
Nelson C. Y. Yeung, Stephanie T Y Lau, Winnie W. S. Mak

и другие.

JMIR Cancer, Год журнала: 2024, Номер 10, С. e51072 - e51072

Опубликована: Апрель 16, 2024

Background Many supportive cancer care (SCC) services were teledelivered during COVID-19, but what facilitates patients’ intentions to use SCC is unknown. Objective The study aimed the unified theory of acceptance and technology investigate factors associated with breast survivors (BCS) in Hong Kong various types (including psychosocial care, medical consultation, complementary peer support groups). Favorable telehealth-related perceptions (higher performance expectancy, lower effort more facilitating conditions, positive social influences), less technological anxiety, greater fear COVID-19 hypothesized be higher SCC. Moreover, associations between moderated by education level, such that would stronger among those a level. Methods A sample 209 (209/287, 72.8% completion rate) women diagnosed since start outbreak (ie, January 2020) recruited from Breast Cancer Registry complete cross-sectional survey June 2022 December 2022. Participants’ (dependent variables), (independent sociodemographic variables (eg, education, as moderator variable) measured using self-reported, validated measures. Results Hierarchical regression analysis results showed confidence telehealth, expectancy (believing telehealth helps daily tasks), influence (important others encouraging use), conditions (having resources for use) (range: β=0.16, P=.03 β=0.34, P<.001). 2-way interactions emerged level 2 perception variables. Education (1) intention (β=0.34, P=.04) (2) groups (β=0.36, P=.03). only significant Conclusions findings this implied enhancing BCS’ skills at their important others’ perceived benefits providing assistance could increase For specific SCC, addressing relevant (performance conditions) might particularly beneficial

Язык: Английский

Процитировано

0
Social short video platform assisted care for adverse psychological symptoms in cancer patients: A mixed‐methods study DOI Creative Commons
Li Shen, Xia Liu, Xia Wang

и другие.

MedComm – Future Medicine, Год журнала: 2024, Номер 3(2)

Опубликована: Июнь 1, 2024

Abstract The rising psychological issues among cancer patients call for timely treatment. Psychological such as anxiety, depression, and distress are particularly common have a significant impact on their treatment prognostic outcomes. Distraction has been proven to mitigate mental disorders strategy of intervention. Digital tools like social short video platforms offer cost‐effective healthcare potential, but there is lack longitudinal studies demonstrating intervention effectiveness. This study aimed assess the well‐being patients, focusing distress. We studied 455 digestive system using mixed methods. effect symptoms was evaluated via cross‐sectional analysis 392 pre‐post 63 employing Hospital Anxiety Depression Scale Distress Thermometer. findings showed lower scores regular users platforms. led reduced anxiety depression scores. As prevalent app platforms, these might be safe convenient nonpharmacological assisted tool enhancing health care during

Язык: Английский

Процитировано

0
Results of the Italian cross-sectional web-based survey “Nutrition and breast cancer, what would you like to know?” An attempt to collect and respond to patients’ information needs, through social media DOI Creative Commons
Greta Caprara,

Eleonora Pagan,

Lucilla Titta

и другие.

Frontiers in Oncology, Год журнала: 2024, Номер 14

Опубликована: Сен. 25, 2024

Several studies have demonstrated that, following a breast cancer (BC) diagnosis, patients are eager to obtain information on and nutrition, in order ameliorate both their quality of life (QoL) disease outcome. To avoid BC survivors get wrong from unreliable sources, healthcare providers need be aware patients' needs, guide them toward optimal nutrition recommendations, aimed at preventing tumor recurrence increasing survival rates.

Язык: Английский

Процитировано

0
Perspectives and Experiences of Patients With Thyroid Cancer at a Global Level: Retrospective Descriptive Study of Twitter Data DOI Creative Commons
Sununtha Meksawasdichai, Tassanee Lerksuthirat, Boonsong Ongphiphadhanakul

и другие.

JMIR Cancer, Год журнала: 2023, Номер 9, С. e48786 - e48786

Опубликована: Авг. 2, 2023

Background Twitter has become a popular platform for individuals to broadcast their daily experiences and opinions on wide range of topics emotions. Tweets from patients with cancer could offer insights into needs. However, limited research been conducted using data understand the needs despite substantial amount health-related posted daily. Objective This study aimed uncover potential perspectives thyroid at global level. Methods retrospective descriptive collected tweets relevant in 2020 scraping tool. Only English-language were included, preprocessing was performed remove irrelevant tweets, duplicates, retweets. Both users manually classified various groups based content. Each tweet underwent sentiment analysis as either positive, neutral, or negative. Results A total 13,135 related analyzed. The authors included (3225 24.6%), patient’s families friends (2449 18.6%), medical journals media (1733 13.2%), health care professionals (1093 8.3%), organizations (940 7.2%), respectively. most discussed living (3650 27.8%), treatment (2891 22%), diagnosis (1613 12.3%), risk factors prevention (1137 8.7%), (953 7.3%). An average 36 pertaining Notably, release film addressing public disclosure news reporter’s personal resulted significant escalation volume tweets. From analysis, 53.5% (7025/13,135) neutral statements 32.7% (4299/13,135) expressed negative had highest proportion emotion (1385/3225 42.9%), particularly when discussing symptoms. Conclusions provides new valuable source cancer. may provide an opportunity improve patient physician engagement apply source.

Язык: Английский

Процитировано

1
Social media use is associated with higher levels of anxiety and depression in patients with neuroendocrine carcinoma of the cervix: A NeCTuR study DOI
Reem Saab, Gloria Salvo, Naomi R. Gonzales

и другие.

Gynecologic Oncology, Год журнала: 2023, Номер 177, С. 95 - 102

Опубликована: Авг. 30, 2023

Язык: Английский

Процитировано

1
Effectiveness of Digital-Based Interventions on Physical and Psychological Outcomes Among Cancer Patients: A Systematic Review and Meta-Analysis DOI

Cynthia Goh,

Xiaoshuang Gan,

Piyanee Klainin‐Yobas

и другие.

Seminars in Oncology Nursing, Год журнала: 2024, Номер unknown, С. 151796 - 151796

Опубликована: Дек. 1, 2024

Язык: Английский

Процитировано

0