“It’s a delicate dance” How informal caregivers experience the role and responsibilities of supporting someone living with a lower-grade glioma DOI
Ben Rimmer,

Michelle Balla,

Lizzie Dutton

и другие.

Neuro-Oncology Practice, Год журнала: 2024, Номер unknown

Опубликована: Окт. 14, 2024

People with lower-grade gliomas (LGG) often require long-term support a condition that causes substantial symptom burden and is likely to progress. Partners, family, friends become informal caregivers (IC), but the types of they provide, their experiences this, have not been well investigated. We aimed understand how ICs experience role responsibilities supporting people LGG. This descriptive qualitative study used semistructured interviews explore purposive sample across United Kingdom, who currently, or in past 5 years, support(ed) someone an Interviews were audio-recorded transcribed, inductive thematic analysis was conducted. Nineteen interviewed (mean age 54.6 years; males/14 females). While most participants spoke about "Being 'carer'," level care provided varied. Participants conveyed "Adjusting for cognitive difficulties," "Emotional protection," "Supporting participation daily life," "Healthcare advocacy." felt "abandoned" by healthcare services provide required themselves, reported "Balancing challenges caregiving," including conflict work/childcare. Issues around "Maintaining recipient's independence" interwoven throughout. LGG wide-ranging help manage consequences illness. Consideration ways fulfilling this role, particularly, balancing provision without inhibiting independence, could improve outcomes

Язык: Английский

Healthcare provision for cancer survivors with chronic bowel symptoms post pelvic radiotherapy. “…and then you’re kind of cast adrift”: A qualitative study. DOI Creative Commons

Adam Biran,

Christina Dobson, Colin Rees

и другие.

European Journal of Oncology Nursing, Год журнала: 2025, Номер unknown, С. 102895 - 102895

Опубликована: Май 1, 2025

Язык: Английский

Процитировано

0
“It’s a delicate dance” How informal caregivers experience the role and responsibilities of supporting someone living with a lower-grade glioma DOI
Ben Rimmer,

Michelle Balla,

Lizzie Dutton

и другие.

Neuro-Oncology Practice, Год журнала: 2024, Номер unknown

Опубликована: Окт. 14, 2024

People with lower-grade gliomas (LGG) often require long-term support a condition that causes substantial symptom burden and is likely to progress. Partners, family, friends become informal caregivers (IC), but the types of they provide, their experiences this, have not been well investigated. We aimed understand how ICs experience role responsibilities supporting people LGG. This descriptive qualitative study used semistructured interviews explore purposive sample across United Kingdom, who currently, or in past 5 years, support(ed) someone an Interviews were audio-recorded transcribed, inductive thematic analysis was conducted. Nineteen interviewed (mean age 54.6 years; males/14 females). While most participants spoke about "Being 'carer'," level care provided varied. Participants conveyed "Adjusting for cognitive difficulties," "Emotional protection," "Supporting participation daily life," "Healthcare advocacy." felt "abandoned" by healthcare services provide required themselves, reported "Balancing challenges caregiving," including conflict work/childcare. Issues around "Maintaining recipient's independence" interwoven throughout. LGG wide-ranging help manage consequences illness. Consideration ways fulfilling this role, particularly, balancing provision without inhibiting independence, could improve outcomes

Язык: Английский

Процитировано

1