Mpox Illness Narratives: Stigmatising Care and Recovery During and After an Emergency Outbreak

Qualitative Health Research, Год журнала: 2024, Номер 34(12), С. 1161 - 1174

Опубликована: Март 10, 2024

In May 2022, a global outbreak of mpox (formerly monkeypox virus) affected thousands mainly gay and bisexual men. Mpox is usually time-limited illness that can involve fever, pain, skin lesions, but may require hospitalisation. There scant research into the firsthand experiences people by mpox, including symptoms, healthcare, recovery. This study considers different narratives who experienced in Australia 2022. In-depth interviews 6-month follow-up were conducted with 16 people, 13 diagnosed three close contacts. All participants cisgender or men living Australia. Participants' accounts described minor to severe periods sickness, negative stigmatising engaging some long-term effects on their sexual well-being complications from mpox. The emergency context meant was highly distressing, making it difficult manage producing varying forms disruption everyday life. narrated as disruptive ways: interruption holiday plans, prolonged period poor health, biographically event prompting re-evaluation values health. analysis demonstrates an unfamiliar emergent disease related practices sociality reconfigure personal life well-being, suggesting need focus providing quality patient care outbreaks other infectious diseases.

Язык: Английский

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Digital determinants of sexual and reproductive health—workforce perspectives on digital and data literacies

Health Promotion International, Год журнала: 2025, Номер 40(2)

Опубликована: Март 5, 2025

Abstract This article explores the impact of digital transformation on sexual and reproductive health promotion from an interdisciplinary perspective, focusing implications rapidly evolving policy landscapes for Australian workforce. We draw 29 key informant interviews workshops with 18 current professionals (aged 18–29). Both groups were invited to reflect how data literacies are currently understood applied within sector. Interviewees shared concerns related literacy, equity, challenges integrating technologies into practice. Findings highlight need strategic approaches that shift focus away individual towards broader organisational capabilities. These capabilities include: understanding platform governance (e.g. in relation social media content moderation); consumers service users utilise systems support wellbeing; ways equity justice can be undermined or advanced settings. conclude recommendations enhancing workforce DDoH practice improve equity. Significantly, we dedicated resources training needed address complexities context.

Язык: Английский

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Beyond the challenge to research integrity: imposter participation in incentivised qualitative research and its impact on community engagement

Health Sociology Review, Год журнала: 2023, Номер 32(3), С. 372 - 380

Опубликована: Сен. 2, 2023

Participant recruitment for qualitative research often offers incentives (honoraria; financial compensation) to increase participation and recognise lived expertise time involved in research. While not necessarily a new concern survey other quantitative based research, 'spam', 'bot', inauthentic forms of has rarely been an apparent issue given it involves levels interaction with potential participants prior the conduct in-depth interviews methods data generation. This is no longer case. A troubling occurrence meant that calls on public-facing social media have attracted 'imposter' expressions interest participation. In this commentary, we explore challenge goes beyond integrity. particular, consider risks employing strategies screen legitimate importance building trust maintaining community engagement.

Язык: Английский

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DATA-DRIVEN OPTIMIZATION IN PHARMACY OPERATIONS: A PRESCRIPTION FOR ENHANCED PATIENT CARE

Universal Journal of Pharmaceutical Research, Год журнала: 2025, Номер unknown

Опубликована: Янв. 15, 2025

The convergence of patient care and business efficiency in community pharmacies through a Comprehensive Datafication Approach marks transformative journey toward enhanced healthcare services operational effectiveness. aim this study was to examine diverse perspectives on datafication, AI, emerging technologies healthcare, with particular focus optimizing pharmacy operations. implementation significantly impacts overall outcomes. strict criterion mandates studies report outcomes related care, efficiency, or metrics, ensuring selected literature aligns cohesively research objectives, providing robust basis for exploring dimensions associated operations datafication. Drawing from multiple studies, our exploration encompasses the challenges potentials inherent integration digital technologies. As we delve into optimization these contribute nuanced understanding opportunities data-driven transformation. AI necessitates ethical considerations, inclusive practices, balance between goals individual rights, holistic approach Peer Review History: Received 2 October 2024; Reviewed 17 November; Accepted 24 December; Available online 15 January 2025 Academic Editor: Dr. Emmanuel O. Olorunsola, Department Pharmaceutics & Pharmaceutical Technology, University Uyo, Nigeria, [email protected] Average review at initial stage: 6.5/10 publication 7.0/10

Язык: Английский

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From Digital Health Literacy to a Digital and Data Capabilities Approach to Sexual Health

Sexuality Research and Social Policy, Год журнала: 2025, Номер unknown

Опубликована: Март 28, 2025

Язык: Английский

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Health‐Related Stigma: The Affordances of Electronic Health Management Systems in the Production of Structural Stigma

Sociology of Health & Illness, Год журнала: 2025, Номер 47(4)

Опубликована: Май 1, 2025

ABSTRACT Encounters with stigma in healthcare settings are well‐documented. In recent years, significant attention has begun to be paid how we can reduce these stigmas, including through the identification and reformation of structural forces that shape sustain them. This article analyses 30 interviews conducted clinical nonclinical workers, as part a larger project aims health‐related for all. A major theme running was constitutive role medical records production stigma. Interview participants expressed several concerns about ways such produce reproduce associated numerous health conditions, identities, practices. We examine very process producing implicated ask, do systems data production, reproduction, access dissemination? To what extent might processes help generate, maintain or exacerbate demands record keeping, reforms needed at levels too? addressing questions, work Latour's notion affordances technology reflect social political arrangements, argue institutions structures responsible governance need contend important entanglements between conclude recommendations policymakers, service leaders researchers intervene afforded by forms communication.

Язык: Английский

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Advancing Dialogue About Consent and Molecular HIV Surveillance in the United States: Four Proposals Following a Federal Advisory Panel's Call for Major Reforms

Milbank Quarterly, Год журнала: 2023, Номер 101(4), С. 1033 - 1046

Опубликована: Июнь 28, 2023

Policy Points Molecular HIV surveillance and cluster detection response (MHS/CDR) programs have been a core public health activity in the United States since 2018 are “fourth pillar” of Ending Epidemic initiative launched 2019. MHS/CDR has caused controversy, including calls for moratorium from networks people living with HIV. In October 2022, Presidential Advisory Council on HIV/AIDS (PACHA) adopted resolution calling major reforms. We analyze policy landscape present four proposals to federal stakeholders pertaining PACHA's recommendations about incorporating opt‐outs plain‐language notifications into programs.

Язык: Английский

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Toward Consent in Molecular HIV Surveillance?: Perspectives of Critical Stakeholders

AJOB Empirical Bioethics, Год журнала: 2023, Номер 15(1), С. 66 - 79

Опубликована: Сен. 28, 2023

AbstractBackground The emergence of molecular HIV surveillance (MHS) and cluster detection response (CDR) programs as key features the United States (US) strategy since 2018 has caused major controversies. that re-use individuals' routinely collected clinical data do not require consent on basis public benefit these outweighs rights to opt out. However, criticisms MHS/CDR have questioned whether expanded uses genetic sequence for prevention reach beyond traditional health ethics frameworks. This study aimed explore views within among critical stakeholders.Methods In 2021 we interviewed 26 US stakeholders who identified being or concerned about rollout MHS/CDR. Stakeholders included participants belonging networks people living with HIV, other advocates, academics, professionals. analysis focused identifying range positions affordances, opt-outs, how best inform them are used in programs, related ethical issues.Results Participants were broadly supportive introducing some forms into they differed specifics implementing consent. While did support all supported idea should be informed is conducted used.Conclusions sustained controversy. Among stakeholders, generally desirable but contested, although right was centrally supported. an era big data-driven interventions routine prevention, CDC agencies revisit frameworks consider possibility processes.Keywords: Health policypublic ethicsempirical bioethicsending epidemicdata justice AcknowledgementsThe authors thank participants, editors AJOB Empirical Bioethics, anonymous reviewers. SM also thanks Tom Boellstorff his during conceptualization execution this mentorship while a postdoctoral fellow.Disclosure statementThe no conflicts interest disclose.Ethical approvalThis considered category 2 exempt human subjects research by University California, Irvine IRB, where employed when conducted. All given study's document via email recruitment provided verbally recorded before interviews.Additional informationFundingFunding California President's Postdoctoral Fellowship Program, through SM.

Язык: Английский

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Health policy counterpublics: Enacting collective resistances to US molecular HIV surveillance and cluster detection and response programs

Social Studies of Science, Год журнала: 2023, Номер 54(3), С. 451 - 477

Опубликована: Дек. 6, 2023

Health policies and the problems they constitute are deeply shaped by multiple publics. In this article we conceptualize

Язык: Английский

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Communication and coordination of care for people living with HIV: a qualitative study of the patient perspective

BMC Primary Care, Год журнала: 2024, Номер 25(1)

Опубликована: Янв. 10, 2024

Abstract Background There is growing consensus that primary health care (PHC) providers have an important role in providing holistic, preventative for people living with human immunodeficiency virus (PLHIV). In regional Australia, HIV primarily delivered through specialist services, thus adequate coordination and communication between PHC professionals crucial. This study aimed to explore patient experiences of the professional PLHIV Australia. Methods Semi-structured interviews a area Australia were conducted March April 2022. Interviews via video conferencing, face-to-face, or telephone call. audio-recorded manually transcribed. Transcripts coded inductively thematic analysis was perspectives on coordination. Results Thirteen participants interviewed. Most male, aged 50–70, diagnosed more than ten years ago, had been long-term. Through qualitative analysis, themes emerged following areas: (1) Patient perception coordination; (2) understanding modality communication; (3) Positive attitudes towards healthcare professionals; (4) Concerns information sharing professionals. Many highlighted lack clarity around as key issue their healthcare, some citing themselves coordinator. Participants identified services are essential delivery care, but hesitant this occur. Hesitancy entrenched patients’ distrust due previous confidentiality breaches stigma. Conclusion identifies need deliver safe effective which may occur plans. support be strengthened by ensuring trust systems involved. Eliminating stigma well building trustworthy electronic-based technologies components trust-building systems.

Язык: Английский

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