Optimizing Telehealth Delivery for People with Intellectual and Developmental Disabilities and Mental Health Service Experiences
Journal of Mental Health Research in Intellectual Disabilities,
Год журнала:
2025,
Номер
unknown, С. 1 - 22
Опубликована: Фев. 6, 2025
Язык: Английский
Challenges and Resilience of Disabled People During COVID-19
Опубликована: Янв. 1, 2025
Язык: Английский
Experiences of caregivers of children with autism during the COVID-19 pandemic: A scoping review
South African Journal of Communication Disorders,
Год журнала:
2024,
Номер
71(1)
Опубликована: Июль 18, 2024
Background:
The
coronavirus
disease
2019
(COVID-19)
outbreak
has
had
a
profoundly
negative
impact
on
people
all
over
the
world,
particularly
those
with
disabilities
such
as
autism.
However,
there
are
gaps
in
research
understanding
of
COVID-19
this
population
and
support
required.
Aim:
To
explore
evidence
available
pandemic
caregivers
children
Method:
A
scoping
review
methodology
using
Arksey
O'Malley
framework
was
employed.
Five
electronic
databases
from
March
2020
to
December
2022
were
reviewed.
Two
thousand
two
hundred
six
articles
retrieved
primary
search
terms:
(population),
autism
(diagnosis)
(context).
Following
screening
titles,
abstracts
articles,
36
included
final
review.
Thematic
content
qualitative
analysis
completed.
Results:
Preferred
reporting
items
for
systematic
reviews
meta-analyses
extension
(PRISMA-ScR)
guided
findings.
Three
main
themes
identified:
(1)
caregiver's
mental
health
wellbeing,
(2)
response
remote
care
(3)
caregiver
resilience.
Conclusion:
affected
their
families
regarding
changes
routine,
difficulties
emotional
states.
little
been
conducted
upper-middle-income
countries
South
Africa.
Contribution:
findings
carry
practical
implications
that
extend
beyond
pandemic,
political
instability
or
natural
disasters
may
present
similar
stressors
families.
Язык: Английский
The Economic Impacts of COVID-19 on Autistic Children and Their Families
Journal of Autism and Developmental Disorders,
Год журнала:
2024,
Номер
unknown
Опубликована: Фев. 23, 2024
Язык: Английский
COVID-19 Pandemic Experiences of Families in Which a Child/Youth Has Autism and Their Service Providers: Perspectives and Lessons Learned
Journal of Autism and Developmental Disorders,
Год журнала:
2024,
Номер
unknown
Опубликована: Май 20, 2024
The
impacts
of
the
COVID-19
pandemic
on
autistic
children/youth
and
their
families
service
providers
are
not
yet
well-understood.
This
study
explored
lived
experiences
with
an
child
who
support
them
regarding
delivery
well-being.
Язык: Английский
“With the system as it is, I honestly don't know there's anything available that would help me”: COVID-19 experiences for autistic and non-autistic adults with pre-existing mental health concerns.
Опубликована: Авг. 30, 2024
Objective:
Widespread
mental
health
impacts
occurred
early
in
the
COVID-19
pandemic,
especially
for
those
with
pre-existing
conditions.
Less
is
known
about
how
these
groups
fared
later
phases
and
post-
pandemic.
We
compared
late-pandemic
on
adults
ill-health
other
vulnerabilities
to
enable
better
service
planning
future
crises.Design
methods:
This
mixed-method
study
surveyed
532
online,
2021-2022.
All
participants
self-reported
ill-heath
either
formal
autism
diagnosis
(181),
self-identification
of
(167),
or
were
non-autistic
(184).
Self-ratings
health,
need
healthcare
ease
access
during
COVID
across
demographics.
Responses
an
open
question
analysed
using
Reflexive
Thematic
Analysis.Results:
Most
reported
poor
high
needs
great
difficulty
obtaining
appropriate
care
Significant
differences
found
age,
neurotype
education
level:
younger
worse
health;
people
neurodivergent
conditions
than
(NDCs)
greater
healthcare;
NDCs
lower
levels
care.
analysis
identified
four
themes/sub-themes:
“Greater
most”;
“Exceptions
rule:
improvements
some
(mainly
autistic
people)”;
“Navigating
a
scarce
resource”;
“Telehealth:
enabler
some,
barrier
others”.
Conclusions:
Having
condition
rather
status
was
more
important
determining
pandemic
impacts.
Язык: Английский
Facing Change and Uncertainty: Lessons Learned from Autistic Children and their Families During the COVID-19 Pandemic
Journal of Autism and Developmental Disorders,
Год журнала:
2024,
Номер
unknown
Опубликована: Дек. 2, 2024
Abstract
The
COVID-19
pandemic
presented
a
great
challenge
for
individuals
around
the
globe,
and
particularly
vulnerable
populations
such
as
autistic
children.
This
qualitative
study
explored
experience
of
children
(both
verbal
minimally
verbal)
their
families
during
in
August-October
2020
through
lens
18
parents
recruited
from
an
opportunistic
follow-up
randomized
controlled
trial.
Findings
revealed
that
was
detrimental
to
mental
health
most
parents.
School
closures,
disrupted
routines
concerns
virus
were
believed
by
be
responsible
increased
child’s
behaviour
challenges
anxiety,
resulting
changes
acquired
skills
development
tics
some.
However,
other
reported
one-to-one
interaction
with
child
improved
social
communication.
Additionally,
felt
more
able
cope
situation
when
supported
partner,
support
services
schools.
findings
highlight
benefits
experienced
pandemic.
They
provide
valuable
insights
into
potential
areas
warrant
attention
preparing
future
emergencies.
Enhancing
our
ability
respond
needs
families,
establishing
policies
can
well-being
should
prioritised
effectively
address
challenges.
Язык: Английский