Caregiver approaches, resiliencies, and experiences raising individuals with fetal alcohol spectrum disorder: A study protocol paper DOI Creative Commons
Katherine Flannigan,

Devon C. Edwards,

Dorothy Reid

и другие.

PLoS ONE, Год журнала: 2024, Номер 19(12), С. e0312692 - e0312692

Опубликована: Дек. 3, 2024

Fetal alcohol spectrum disorder (FASD) is a complex neurodevelopmental disability characterized by range of brain- and body-based difficulties which, when left unsupported, can lead to experiences significant adversity across the lifespan. Caregivers individuals with FASD play critical role in advocating supporting healthy outcomes for FASD, most caregiver research date has been focused on stressors challenges. Very few studies have conducted systematically capture full experience caring someone lifespan, including perspectives, concerns, as well strengths successes caregivers their families. Collaborative living essential understanding needs families, are unique important position provide perspectives share expertise. Therefore, current study was developed collaboratively researchers many aspects caregivers’ contexts, needs, raising FASD. In this protocol paper, we describe rationale, development, design, anticipated impacts research. The goal paper information about why how being done, potentially guide other teams developing similar projects better understand experiences, successes. Documenting giving voice breadth depth will help us tailor services supports, develop resources, stimulate knowledge translation based resilience protective factors, future studies, inform evidence-based policy initiatives.

Язык: Английский

Caregiver approaches, resiliencies, and experiences raising individuals with fetal alcohol spectrum disorder: A study protocol paper DOI Creative Commons
Katherine Flannigan,

Devon C. Edwards,

Dorothy Reid

и другие.

PLoS ONE, Год журнала: 2024, Номер 19(12), С. e0312692 - e0312692

Опубликована: Дек. 3, 2024

Fetal alcohol spectrum disorder (FASD) is a complex neurodevelopmental disability characterized by range of brain- and body-based difficulties which, when left unsupported, can lead to experiences significant adversity across the lifespan. Caregivers individuals with FASD play critical role in advocating supporting healthy outcomes for FASD, most caregiver research date has been focused on stressors challenges. Very few studies have conducted systematically capture full experience caring someone lifespan, including perspectives, concerns, as well strengths successes caregivers their families. Collaborative living essential understanding needs families, are unique important position provide perspectives share expertise. Therefore, current study was developed collaboratively researchers many aspects caregivers’ contexts, needs, raising FASD. In this protocol paper, we describe rationale, development, design, anticipated impacts research. The goal paper information about why how being done, potentially guide other teams developing similar projects better understand experiences, successes. Documenting giving voice breadth depth will help us tailor services supports, develop resources, stimulate knowledge translation based resilience protective factors, future studies, inform evidence-based policy initiatives.

Язык: Английский

Процитировано

0