¿Donde están? Hispanic/Latine inclusion, diversity and representation in the HEALthy Brain and Child Development Study (HBCD) DOI Creative Commons
Florencia Anunziata, C. Jiménez de Cisneros,

Maria Isabella Natale Castillo

и другие.

Developmental Cognitive Neuroscience, Год журнала: 2024, Номер 70, С. 101477 - 101477

Опубликована: Ноя. 14, 2024

The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, emotional development beginning prenatally planned through early childhood. Central to its mission of reducing health disparities is the establishment Spanish Language Culture Committee (SLCC) within HBCD framework, significant step towards demographic representation inclusivity in research. By addressing linguistic sociocultural barriers embracing diverse identities Hispanic/Latine individuals nationwide, SLCC aims promote inclusion, equity, all subgroups, population that has been historically misrepresented In this paper we describe role advocating for families ensuring their inclusion from inception. This report also provides an overview organization, workflow, challenges lessons learned thus far reduce stigma improve study outcomes, highlighting recruitment retention strategies population, expanding outreach across subgroups United States.

Язык: Английский

Brain health is a human right: Implications for policy and research DOI Creative Commons
Timothy Daly

Neuroscience, Год журнала: 2025, Номер unknown

Опубликована: Фев. 1, 2025

Highlights•Promotion of brain health across the lifetime is both urgent and under-prioritized.•Recognizing as a human right should improve promotion.•A rights-based approach to policy research emphasizes need for population-level interventions studies part public health.AbstractThe call synergize with mental has major ramifications policy. Mental been recognized universal right, but no such declaration exists health. Here, I defend lifelong derived, intermediary, generative right. It derived from physical because it reducible facts about body. This grounds in health, long-standing hard legal status, while avoiding "rights inflation." intermediary bridges gap between since an organ that central provides impetus downstream actions including creation health-based "neurorights" bolstering healthy environment protect collective cognitive Thus, would guarantee citizens live grow health-promoting environment. A also important consequences research. help move away disease paradigm focuses on individual risk responsibility study deeper contributions through population neuroscience Until alongside their synergy will remain incomplete, promotion lack unity.

Язык: Английский

Процитировано

2

The development and structure of the HEALthy Brain and Child Development (HBCD) Study EEG protocol DOI Creative Commons
Nathan A. Fox, Koraly Pérez‐Edgar, Santiago Morales

и другие.

Developmental Cognitive Neuroscience, Год журнала: 2024, Номер 69, С. 101447 - 101447

Опубликована: Сен. 18, 2024

Язык: Английский

Процитировано

8

Remote Data Collection of Infant Activity and Sleep Patterns via Wearable Sensors in the HEALthy Brain and Child Development Study (HBCD) DOI Creative Commons
Nicolò Pini, William P. Fifer, Jinseok Oh

и другие.

Developmental Cognitive Neuroscience, Год журнала: 2024, Номер 69, С. 101446 - 101446

Опубликована: Сен. 13, 2024

Язык: Английский

Процитировано

3

The HEALthy Brain and Child Development Study (HBCD) experience: Recruiting and retaining diverse families in a longitudinal, multi-method early childhood study DOI Creative Commons
Brenda Jones Harden, Lorraine McKelvey, Julie Poehlmann

и другие.

Developmental Cognitive Neuroscience, Год журнала: 2024, Номер 69, С. 101421 - 101421

Опубликована: Июль 25, 2024

The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, emotional development beginning prenatally planned through early childhood. Given its aim to the impact of adversity protective factors on children's outcomes, recruitment retention families who have wide diversity in experiences are essential. However, unfortunate history inequitable treatment underrepresented research risks with which some participants contend (e.g., substance use) makes their social science neuroscience particularly challenging. This article explores strategies that HBCD Study has developed recruit retain participants, including marginalized, underserved, hard-to-reach populations, capitalizing extant literature researchers' own experiences. In this paper, we address within HBCD, including: 1) creating engender trust promote relationships; 2) maintaining connections over time; 3) ensuring appropriate compensation supports; 4) considerations for study materials procedures; 5) community engagement. implementation these may increase representation inclusiveness, as well improve quality resulting data.

Язык: Английский

Процитировано

2

¿Donde están? Hispanic/Latine inclusion, diversity and representation in the HEALthy Brain and Child Development Study (HBCD) DOI Creative Commons
Florencia Anunziata, C. Jiménez de Cisneros,

Maria Isabella Natale Castillo

и другие.

Developmental Cognitive Neuroscience, Год журнала: 2024, Номер 70, С. 101477 - 101477

Опубликована: Ноя. 14, 2024

The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, emotional development beginning prenatally planned through early childhood. Central to its mission of reducing health disparities is the establishment Spanish Language Culture Committee (SLCC) within HBCD framework, significant step towards demographic representation inclusivity in research. By addressing linguistic sociocultural barriers embracing diverse identities Hispanic/Latine individuals nationwide, SLCC aims promote inclusion, equity, all subgroups, population that has been historically misrepresented In this paper we describe role advocating for families ensuring their inclusion from inception. This report also provides an overview organization, workflow, challenges lessons learned thus far reduce stigma improve study outcomes, highlighting recruitment retention strategies population, expanding outreach across subgroups United States.

Язык: Английский

Процитировано

2