Variation in parental experiences with their child’s hospitalization over the COVID-19 pandemic DOI Creative Commons
Kyle Kemp, Paul Fairie, Brian Steele

и другие.

Journal of Patient-Reported Outcomes, Год журнала: 2023, Номер 7(1)

Опубликована: Ноя. 10, 2023

Abstract Background Hospitals and healthcare workers have been greatly impacted by the COVID-19 pandemic. The potential impacts upon patient experience less documented, particularly in pediatric setting. Our aim was to examine how parental experiences with their child’s hospitalization varied during pandemic at two children’s hospitals Alberta, Canada. Methods A random sample of parents were surveyed within six weeks discharge from Alberta’s hospitals. Surveys administered using Alberta Pediatric Inpatient Experiences Survey (APIES) - a validated instrument used assess hospitalization. linked administrative inpatient records. Three cohorts created based on hospital date: Pre-COVID (Pre: April 2019 March 2020), COVID year one (C1: 2020 2021), (C2: 2021 2022). We examined 48 survey questions, including four overall rating scales. responses Likert These transformed normalized scores 0 (worst) 100 (best). Differences between assessed ANOVA post-hoc Tukey test. Results total 3,611 surveys (1,314 Pre; 997 C1; 1,300 C2) completed over three-year period. Five questions showed differences Pre C1 periods, C2, 13 C2. Among these pre-COVID lower than one, while results one. Thirty-one no statistical three time periods. For ratings, only difference any periods (91.4 vs. 90.2 C2). Overall ratings doctors, nurses, recommendation others differences. Conclusion This study that first mildly better or comparable historical results. changed following year, where reported questions.

Язык: Английский

Cancer nursing research priorities: A rapid review DOI Creative Commons
Maura Dowling, Nikolaos Efstathiou, Amanda Drury

и другие.

European Journal of Oncology Nursing, Год журнала: 2023, Номер 63, С. 102272 - 102272

Опубликована: Янв. 30, 2023

Abstract

Purpose

Identifying cancer nursing research priorities is central to influencing the direction of care research. The aim this rapid review was explore identified by oncology nurses for delivery between 2019 and 2022.

Methods

Preferred Reporting Items Systematic Reviews Meta-Analysis informed design review. MEDLINE, CINAHL, PUBMED, Web Science, Cochrane databases were searched studies published December 1st, 2018, September 30th, This timeframe chosen account latest relevant evidence synthesis, as well changes in necessitated COVID-19 pandemic. Quality Assessment Diverse Studies tool used appraise quality.

Results

Four met inclusion criteria. Many influenced top priority role technology improving patient caregiver symptoms health outcomes. Other most prevalent focused on symptom management, culturally sensitive palliative psychosocial care, early/integrated financial toxicity, modifiable risk factors related social determinants health, public involvement research, nurses' well-being scope practice.

Conclusion

findings indicate a need steer strategic programme towards digitalisation meet current needs people living with their caregivers. However, burnout, staff shortages disparities specialist education will hinder implementation certain models care.

Язык: Английский

Процитировано

31

Exploring patients’ perceptions and experiences of teleconsultations in cancer care DOI

Hanan Naveed Hamsar,

Mary‐Anne Williams

Cancer Nursing Practice, Год журнала: 2025, Номер unknown

Опубликована: Фев. 6, 2025

Язык: Английский

Процитировано

0

Intersecting factors of disadvantage and discrimination and their effect on daily life during the coronavirus pandemic: the CICADA-ME mixed-methods study DOI Creative Commons
Carol Rivas, Amanda Moore, Alison Thomson

и другие.

Health and Social Care Delivery Research, Год журнала: 2025, Номер unknown, С. 1 - 185

Опубликована: Фев. 1, 2025

Background The COVID-19 pandemic exacerbated pre-existing societal inequities. Our study addresses the dearth of studies on how intersecting factors disadvantage and discrimination affected daily life for disabled people from minoritised ethnic groups, aiming to improve their experiences social, health well-being outcomes. Objectives Through an intersectionality lens, to: explore compare, by location time, survey qualitative data changing needs outcomes relate coping strategies/solutions these formal informal network issues/affordances gain insights synthesising our contextualise transferability findings co-create outputs with stakeholders. Design Mixed-methods, asset-based, underpinned embodiment disability models intersectionality, integrating three strands: (secondary): analysis existing cohort/panel data, literature review (primary: quantitative): new ( n = 4326), times over 18 months qualitative): semistructured interviews 271), interviewee workshops 104) 5 10 later, mixed stakeholder co-design 30) rapid-impact solutions issues, key informant 4). Setting United Kingdom Republic Ireland. Participants Strand 2: community-dwelling migrants, White British comparators, with/without disability. 3: focus Arab, South Asian, African, Central/East European, or heritage Results We found strong adherence restrictions (where accommodation, economic situations allowed) due vulnerabilities. High vaccine hesitancy (despite eventual uptake) resulted side-effect concerns (mis)trust in government. Many relied food banks, local organisations, communities networks. Pandemic-related income loss was common, particularly affecting undocumented migrants. reported a crisis mental care, non-holistic social housing inaccessible, poor-quality discriminatory remote health/social care. They preferred private care (which they could not easily afford), community self-help online support. Lower socioeconomic status, mobility issues reduced well-being. Individual assets strategies mitigated some adapted different phases, focused empowerment, self-reflection, self-care connectivity. Technology cut across these. Limitations area-level distancing infection rates. Data collection largely online, possibly excluding older, digitally deprived more participants. engaged differently face-to-face workshops. over-represent England Asian use contestable categories. Conclusions Different led experiences, low status significant. Overall, identities worse experiences. work shows build strengths; simple changes professional communication understanding should experience. Minoritised groups can be involved policy practice decision-making, reducing marginalisation, better сare Future More research is needed on: (1) impact post-pandemic situation migration policies migrant health/well-being; (2) supporting empowerment disadvantaged identities; (3) technological deprivation cultural disability-relevant acceptability consultations. differences devolved nations, which need elucidation. Study registration This registered as ISRCTN40370, PROSPERO CRD42021262590 CRD42022355254. Funding award funded National Institute Health Care Research (NIHR) Social Delivery programme (NIHR ref: NIHR132914) published full Research; Vol. 13, No. 2. See NIHR Awards website further information.

Язык: Английский

Процитировано

0

The Impact of the COVID-19 Pandemic on Adherence to Endocrine Therapy for Breast Cancer in Catalonia (Spain) DOI Open Access
Àurea Navarro‐Sabaté,

Rebeca Font,

Fina Martínez‐Soler

и другие.

Cancers, Год журнала: 2024, Номер 16(2), С. 426 - 426

Опубликована: Янв. 19, 2024

Purpose. To assess the impact of COVID-19 pandemic on adherence to oral endocrine therapy in patients diagnosed with breast cancer public healthcare system Catalonia (Spain). Methods. Retrospective cohort study starting from 2017 2021. Adherence was measured during first year treatment, and calculated according calendar whether treatment included peak period our setting (March-September 2020). Analyses were performed using a chi-square test multivariable logistic regression, results stratified by year, age group, drug type. Results. Mean overall 89.6% In contrast, who started 2019 2020 whose presented an 87.0% 86.5%, respectively. Young tamoxifen or combination predictors low adherence. An increase neoadjuvant also observed 2020. Conclusions. The had only modest (≈3%), despite enormous disruptions for patients, general, care particular that occurring period.

Язык: Английский

Процитировано

2

Qualitative Research and Cancer Nursing: A Guide for Novice Researchers DOI
Bridget Johnston, Maura Dowling

Seminars in Oncology Nursing, Год журнала: 2023, Номер 39(2), С. 151397 - 151397

Опубликована: Фев. 20, 2023

Язык: Английский

Процитировано

5

Patient-Reported Experiences of Supportive Cancer Care during the COVID-19 Pandemic DOI Open Access
Claudia Canella, Matthias Naegele, Karin Ribi

и другие.

European Journal of Cancer Care, Год журнала: 2024, Номер 2024, С. 1 - 8

Опубликована: Май 18, 2024

Background. During the COVID-19 pandemic, people affected by cancer were in need of information about virus and (self-) management symptoms treatment. It is important to understand how patients with navigated through pandemic explore their experience relating supportive care needs. Aim. This study aimed describe Swiss oncological during additional care. Methods. A single-center was conducted 2021. Patients melanoma, breast, lung, or colon who received active systemic anticancer treatment at time additionally seeing either oncology clinical nurse specialists, integrative medicine physicians, both included. We semistructured interviews alongside patient-reported quantitative assessment distress resilience. Thematic analysis performed for qualitative data descriptive statistics data. Results. Eighteen interviewed. an physician highlighted that they positively felt being addressed as a whole person consultations. The specialists perceived first point contact had more compared what normally received. In general, did not delays disruptions As immunosuppressed fatigued cancer, supported restrictions hygienic measures. Access vaccination reassured against risk infection. These results reflected data, we found moderate levels (M = 4.1; SD 2.5) high resilience scores 7.5; 0.9) this patient population. Conclusion. particularly Secured resources nursing consultations services can help address needs cancer.

Язык: Английский

Процитировано

0

‘I Do It All Alone’: The Burdens and Benefits of Being Diagnosed With, and Treated for, Colorectal Cancer During the Covid‐19 Pandemic DOI Creative Commons
Christina Dobson, Jennifer Deane,

Beth Osborne

и другие.

Health Expectations, Год журнала: 2024, Номер 27(3)

Опубликована: Июнь 1, 2024

ABSTRACT Introduction The Covid‐19 pandemic dramatically altered the way cancer care services were accessed and delivered, including for colorectal (CRC). In United Kingdom, patients discouraged from presenting in primary care, many consultations took place remotely, investigative procedures screening programmes temporarily suspended, fewer operations treatments delivered. People had to face practical consequences of having during a navigate never before seen pathways, often alone. We examined experience being diagnosed treated CRC pandemic, implications this on people's journeys. Methods Semi‐structured interviews undertaken with people (January 2020–May 2021), North East England. An iterative topic guide was used interviews, which remotely (telephone or Zoom), audio recorded, pseudo‐anonymised transcribed. Initial transcripts independently coded by two researchers, code ‘bank’ developed application across transcripts. Development themes overarching analytical constructs collaboratively research team. Results Interviews conducted 19 participants, analysed four key identified: (1) relative threats Cancer not comparable, as posing far greater risk than Covid‐19; (2) Remote problematic, affecting patients' abilities build rapport trust clinicians, assess nonverbal communication, feel able disclose, comprehend retain information; (3) Stoma follow‐up be lacking, long wait times stoma reversal experienced some; Finally, (4) Being alone negatively impacted some peoples' absorb information, left them without support loved ones at an emotionally vulnerable time. However, participants preferred certain points their receiving diagnosis, most frequently when in‐patient treatment. Conclusion brought unexpected benefits, absolving undertaking emotions work others, instead focus recovery, however, remote experiences. This study highlights complex benefits burdens pandemic‐located journeys, how these shifted different pathways. Patient Public Contribution Lorraine Angell, survivor, has been central idea conception, contributing to: development design; securing funding; production patient‐facing materials; interview guides; analysis interpretation data; drafting findings manuscripts.

Язык: Английский

Процитировано

0

Assessing the impact of the COVID-19 pandemic on patients referred to a lung cancer rapid assessment clinic in Ontario, Canada DOI
Sasha Zarnke,

Shahad AlGhamdi,

Mario Orsini

и другие.

Canadian Journal of Respiratory Critical Care and Sleep Medicine, Год журнала: 2024, Номер 8(4), С. 159 - 167

Опубликована: Июль 3, 2024

RATIONALE The COVID-19 pandemic negatively impacted lung cancer (LC) outcomes. Lung Diagnostic Assessment Program (LDAP) in Southeastern Ontario is a rapid assessment clinic for patients with suspected LC.

Язык: Английский

Процитировано

0

A review of global research trends on the impact of the COVID-19 pandemic on food security DOI Creative Commons

Khaeriyah Darwis,

Muslim Salam, Musran Munizu

и другие.

Agriculture & Food Security, Год журнала: 2024, Номер 13(1)

Опубликована: Окт. 2, 2024

Язык: Английский

Процитировано

0

Negotiating cancer alone: A qualitative study exploring care experiences of racially and ethnically diverse women diagnosed with breast cancer during COVID-19 DOI Creative Commons
Isabel Martinez Leal, Chiara Acquati, Anastasia Rogova

и другие.

Journal of Health Psychology, Год журнала: 2023, Номер 29(5), С. 367 - 381

Опубликована: Ноя. 27, 2023

COVID-19 has critically impacted cancer care services including reduced screenings, diagnoses, and surgeries; particularly among Black Latina/x women who already suffer worse outcomes. This qualitative study explored the experiences of a diverse sample breast survivors ( N = 21; 7 Black, 4 Hispanic, 10 White) undergoing treatment during pandemic via online semi-structured interviews. Grounded theory analysis yielded core category “ negotiating alone,” that included: (1) psychological distress, trajectory in isolation; (2) provider/healthcare system diagnostic delays; (3) heightened anxiety about delays causing progression; (4) supportive limitations; (5) disparate disruptions. described greater care, financial challenges, complications, insurance limitations than White women. The identifies patients’ pandemic-related psychological, healthcare system, health equity challenges suggests recommendations to support their increased needs oncologic

Язык: Английский

Процитировано

1