Journal of Patient-Reported Outcomes,
Год журнала:
2023,
Номер
7(1)
Опубликована: Ноя. 10, 2023
Abstract
Background
Hospitals
and
healthcare
workers
have
been
greatly
impacted
by
the
COVID-19
pandemic.
The
potential
impacts
upon
patient
experience
less
documented,
particularly
in
pediatric
setting.
Our
aim
was
to
examine
how
parental
experiences
with
their
child’s
hospitalization
varied
during
pandemic
at
two
children’s
hospitals
Alberta,
Canada.
Methods
A
random
sample
of
parents
were
surveyed
within
six
weeks
discharge
from
Alberta’s
hospitals.
Surveys
administered
using
Alberta
Pediatric
Inpatient
Experiences
Survey
(APIES)
-
a
validated
instrument
used
assess
hospitalization.
linked
administrative
inpatient
records.
Three
cohorts
created
based
on
hospital
date:
Pre-COVID
(Pre:
April
2019
March
2020),
COVID
year
one
(C1:
2020
2021),
(C2:
2021
2022).
We
examined
48
survey
questions,
including
four
overall
rating
scales.
responses
Likert
These
transformed
normalized
scores
0
(worst)
100
(best).
Differences
between
assessed
ANOVA
post-hoc
Tukey
test.
Results
total
3,611
surveys
(1,314
Pre;
997
C1;
1,300
C2)
completed
over
three-year
period.
Five
questions
showed
differences
Pre
C1
periods,
C2,
13
C2.
Among
these
pre-COVID
lower
than
one,
while
results
one.
Thirty-one
no
statistical
three
time
periods.
For
ratings,
only
difference
any
periods
(91.4
vs.
90.2
C2).
Overall
ratings
doctors,
nurses,
recommendation
others
differences.
Conclusion
This
study
that
first
mildly
better
or
comparable
historical
results.
changed
following
year,
where
reported
questions.
European Journal of Oncology Nursing,
Год журнала:
2023,
Номер
63, С. 102272 - 102272
Опубликована: Янв. 30, 2023
Abstract
Purpose
Identifying
cancer
nursing
research
priorities
is
central
to
influencing
the
direction
of
care
research.
The
aim
this
rapid
review
was
explore
identified
by
oncology
nurses
for
delivery
between
2019
and
2022.
Methods
Preferred
Reporting
Items
Systematic
Reviews
Meta-Analysis
informed
design
review.
MEDLINE,
CINAHL,
PUBMED,
Web
Science,
Cochrane
databases
were
searched
studies
published
December
1st,
2018,
September
30th,
This
timeframe
chosen
account
latest
relevant
evidence
synthesis,
as
well
changes
in
necessitated
COVID-19
pandemic.
Quality
Assessment
Diverse
Studies
tool
used
appraise
quality.
Results
Four
met
inclusion
criteria.
Many
influenced
top
priority
role
technology
improving
patient
caregiver
symptoms
health
outcomes.
Other
most
prevalent
focused
on
symptom
management,
culturally
sensitive
palliative
psychosocial
care,
early/integrated
financial
toxicity,
modifiable
risk
factors
related
social
determinants
health,
public
involvement
research,
nurses'
well-being
scope
practice.
Conclusion
findings
indicate
a
need
steer
strategic
programme
towards
digitalisation
meet
current
needs
people
living
with
their
caregivers.
However,
burnout,
staff
shortages
disparities
specialist
education
will
hinder
implementation
certain
models
care.
Health and Social Care Delivery Research,
Год журнала:
2025,
Номер
unknown, С. 1 - 185
Опубликована: Фев. 1, 2025
Background
The
COVID-19
pandemic
exacerbated
pre-existing
societal
inequities.
Our
study
addresses
the
dearth
of
studies
on
how
intersecting
factors
disadvantage
and
discrimination
affected
daily
life
for
disabled
people
from
minoritised
ethnic
groups,
aiming
to
improve
their
experiences
social,
health
well-being
outcomes.
Objectives
Through
an
intersectionality
lens,
to:
explore
compare,
by
location
time,
survey
qualitative
data
changing
needs
outcomes
relate
coping
strategies/solutions
these
formal
informal
network
issues/affordances
gain
insights
synthesising
our
contextualise
transferability
findings
co-create
outputs
with
stakeholders.
Design
Mixed-methods,
asset-based,
underpinned
embodiment
disability
models
intersectionality,
integrating
three
strands:
(secondary):
analysis
existing
cohort/panel
data,
literature
review
(primary:
quantitative):
new
(
n
=
4326),
times
over
18
months
qualitative):
semistructured
interviews
271),
interviewee
workshops
104)
5
10
later,
mixed
stakeholder
co-design
30)
rapid-impact
solutions
issues,
key
informant
4).
Setting
United
Kingdom
Republic
Ireland.
Participants
Strand
2:
community-dwelling
migrants,
White
British
comparators,
with/without
disability.
3:
focus
Arab,
South
Asian,
African,
Central/East
European,
or
heritage
Results
We
found
strong
adherence
restrictions
(where
accommodation,
economic
situations
allowed)
due
vulnerabilities.
High
vaccine
hesitancy
(despite
eventual
uptake)
resulted
side-effect
concerns
(mis)trust
in
government.
Many
relied
food
banks,
local
organisations,
communities
networks.
Pandemic-related
income
loss
was
common,
particularly
affecting
undocumented
migrants.
reported
a
crisis
mental
care,
non-holistic
social
housing
inaccessible,
poor-quality
discriminatory
remote
health/social
care.
They
preferred
private
care
(which
they
could
not
easily
afford),
community
self-help
online
support.
Lower
socioeconomic
status,
mobility
issues
reduced
well-being.
Individual
assets
strategies
mitigated
some
adapted
different
phases,
focused
empowerment,
self-reflection,
self-care
connectivity.
Technology
cut
across
these.
Limitations
area-level
distancing
infection
rates.
Data
collection
largely
online,
possibly
excluding
older,
digitally
deprived
more
participants.
engaged
differently
face-to-face
workshops.
over-represent
England
Asian
use
contestable
categories.
Conclusions
Different
led
experiences,
low
status
significant.
Overall,
identities
worse
experiences.
work
shows
build
strengths;
simple
changes
professional
communication
understanding
should
experience.
Minoritised
groups
can
be
involved
policy
practice
decision-making,
reducing
marginalisation,
better
сare
Future
More
research
is
needed
on:
(1)
impact
post-pandemic
situation
migration
policies
migrant
health/well-being;
(2)
supporting
empowerment
disadvantaged
identities;
(3)
technological
deprivation
cultural
disability-relevant
acceptability
consultations.
differences
devolved
nations,
which
need
elucidation.
Study
registration
This
registered
as
ISRCTN40370,
PROSPERO
CRD42021262590
CRD42022355254.
Funding
award
funded
National
Institute
Health
Care
Research
(NIHR)
Social
Delivery
programme
(NIHR
ref:
NIHR132914)
published
full
Research;
Vol.
13,
No.
2.
See
NIHR
Awards
website
further
information.
Cancers,
Год журнала:
2024,
Номер
16(2), С. 426 - 426
Опубликована: Янв. 19, 2024
Purpose.
To
assess
the
impact
of
COVID-19
pandemic
on
adherence
to
oral
endocrine
therapy
in
patients
diagnosed
with
breast
cancer
public
healthcare
system
Catalonia
(Spain).
Methods.
Retrospective
cohort
study
starting
from
2017
2021.
Adherence
was
measured
during
first
year
treatment,
and
calculated
according
calendar
whether
treatment
included
peak
period
our
setting
(March-September
2020).
Analyses
were
performed
using
a
chi-square
test
multivariable
logistic
regression,
results
stratified
by
year,
age
group,
drug
type.
Results.
Mean
overall
89.6%
In
contrast,
who
started
2019
2020
whose
presented
an
87.0%
86.5%,
respectively.
Young
tamoxifen
or
combination
predictors
low
adherence.
An
increase
neoadjuvant
also
observed
2020.
Conclusions.
The
had
only
modest
(≈3%),
despite
enormous
disruptions
for
patients,
general,
care
particular
that
occurring
period.
European Journal of Cancer Care,
Год журнала:
2024,
Номер
2024, С. 1 - 8
Опубликована: Май 18, 2024
Background.
During
the
COVID-19
pandemic,
people
affected
by
cancer
were
in
need
of
information
about
virus
and
(self-)
management
symptoms
treatment.
It
is
important
to
understand
how
patients
with
navigated
through
pandemic
explore
their
experience
relating
supportive
care
needs.
Aim.
This
study
aimed
describe
Swiss
oncological
during
additional
care.
Methods.
A
single-center
was
conducted
2021.
Patients
melanoma,
breast,
lung,
or
colon
who
received
active
systemic
anticancer
treatment
at
time
additionally
seeing
either
oncology
clinical
nurse
specialists,
integrative
medicine
physicians,
both
included.
We
semistructured
interviews
alongside
patient-reported
quantitative
assessment
distress
resilience.
Thematic
analysis
performed
for
qualitative
data
descriptive
statistics
data.
Results.
Eighteen
interviewed.
an
physician
highlighted
that
they
positively
felt
being
addressed
as
a
whole
person
consultations.
The
specialists
perceived
first
point
contact
had
more
compared
what
normally
received.
In
general,
did
not
delays
disruptions
As
immunosuppressed
fatigued
cancer,
supported
restrictions
hygienic
measures.
Access
vaccination
reassured
against
risk
infection.
These
results
reflected
data,
we
found
moderate
levels
(M
=
4.1;
SD
2.5)
high
resilience
scores
7.5;
0.9)
this
patient
population.
Conclusion.
particularly
Secured
resources
nursing
consultations
services
can
help
address
needs
cancer.
Health Expectations,
Год журнала:
2024,
Номер
27(3)
Опубликована: Июнь 1, 2024
ABSTRACT
Introduction
The
Covid‐19
pandemic
dramatically
altered
the
way
cancer
care
services
were
accessed
and
delivered,
including
for
colorectal
(CRC).
In
United
Kingdom,
patients
discouraged
from
presenting
in
primary
care,
many
consultations
took
place
remotely,
investigative
procedures
screening
programmes
temporarily
suspended,
fewer
operations
treatments
delivered.
People
had
to
face
practical
consequences
of
having
during
a
navigate
never
before
seen
pathways,
often
alone.
We
examined
experience
being
diagnosed
treated
CRC
pandemic,
implications
this
on
people's
journeys.
Methods
Semi‐structured
interviews
undertaken
with
people
(January
2020–May
2021),
North
East
England.
An
iterative
topic
guide
was
used
interviews,
which
remotely
(telephone
or
Zoom),
audio
recorded,
pseudo‐anonymised
transcribed.
Initial
transcripts
independently
coded
by
two
researchers,
code
‘bank’
developed
application
across
transcripts.
Development
themes
overarching
analytical
constructs
collaboratively
research
team.
Results
Interviews
conducted
19
participants,
analysed
four
key
identified:
(1)
relative
threats
Cancer
not
comparable,
as
posing
far
greater
risk
than
Covid‐19;
(2)
Remote
problematic,
affecting
patients'
abilities
build
rapport
trust
clinicians,
assess
nonverbal
communication,
feel
able
disclose,
comprehend
retain
information;
(3)
Stoma
follow‐up
be
lacking,
long
wait
times
stoma
reversal
experienced
some;
Finally,
(4)
Being
alone
negatively
impacted
some
peoples'
absorb
information,
left
them
without
support
loved
ones
at
an
emotionally
vulnerable
time.
However,
participants
preferred
certain
points
their
receiving
diagnosis,
most
frequently
when
in‐patient
treatment.
Conclusion
brought
unexpected
benefits,
absolving
undertaking
emotions
work
others,
instead
focus
recovery,
however,
remote
experiences.
This
study
highlights
complex
benefits
burdens
pandemic‐located
journeys,
how
these
shifted
different
pathways.
Patient
Public
Contribution
Lorraine
Angell,
survivor,
has
been
central
idea
conception,
contributing
to:
development
design;
securing
funding;
production
patient‐facing
materials;
interview
guides;
analysis
interpretation
data;
drafting
findings
manuscripts.
Canadian Journal of Respiratory Critical Care and Sleep Medicine,
Год журнала:
2024,
Номер
8(4), С. 159 - 167
Опубликована: Июль 3, 2024
RATIONALE
The
COVID-19
pandemic
negatively
impacted
lung
cancer
(LC)
outcomes.
Lung
Diagnostic
Assessment
Program
(LDAP)
in
Southeastern
Ontario
is
a
rapid
assessment
clinic
for
patients
with
suspected
LC.
Journal of Health Psychology,
Год журнала:
2023,
Номер
29(5), С. 367 - 381
Опубликована: Ноя. 27, 2023
COVID-19
has
critically
impacted
cancer
care
services
including
reduced
screenings,
diagnoses,
and
surgeries;
particularly
among
Black
Latina/x
women
who
already
suffer
worse
outcomes.
This
qualitative
study
explored
the
experiences
of
a
diverse
sample
breast
survivors
(
N
=
21;
7
Black,
4
Hispanic,
10
White)
undergoing
treatment
during
pandemic
via
online
semi-structured
interviews.
Grounded
theory
analysis
yielded
core
category
“
negotiating
alone,”
that
included:
(1)
psychological
distress,
trajectory
in
isolation;
(2)
provider/healthcare
system
diagnostic
delays;
(3)
heightened
anxiety
about
delays
causing
progression;
(4)
supportive
limitations;
(5)
disparate
disruptions.
described
greater
care,
financial
challenges,
complications,
insurance
limitations
than
White
women.
The
identifies
patients’
pandemic-related
psychological,
healthcare
system,
health
equity
challenges
suggests
recommendations
to
support
their
increased
needs
oncologic