Patient perceptions of osteoporosis management: a qualitative pilot study by a patient advisory group
Archives of Osteoporosis,
Год журнала:
2025,
Номер
20(1)
Опубликована: Янв. 15, 2025
Abstract
Summary
The
management
of
osteoporosis
even
after
a
fracture
is
declining.
Our
pilot
study
in
patients
with
confirms
large
ignorance
the
disease
and
major
fears
uncertainties
about
treatments.
Complete
sustained
medical
information
seems
essential
to
counteract
contradictory
information,
which
are
exclusively
negative.
Purpose
(OP)
has
declined
over
recent
years
despite
actions
societies
concerned
this
disease.
objective
was
investigate
patients’
perceptions
OP,
their
treatment
pathways,
how
obtained.
Methods
Association
Française
de
Lutte
Anti-Rhumatismale
(AFLAR)
constituted
an
advisory
group
7
French
(mean
age
63.7
[54–74
years]),
various
stages
OP
duration
A
qualitative,
anonymized
conducted
open-ended
semi-structured
questionnaire,
contribution
International
Osteoporosis
Foundation
(IOF)
“Groupe
Recherche
et
Informations
sur
les
Ostéoporoses”
(GRIO).
Results
onset
often
sudden,
occurring
context
deep
misunderstanding
by
both
public
physicians.
have
confidence
physician,
mostly
rheumatologist,
who
informs
initiates
treatment.
main
cause
non-adherence
being
efficacy
safety
Medical
considered
as
insufficient,
or
poorly
understood.
Negative
highest
impact,
if
sources
seem
unreliable,
such
media.
There
no
trust
pharmaceutical
companies
ethics
physicians
question.
Conclusion
This
IOF/GRIO/AFLAR
Patient
Advisory
Group
illustrates
numerous
barriers
effective
management.
especially
at
time
diagnosis
initiation
treatment,
Язык: Английский
The cardiovascular scamdemic: The epidemic spread of cardiovascular treatment scams and misinformation
Turkish Journal of Thoracic and Cardiovascular Surgery,
Год журнала:
2024,
Номер
32(4), С. 469 - 476
Опубликована: Окт. 1, 2024
Recently,
some
cardiovascular
surgeons
have
been
increasingly
using
social
media
for
marketing,
often
employing
misleading
terminology.
This
trend,
which
we
termed
the
“cardiovascular
scamdemic,”
involves
widespread
dissemination
of
deceptive
advertisements
treatments,
resembling
an
epidemic.
Exposure
to
such
misinformation
not
only
endangers
patients,
who
naturally
rely
on
information
from
professional
sources,
but
also
erodes
public
trust
in
medical
ethics
and
scientific
integrity.
Additionally,
it
contributes
treatment
refusal
adverse
health
outcomes.
The
lack
comprehensive
global
regulations
addressing
these
issues
highlights
urgent
need
more
effective
enforcement
measures.
Язык: Английский