Measuring adjustment of siblings of children with disabilities: psychometric properties across translations, age groups and informants
International Journal of Developmental Disabilities,
Год журнала:
2024,
Номер
71(1), С. 4 - 17
Опубликована: Окт. 9, 2024
The
Negative
Adjustment
Scale
(NAS)
is
used
to
measure
adjustment
having
a
sibling
with
disability.
However,
several
adaptations
the
scale
have
been
made,
and
implementation
varies
across
studies
countries.
This
study
examined
psychometric
properties
different
versions
provides
directions
for
future
use
development
of
NAS.
sample
comprised
400
siblings
aged
6-16
years
old
from
Norway,
Netherlands
Belgium.
Measurement
invariance
was
assessed
age
groups
(8-11
vs.
12-16
years)
translations
(Norwegian
Dutch),
using
multi-group
confirmatory
factor
analysis.
parent
version
were
among
102
parents
Dutch
sample.
internal
consistency
NAS
acceptable
good
in
all
versions.
A
single
model
held
translations,
although
higher
order
not
supported.
child
report
did
significantly
correlate.
generally
has
sufficient
properties.
these
vary
groups,
informants,
causing
be
less
appropriate
comparisons
between
groups.
Further
adaptation
or
developing
new
children
disabilities,
advised.
Язык: Английский
Education on healthy living culture to increase children's awareness from an early age
Deleted Journal,
Год журнала:
2025,
Номер
2(1), С. 25 - 31
Опубликована: Янв. 20, 2025
A
healthy
lifestyle
from
an
early
age
is
important
foundation
to
support
children's
growth
and
development
prevent
various
diseases
in
the
future.
This
Community
Service
Program
aims
provide
education
about
living
culture
children,
increase
their
awareness
of
importance
maintaining
physical
mental
health.
activity
carried
out
through
interactive
fun
approaches,
such
as
educational
games,
picture
stories,
simulations
practices,
including
handwashing
habits,
a
balanced
diet,
activity,
clean
environment.
The
method
used
involves
active
participation
children
mentoring
parents
or
teachers
ensure
sustainability
practices
taught.
evaluation
was
by
measuring
improvement
understanding
pre-test
post-test
well
direct
observation
changes
behavior.
results
this
program
show
significant
knowledge
culture.
expected
be
model
that
can
replicated
communities
create
healthier
more
productive
generation.
Язык: Английский
Psychosocial Functioning for Preschool‐Aged Siblings of Children With Chronic Disorders: A Scoping Review
Child Care Health and Development,
Год журнала:
2025,
Номер
51(2)
Опубликована: Фев. 18, 2025
ABSTRACT
Background
School‐aged
siblings
of
children
with
chronic
disorders,
including
somatic,
neurodevelopmental
and
psychological
diagnoses,
are
at
a
small
but
significant
risk
experiencing
psychosocial
difficulties.
It
is
unclear
whether
this
the
case
for
such
when
they
preschool
age.
Objective
This
scoping
review
examined
research
describing
challenges
adaptation
among
preschool‐aged
who
have
sibling
disorder,
interventions
aimed
to
serve
population.
Design
We
searched
online
databases
peer‐reviewed
studies
published
between
1998
2024
identified
18
that
reported
functioning
as
states,
mental
health
variables
descriptions
experiences
3‐
6‐year‐olds
were
somatic
illness,
illness
or
rare
genetic
disorder.
Results
Of
included,
15
related
autistic
children,
12
these
study
development
autism
in
infants.
Only
two
intervention
identified,
had
very
samples
maximum
three
participants
6‐year‐old
age
range.
Conclusions
across
included
suggest
may
be
an
increased
difficulties,
it
was
difficult
draw
definitive
conclusions
due
large
proportion
heterogeneity
types
represented.
Future
should
focus
on
target
disorders
beyond
autism.
Язык: Английский
Next steps in the development of a sibling adjustment scale: reply to Supianto
International Journal of Developmental Disabilities,
Год журнала:
2025,
Номер
71(2), С. 205 - 207
Опубликована: Фев. 17, 2025
Язык: Английский
Disorder Type and Severity as Predictors of Mental Health in Siblings of Children with Chronic Disorders
Journal of Autism and Developmental Disorders,
Год журнала:
2025,
Номер
unknown
Опубликована: Фев. 25, 2025
Abstract
Siblings
of
children
with
chronic
disorders
are
at
risk
developing
mental
health
problems.
Studies
inconclusive
about
whether
sibling
is
best
predicted
by
the
specific
diagnoses
child
disorder
or
transdiagnostic
factors.
The
aims
present
study
were
(1)
to
examine
if
health,
and
(2)
severity
in
health.
Baseline
data
from
a
randomized
controlled
trial
used.
(aged
8
–
16
years)
their
parents
recruited
eight
municipality
hospital
clinics
(N
=
288).
placed
ICD-10
diagnostic
categories
based
on
combined
parent
report
clinical
records.
Regression
analyses
most
frequent
primary
(ADHD,
Asperger
syndrome,
autism,
down
rare
disorders)
measure
as
predictors
run.
Father-reported
sibling-reported
internalizing
problems
father-reported
externalizing
siblings.
Mother-reported
mother-reported
No
single
diagnosis
Disorder
does
an
extent
predict
whereas
do
not.
may
be
used
identify
siblings
and/or
need
interventions.
Fathers
should
included
assessment
care
for
reports
seem
better
than
mothers.
Язык: Английский
Re‐Determining My Position: Experiences of Adolescent Siblings of Pediatric Cancer Survivors
Nursing and Health Sciences,
Год журнала:
2025,
Номер
27(1)
Опубликована: Фев. 26, 2025
Pediatric
cancer
diagnoses
disrupt
not
only
patients
and
their
parents'
lives,
but
also
siblings'
lives
functioning.
The
purpose
of
this
study
was
to
investigate
the
lived
adolescent
experience
within
family
after
a
sibling
diagnosed
with
pediatric
cancer.
Eight
siblings
survivors
participated
in
descriptive
qualitative
study.
In-depth
interviews
analytic
method
were
used.
semi-structured
question
consisted
"experiences
when
sick
treatment,"
"the
difficulties
faced
as
child,"
causes
stress
how
relieve
relationship
sibling."
Three
themes
nine
subthemes
developed
from
data.
three
comprised
"worried
about
family,"
"feeling
excluded,"
"becoming
supporter
for
family."
findings
indicated
that
adolescents
tended
worry
feeling
exclusion,
became
family.
Healthcare
providers
need
suggest
parents
provide
emotional
support
children
remaining
at
home
express
gratitude
healthy
who
are
overcoming
difficult
situation.
Язык: Английский
Well-Being and Mental Health of Siblings of Children with Intellectual Disability: a Longitudinal Twin-Family Study
Journal of Developmental and Physical Disabilities,
Год журнала:
2025,
Номер
unknown
Опубликована: Март 21, 2025
Язык: Английский
Supporting siblings during the critical illness hospitalization of a child: learning from experience
Frontiers in Pediatrics,
Год журнала:
2024,
Номер
12
Опубликована: Авг. 26, 2024
Introduction
Childhood
critical
illness
impacts
the
entire
family
of
critically
ill
patient.
Disruptions
to
usual
rhythms
and
routines,
established
relationships,
physical
relocations
or
shifts
in
caregivers,
uncertainty
about
patient's
well-being
can
have
significant
on
siblings
other
connected
children
family.
Promoting
facilitating
interactions
engaging
younger
members
hospital
experience
been
shown
reduce
patient
anxiety,
enhance
adaptation,
improve
child
outcomes.
The
care
team
implement
evidence-informed
approaches
address
mitigate
challenges
for
families
provide
developmentally
aligned
support
impacted
siblings.
Aim
This
conceptual
paper
describes
potential
a
hospitalization
siblings,
supporting
practical
interventions
drawn
from
synthesis
current
literature
author's
practice
caring
their
families.
Data
sources
A
traditional
review
narrative
analysis
moderated
by
authors
supported
lived
experience.
Conclusions
There
is
range
young
Providing
consistent,
transparent,
supportive
child,
sibling,
whole
family-centered
outcomes
Язык: Английский
Translational research – The perspectives of children and adolescents about the challenges of coping and adaptation to chronic conditions
Journal of Pediatric Nursing,
Год журнала:
2024,
Номер
77, С. 249 - 251
Опубликована: Июнь 1, 2024
Язык: Английский
Real-world psychosocial impact among patients with juvenile idiopathic arthritis and families in Spain
Pediatric Rheumatology,
Год журнала:
2024,
Номер
22(1)
Опубликована: Ноя. 26, 2024
To
assess
the
psychosocial
impact
of
moderate-severe
juvenile
idiopathic
arthritis
(JIA)
on
patients
and
their
families,
among
those
who
had
been
treated
with
at
least
one
anti-tumor
necrosis
factor
(anti-TNF-α),
according
to
routine
clinical
practice
in
Spain.
A
24-month
observational,
multicentric,
cross-sectional
retrospective
study
was
performed.
Children
diagnosed
JIA
were
enrolled
three
tertiary-care
Spanish
hospitals.
The
included
children
biologic
disease-modifying
antirheumatic
drugs
(bDMARD)
participated
a
previous
study,
ITACA,
continued
follow-up
these
pediatric
rheumatology
units.
Patient
health-related
quality
life
(HRQoL)
assessed
using
Pediatric
Quality
Life
Inventory
(PedsQL™).
Caregivers
completed
an
interview
gather
information
about
school
attendance,
children's
participation
social
activities,
its
jobs
perceived
support.
descriptive
statistical
analysis
all
variables
Mann–Whitney-U
test
or
Kruskall-Wallis
H
used
compare
quantitative
Fisher's
exact
tests
for
qualitative
variables.
Tests
two-tailed
significance
level
5%.
data
analyzed
SPSS
V18.0
software.
One
hundred
seven
included.
Overall,
inactive
disease
low
activity
JADAS-71
score
very
functional
disability
CHAQ
score.
Up
94.4%
receiving
drug
treatment,
mainly
bDMARD
monotherapy
(84.5%).
Based
PedsQL,
parents
referred
high
HRQoL.
School
Functioning
PedsQL
domain
achieved
lowest
Work
due
child´s
greater
mothers
than
fathers.
understanding
lower
family
friends'
environments.
Most
HRQoL
controlled
activity,
despite
having
negative
some
them
functioning.
Children's
seems
involve
work
impacts
fathers
affected
by
JIA.
Язык: Английский