“It’s a moving target”: Experiences of pacing to reduce symptom exacerbation among adults living with Long COVID – Results from an international community-engaged qualitative research study DOI Creative Commons
Kiera McDuff, Darren A. Brown, Natalie St. Clair‐Sullivan

и другие.

medRxiv (Cold Spring Harbor Laboratory), Год журнала: 2024, Номер unknown

Опубликована: Дек. 12, 2024

ABSTRACT Introduction Long COVID is a multisystem condition that negatively impacts daily function. Pacing self-management strategy to mitigate symptoms. Our aim was describe experiences of pacing from the perspectives adults living with COVID. Methods We conducted community-engaged qualitative descriptive study involving one-on-one online interviews Canada, Ireland, United Kingdom, and States explore disability. asked participants about strategies they used deal health challenges Interviews were audio recorded transcribed verbatim. analyzed data using group-based content analytical techniques. Results Among 40 COVID, majority women (n=25; 63%), white (n=29;73%) heterosexual (n=30;75%). The median age 39 years (25th, 75th percentile: 32, 49). Most (n=37;93%) or prevent Participant described across five main areas: 1) as (pacing multidimensional challenges; applying many types activities; process experienced moving target; helpful strategy, but not cure for COVID); 2) learning how pace (acquiring knowledge pacing; developing skills support pacing); 3) encountering (learning pace; experiencing inequitable access stigma judgement; undergoing psychological emotional adjustment beliefs ‘fighting’ ‘pushing through’ balancing rest activity; making sacrifices; unexpected obstacles); 4) consequences 5) conceptualising describing analogies metaphors. Discussion challenging complex symptoms Healthcare providers should work collaboratively patients further refine implement this when appropriate.

Язык: Английский

Episodic disability framework in the context of Long COVID: Findings from a community-engaged international qualitative study DOI Creative Commons
Kelly K. O’Brien, Darren A. Brown, Kiera McDuff

и другие.

PLoS ONE, Год журнала: 2025, Номер 20(2), С. e0305187 - e0305187

Опубликована: Фев. 27, 2025

Background Increasing numbers of adults are living with the health-related consequences Long COVID. The Episodic Disability Framework (EDF), derived from perspectives HIV, characterizes multi-dimensional and episodic nature challenges (disability) experienced by an individual. Our aim was to determine applicability conceptualize among Methods We conducted a community-engaged qualitative descriptive study involving online semi-structured interviews. recruited who self-identified as COVID via collaborator community organizations in Canada, Ireland, United Kingdom, States. purposively for diversity age, gender identity, ethnicity, sexual orientation, time since initial COVID-19 infection. used interview guide informed EDF explore experiences disability COVID, specifically how were over time. group-based content analysis. Results Of 40 participants, median age 39 years; majority white (73%), women (63%), ≥ 1 year (83%). Consistent Framework, described episodic, characterized unpredictable periods health illness. Experiences consistent three main components Framework: A) dimensions (physical, cognitive, mental-emotional challenges, difficulties day-to-day activities, social inclusion, uncertainty); B) contextual factors, extrinsic (social support; accessibility environment services; stigma epistemic injustice) intrinsic (living strategies; personal attributes) that exacerbate or alleviate disability; C) triggers initiate episodes disability. Conclusions provides way guidance future measurement disability, rehabilitation approaches enhance practice, research, policy

Язык: Английский

Процитировано

0
Optimizing Long COVID Outcomes: An Interdisciplinary Survey of U.S. Rehabilitation Providers DOI
Malachy Clancy, Robert L. Dekerlegand

Cardiopulmonary Physical Therapy Journal, Год журнала: 2024, Номер unknown

Опубликована: Дек. 3, 2024

Purpose: Clinical practice guidelines (CPGs) can optimize Long COVID rehabilitation outcomes; however, an understanding of the target condition and available resources influence adoption CPGs. This study explored provider's awareness their use associated CPGs within United States. Methods: A cross-sectional sample 300 providers (100 physical therapists, 100 occupational speech-language pathologists) were randomly selected from state with highest prevalence each 9 U.S. geographic divisions. total 2700 participants invited to complete a survey exploring Results: Surveys received 299 (11.6% response rate) across all identified states disciplines. Most (70.2%) reported symptomatology. Few aware relevant (12.7%) or used them (7.4%) in practice. Although 39.8% symptom exacerbation triggers, only 8.3% knew screening tools. Similar trends noted when responses limited those who treat COVID. Nearly respondents (88.2%) believed that will persist community. Conclusion: Rehabilitation perceive they are symptomatology, although there is lack application Discrepancies between providers' perceived actual likely exist impede outcomes if evidence-based underused. Interdisciplinary initiatives enhance evidence translation needed

Язык: Английский

Процитировано

2
Priorities for Research, Education, Clinical Practice, and Policy From the Long COVID Physio International Forum DOI Creative Commons
Kiera McDuff, Darren A. Brown, Douglas P. Gross

и другие.

Cardiopulmonary Physical Therapy Journal, Год журнала: 2024, Номер unknown

Опубликована: Дек. 27, 2024

Purpose: Long COVID Physio (LCP) is an international peer support, education and advocacy, patient-led association of physiotherapists living with long allies. In 2022, LCP hosted forum. One the aims forum was to identify priorities in rehabilitation. Methods: We conducted consultation on for rehabilitation people COVID, clinicians, researchers, other key interest-holders (referred collectively as “consultants”) who registered attended International Forum. collected feedback from consultants using web-based questionnaires, Zoom chat forum, posts online platform during analyzed data group-based content analytical techniques. Priorities were organized into 4 categories: research, practice, education, policy. Results: There 794 respondents representing 34 countries, including 47% (n = 376) COVID. Seventeen overlapped spanned research (epidemiology, socioeconomics, pathophysiology, characterizing disability, health equity, establishing diagnostic criteria, intervention studies), (for employers, policy makers, care professional students), clinical practice (safety, person-centered approaches), (accessibility care, supports caregivers, public messaging). focused rehabilitation, but some extended beyond scope (eg, pharmacological interventions). Conclusions: These can help guide policy, advance outcomes

Язык: Английский

Процитировано

1
“It’s a moving target”: Experiences of pacing to reduce symptom exacerbation among adults living with Long COVID – Results from an international community-engaged qualitative research study DOI Creative Commons
Kiera McDuff, Darren A. Brown, Natalie St. Clair‐Sullivan

и другие.

medRxiv (Cold Spring Harbor Laboratory), Год журнала: 2024, Номер unknown

Опубликована: Дек. 12, 2024

ABSTRACT Introduction Long COVID is a multisystem condition that negatively impacts daily function. Pacing self-management strategy to mitigate symptoms. Our aim was describe experiences of pacing from the perspectives adults living with COVID. Methods We conducted community-engaged qualitative descriptive study involving one-on-one online interviews Canada, Ireland, United Kingdom, and States explore disability. asked participants about strategies they used deal health challenges Interviews were audio recorded transcribed verbatim. analyzed data using group-based content analytical techniques. Results Among 40 COVID, majority women (n=25; 63%), white (n=29;73%) heterosexual (n=30;75%). The median age 39 years (25th, 75th percentile: 32, 49). Most (n=37;93%) or prevent Participant described across five main areas: 1) as (pacing multidimensional challenges; applying many types activities; process experienced moving target; helpful strategy, but not cure for COVID); 2) learning how pace (acquiring knowledge pacing; developing skills support pacing); 3) encountering (learning pace; experiencing inequitable access stigma judgement; undergoing psychological emotional adjustment beliefs ‘fighting’ ‘pushing through’ balancing rest activity; making sacrifices; unexpected obstacles); 4) consequences 5) conceptualising describing analogies metaphors. Discussion challenging complex symptoms Healthcare providers should work collaboratively patients further refine implement this when appropriate.

Язык: Английский

Процитировано

0