Impact of COVID-19 restrictions on carers of persons with dementia in the UK: a qualitative study DOI Creative Commons
Vimal Sriram,

Crispin Jenkinson,

Michele Peters

и другие.

Age and Ageing, Год журнала: 2021, Номер 50(6), С. 1876 - 1885

Опубликована: Июнь 29, 2021

Abstract Background informal carers provide the majority of support for persons with dementia living at home. Restrictions imposed due to COVID-19 have had a profound impact on daily life entire population. This study provides insight into these restrictions people Design qualitative semi-structured interviews. Participants purposive sample who least 10 hours care week person Setting UK. Results twenty-three were interviewed, and thematic analysis identified three main themes—Changes life, carer health wellbeing reduced from social networks. The results highlight routines pandemic, carers, support, lack access professionals respite carers. negative consequences carers’ wellbeing, they experienced difficulties in accessing formal services care. Conclusion attempt continue physical, emotional practical community throughout restrictions. To prevent future crisis, need better systems including services, telecare solutions that work them additional respite, as this pandemic continue.

Язык: Английский

A UK survey of COVID‐19 related social support closures and their effects on older people, people with dementia, and carers DOI Creative Commons
Clarissa Giebel, Kathryn Lord, Claudia Cooper

и другие.

International Journal of Geriatric Psychiatry, Год журнала: 2020, Номер 36(3), С. 393 - 402

Опубликована: Сен. 18, 2020

Abstract Objectives The aim of this national survey was to explore the impact COVID‐19 public health measures on access social support services and effects closures mental well‐being older people those affected by dementia. Methods A UK‐wide online telephone conducted with adults, dementia, carers between April May 2020. captured demographic postcode data, service usage before after measures, current quality life, depression, anxiety. Multiple linear regression analysis used relationship variations anxiety well‐being. Results Five hundred sixty‐nine participants completed (61 285 unpaid carers, 223 adults). Paired samples t ‐tests X 2 showed that mean hour weekly number having accessed various significantly reduced post COVID‐19. analyses higher in hours predicted increased levels dementia lower adults. Conclusions Being unable due COVID contributed worse life adults across UK. Social need be enabled continue providing adapted formats, especially light continued restrictions for foreseeable future.

Язык: Английский

Процитировано

168

Impact of COVID-19 pandemic on mental health among general Bangladeshi population: a cross-sectional study DOI Creative Commons
Rajesh Das, Md. Rakib Hasan, Sohel Daria

и другие.

BMJ Open, Год журнала: 2021, Номер 11(4), С. e045727 - e045727

Опубликована: Апрель 1, 2021

Objectives Mental health problems significantly increased worldwide during the coronavirus (COVID-19) pandemic. At early stage of outbreak, government Bangladesh imposed lockdown and quarantine approaches to prevent spread virus, which impacted people’s daily life health. The COVID-19 pandemic has also affected economic status, healthcare facilities other lifestyle factors in Bangladesh. We aimed assess impact on mental among Bangladeshi population. Methods conducted an online cross-sectional survey 672 people aged between 15 65 years all over country from April 10 May 2020. After obtaining electronic consent, we a assessing sociodemographic profiles psychometric measures. used University California, Los Angeles (UCLA) Loneliness Scale-8, Patient Health Questionnaire-9, Generalized Anxiety Disorder 7-Item Scale Pittsburgh Sleep Quality Index loneliness, depression, anxiety sleep disturbance, respectively. Results prevalence disturbance was estimated at 71% (mild: 32%, moderate: 29%, severe: 10%), 38% 24%, 11%, 3%), 64% 30%, 17%, 17%) 73% 50%, 18%, 5%), In Bangladesh, key associated with poor were female sex, unemployment, being student, obesity living without family. present study identified statistically significant interrelationships measured issues. Conclusions A large portion respondents reported suggests longitudinal assessments determine gravity this issue after Appropriate supportive programmes interventional would address

Язык: Английский

Процитировано

158

Informal caregivers during the COVID-19 pandemic perceive additional burden: findings from an ad-hoc survey in Germany DOI Creative Commons
Andrea Budnick, Christian Hering, Simon Eggert

и другие.

BMC Health Services Research, Год журнала: 2021, Номер 21(1)

Опубликована: Апрель 16, 2021

Abstract Background While the relation between care involvement of informal caregivers and caregiver burden is well-known, additional psychosocial related to during COVID-19 pandemic has not yet been investigated. Methods A total 1000 caregivers, recruited offline, participated in a cross-sectional online survey from April 21 May 2, 2020. Questionnaires were used assess COVID-19-specific changes situation, negative feelings problems with implementation measures, concerns/excessive demands, loss support, change caregivers’ own provision, comprehension & practicability information, relate these issues five indicators (i.e., being main caregiver, high expenditure time, level care, dementia, no professional help). Binomial multiple regression analyses applied. Results Across involvement, 25.5–39.7% reported that situation rather or greatly worsened pandemic, especially for those caring someone dementia usually relying on help. In model, mean number met was associated age (β = .18; CI .10–.25), excessive demands .10, .00–.19), measures .11, .04–.19), an increase caregiving by themselves .14, .03–.24) as well amount .18, .07–.29) support −.08, −.16–.00). No significant associations found gender, educational level, feelings, information. Conclusion Those who perceived extensive suffered most calling structural healthcare system now future. Trial registration This article does report results health intervention human participants.

Язык: Английский

Процитировано

144

The effect of COVID-19 isolation measures on the cognition and mental health of people living with dementia: A rapid systematic review of one year of quantitative evidence DOI Creative Commons
Aida Suárez‐González, Jayeeta Rajagopalan, Gill Livingston

и другие.

EClinicalMedicine, Год журнала: 2021, Номер 39, С. 101047 - 101047

Опубликована: Июль 31, 2021

Язык: Английский

Процитировано

110

Life under lockdown and social restrictions - the experiences of people living with dementia and their carers during the COVID-19 pandemic in England DOI Creative Commons
Remco Tuijt, Rachael Frost, Jane Wilcock

и другие.

BMC Geriatrics, Год журнала: 2021, Номер 21(1)

Опубликована: Май 10, 2021

The impact of COVID-19 restrictions on people living with dementia and their carers is an emerging focus recent research determining how we can best support this population. People have faced service curtailment, increased risk for COVID-19, as well potential heightened deterioration. This study reports the experiences family during early months pandemic in England them.We recruited remotely interviewed 30 own homes 31 carers, via video or telephone call mid-2020. Data were transcribed analysed using thematic analysis.People often had a basic understanding but could difficulty translating into personalised risk-appraisal actions. Managing risks facing at home was largely done by exemplified changes to arrangements, which strain sustain caring relationships. Well-established familial relationships contributed wellbeing person carer, keeping simple routines that included leaving exercise stimulation. reported some negative psychological cognitive effects due imposed restrictions, such apathy, irritability, anxiety, fuelled lack social engagement.Structuring routine (remote) interactions where possible increase engagement improve dementia, especially those limited post-COVID-19 context. As care been restructured manage risks, additional carer may emerge result independence come attention professionals health services. highlighted importance maintaining adapting be useful learning professionals, although necessary who are impacted more severe worsening symptoms dementia.

Язык: Английский

Процитировано

96

The Impact of COVID-19 on Informal Caregiving and Care Receiving Across Europe During the First Phase of the Pandemic DOI Creative Commons
Michael Bergmann, Mélanie Wagner

Frontiers in Public Health, Год журнала: 2021, Номер 9

Опубликована: Июнь 16, 2021

Purpose: We analyzed the effects of COVID-19 as well its accompanying epidemiological control measures on health-related outcomes (physical and mental health) unmet care needs both caregivers recipients across Europe Israel by taking into account country differences. Methods: applied comparisons adjusted predictions, controlling for a large set relevant respondent characteristics, to investigate changes in physical health due COVID-19. Furthermore, multilevel regression models were used analyze effect individual contextual indicators probability reporting difficulties receiving care. For analyses, we data from 26 countries with 51,983 respondents over 50 years based eighth wave Survey Health, Aging Retirement (SHARE), which had be suspended March 2020, SHARE Corona fielded June August 2020. Results: During first phase pandemic spring/summer frequency providing personal parents increased almost all European countries, while children, turn, decreased. Parental who reported significantly more strains, that is, feeling sad/depressed anxious/nervous often since outbreak pandemic. With respect care, about one out five difficulty obtaining adequate outside household during The perception was associated differences regarding duration stay-at-home orders. In contrast, number confirmed deaths did not have significant perceiving related Conclusions: Our findings show extent burden exposed unintended consequences COVID-19-related measures. There is great need within this population interventions, effectively reduce symptoms anxiety or depression recipients. This should recognized (health) policymakers social organizations.

Язык: Английский

Процитировано

92

Emotional and Mental Wellbeing Following COVID-19 Public Health Measures on People Living With Dementia and Carers DOI Creative Commons
Kerry Hanna, Clarissa Giebel,

Hilary Tetlow

и другие.

Journal of Geriatric Psychiatry and Neurology, Год журнала: 2021, Номер 35(3), С. 344 - 352

Опубликована: Фев. 25, 2021

Background: To date, there appears to be no evidence on the longer-term impacts caused by COVID-19 and its related public health restrictions some of most vulnerable in our societies. The aim this research was explore change impact measures mental wellbeing people living with dementia (PLWD) unpaid carers. Method: Semi-structured, follow-up telephone interviews were conducted PLWD carers between June July 2020. Participants asked about their experiences accessing social support services during pandemic, daily lives. Results: 20 thematically analyzed, which produced 3 primary themes concerning emotional responses course pandemic: 1) Impact lockdown, 2) Changes following easing health, 3) long-term effect measures. Conclusions: findings from shed light psychological UK Government’s loss key impacting cohort mentally emotionally, displaying a need for better support, both PLWD.

Язык: Английский

Процитировано

90

COVID-19-related social support service closures and mental well-being in older adults and those affected by dementia: a UK longitudinal survey DOI Creative Commons
Clarissa Giebel,

Daniel Pulford,

Claudia Cooper

и другие.

BMJ Open, Год журнала: 2021, Номер 11(1), С. e045889 - e045889

Опубликована: Янв. 1, 2021

The COVID-19 pandemic has had a major impact on delivery of social support services. This might be expected to particularly affect older adults and people living with dementia (PLWD), reduce their well-being.To explore how service use by adults, carers PLWD, mental well-being changed over the first 3 months since outbreak.Unpaid carers, PLWD took part in longitudinal online or telephone survey collected between April May 2020, at two subsequent timepoints 6 12 weeks after baseline. Participants were asked about usage typical week prior (at baseline), past each three timepoints. They also completed measures levels depression, anxiety well-being.377 participants complete data all Social dropped shortly lockdown imposed timepoint 1 (T1), then increase again T3. access paid care was least affected COVID-19. Cases significantly across study period, while cases depression rose. Well-being increased for from T1 T3.Access services been pandemic, which is starting recover slowly. With differently groups, needs put place maintain better those vulnerable groups during ongoing pandemic.

Язык: Английский

Процитировано

89

The impact of Covid-19-related distancing on the well-being of nursing home residents and their family members: a qualitative study DOI Creative Commons
Jenny Paananen, Johanna Rannikko,

Maija Harju

и другие.

International Journal of Nursing Studies Advances, Год журнала: 2021, Номер 3, С. 100031 - 100031

Опубликована: Май 31, 2021

The aim of this study is to examine the consequences Covid-19-related isolation and social restrictions on well-being nursing home residents their family members, analyze how distancing has affected relationships members with staff.The data consist 41 thematic one-on-one interviews conducted during May-December 2020 residents. Convenience sampling was utilized by asking several homes in different parts Finland relay a contact request from researchers residents' members. main themes were lockdown visiting restrictions. Subthemes included frequency visits, other means interaction, changes loved ones staff, feelings aroused situation. audio recorded transcribed verbatim, resulting 794 pages data.The qualitative uses inductive content analysis. NVivo12 software facilitated systematic coding data.According aggravated pre-existing conditions: they reported sudden progression memory disorders significant deterioration physical abilities, for example. Both experienced anxiety, grief, severe stress, expressed concern that might die due lack activity. Family also frustrated about not being able touch relatives or participate care, therefore sometimes thought visits useless. New forms interaction introduced homes, appreciated. However, some perceived interactional protocols as unfair complained insufficient information.The findings underline need implement good protocol. Overall, results show measures taken protect health Covid-19 outbreak short-sighted terms dimension well-being. It important continue developing safe humane solutions when are place. Tweetable abstract: caused stress

Язык: Английский

Процитировано

77

Dementia wellbeing and COVID‐19: Review and expert consensus on current research and knowledge gaps DOI Creative Commons
Kathy Liu, Robert Howard, Sube Banerjee

и другие.

International Journal of Geriatric Psychiatry, Год журнала: 2021, Номер 36(11), С. 1597 - 1639

Опубликована: Май 16, 2021

In response to a commissioned research update on dementia during the COVID-19 pandemic, UK-based working group, comprising researchers from range of fields and disciplines, aimed describe impact pandemic wellbeing identify priorities for future research.

Язык: Английский

Процитировано

73