Experiences of healthcare professionals providing palliative care in home settings - a scoping review

BMC Palliative Care, Год журнала: 2025, Номер 24(1)

Опубликована: Март 28, 2025

Abstract Background The growing preference for home-based end-of-life care accords a dignified death terminally ill patients. However, healthcare professionals (HCPs) involved, this caregiving approach is embedded with unique psychosocial, practical and emotional stressors. Without sufficient support, HCPs face higher risks of moral distress, compassion fatigue, vicarious trauma, secondary traumatic stress burnout—collectively known as the costs caring—that precipitate depersonalisation compromised patient care. Despite its far-reaching implications, current understanding caring amongst in settings remains remiss. Thus, we conduct scoping review to investigate experiences HPCs providing palliative adult oncology Methods Outlined by Systematic Evidence-Based Approach PRISMA guidelines, searches relevant articles published between 1st January 2000 October 2024 were performed on PubMed, Embase, Scopus, PsycINFO CINAHL databases. Selected underwent concurrent independent thematic content analyses. Central themes categories extracted merged, forming key domains that framed discussion. Results Of 5676 titles abstracts screened, 543 full-text reviewed. 20 analysed inclusion. Four emerged: (1) motivations practice care; (2) impact personhood (3) challenges faced HCPs; (4) support systems HCPs. Conclusion Providing patients fulfilling HCPs—fostering meaningful professional relationships patients, more holistic perspective life heightened sense personal accomplishment. may encounter dissonance amidst conflicts their dominant beliefs new experiences, leading burnout, poor delivery are further exacerbated caring, if inadequately addressed. Longitudinal accessible personalised organisational sustaining HCPs’ capacity deliver compassionate high-quality use Ring Theory Personhood framework provides an avenue structuring such systems.

Язык: Английский

Understanding Disenfranchised Grief in a Post–COVID-19 World—A Pilot Study of Advanced Practice Registered Nurses in Palliative Care

Journal of Hospice and Palliative Nursing, Год журнала: 2024, Номер 27(1), С. E17 - E26

Опубликована: Ноя. 18, 2024

Disenfranchised grief is a form of that remains unacknowledged and unsupported. Building on Doka’s foundational concept disenfranchised grief, the guiding framework for this pilot project was Knowledge to Action framework. This study quantitative cross-sectional web-based survey, which included validated questionnaire: Witnessing Grief Scale. The Scale measures how participants feel their recognized by friends family versus administrators or supervisors. A χ 2 analysis ( P < .05) completed with findings suggesting palliative care advanced practice registered nurses broadly experienced higher levels support from witness C types (colleagues, coworkers, family, friends) when compared (supervisors, bosses, persons administrative responsibility). 2-sample t test also demonstrated significance comparing both groups. Overall mean scores were significantly .001) in group (mean, 68.7) 51.2). Higher indicate level reported participant. affirm working continue grieve death non–death-related losses report degree witnessed friends, members, colleagues. Participants’ supervisors, provide less acknowledgment.

Язык: Английский

Nursing Home Staff with Children: Unique Needs Among Single and Partnered Parents

The Gerontologist, Год журнала: 2024, Номер 65(2)

Опубликована: Окт. 30, 2024

Abstract Background and Objectives Nursing home (NH) staff job dissatisfaction turnover are associated with lower care quality. However, little is known about the impact of being single on workplace experiences. Guided by Job Demands-Control-Support Model, we compared satisfaction, intention, psychological distress for partnered parents working in NHs. Research Design Methods Employee manager data from 2011 to 2012 wave Work Family Health Network study were combined (N = 1,144) define complete 586). Bivariate tests multivariate regressions clustering observations within NHs used. Results Most (n 190, 32%) nursing assistants (NAs; n 142, 74.74%) or licensed practical nurses (LPNs; 29, 15.26%). Compared parents, similar intention but they more likely report (OR 1.79, 95% CI 1.09, 2.94) observed only among NAs 2.08, 1.12, 3.85). Psychological was greater intent (β 0.02, p &lt; .05) LPNs, yet 0.04, .01). Distress higher family-to-work conflict 1.67, 1.18, 2.36) work-to-family 1.60, 1.20, 2.14) nurses, distress–work–family associations significant parent nurses. Discussion Implications Supporting NH depends upon knowing their parental, relationship, occupational status. Additional research needed understand develop strategies mitigate increase resources particularly NA employed

Язык: Английский