A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members DOI
Amanda Wurz, Delaney Duchek, Kelsey Ellis

и другие.

Disability and Rehabilitation, Год журнала: 2023, Номер 46(3), С. 533 - 545

Опубликована: Янв. 28, 2023

Purpose Explore trial participants’ and research team members’ perceptions of the impact videoconference-based, supportive care program (SPIN-CHAT Program) during early COVID-19 for individuals with systemic sclerosis (SSc).Methods Data were collected cross-sectionally. A social constructivist paradigm was adopted, one-on-one semi-structured interviews conducted SPIN-CHAT Trial participants members. hybrid inductive-deductive approach reflexive thematic analysis used.Results Of 40 28 members approached, 30 (Mean age = 54.9; SD 13.0 years) 22 agreed to participate. Those who took part in had similar characteristics those declined. Five themes identified: (1) The Program conferred a range positive psychological health outcomes, (2) People don’t have SSc get it: importance SSc-specific programming, (3) group-based format created safe space connect meet others, (4) structure schedule reduced feelings boredom contributed enhanced health, (5) necessity knowledge, skills, tools self-manage navigate COVID-19.Conclusion Participants’ perspectives elucidated benefits how these may been realized. Results underscore support from structure, self-management enhance COVID-19.Trial Registration clinicaltrials.gov (NCT04335279)IMPLICATIONS FOR REHABILITATIONThe amongst affected by sclerosis.SPIN-CHAT shared that being around important health.Further efforts are required explore experiences within programs better understand if is impacted.

Язык: Английский

A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members DOI
Amanda Wurz, Delaney Duchek, Kelsey Ellis

и другие.

Disability and Rehabilitation, Год журнала: 2023, Номер 46(3), С. 533 - 545

Опубликована: Янв. 28, 2023

Purpose Explore trial participants’ and research team members’ perceptions of the impact videoconference-based, supportive care program (SPIN-CHAT Program) during early COVID-19 for individuals with systemic sclerosis (SSc).Methods Data were collected cross-sectionally. A social constructivist paradigm was adopted, one-on-one semi-structured interviews conducted SPIN-CHAT Trial participants members. hybrid inductive-deductive approach reflexive thematic analysis used.Results Of 40 28 members approached, 30 (Mean age = 54.9; SD 13.0 years) 22 agreed to participate. Those who took part in had similar characteristics those declined. Five themes identified: (1) The Program conferred a range positive psychological health outcomes, (2) People don’t have SSc get it: importance SSc-specific programming, (3) group-based format created safe space connect meet others, (4) structure schedule reduced feelings boredom contributed enhanced health, (5) necessity knowledge, skills, tools self-manage navigate COVID-19.Conclusion Participants’ perspectives elucidated benefits how these may been realized. Results underscore support from structure, self-management enhance COVID-19.Trial Registration clinicaltrials.gov (NCT04335279)IMPLICATIONS FOR REHABILITATIONThe amongst affected by sclerosis.SPIN-CHAT shared that being around important health.Further efforts are required explore experiences within programs better understand if is impacted.

Язык: Английский

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