Epidemiological profile of people with spinal cord injury in Ecuador: A population-based design and cohort profile

Journal of Spinal Cord Medicine, Год журнала: 2025, Номер unknown, С. 1 - 11

Опубликована: Фев. 18, 2025

This study serves a methodological reference and provides epidemiological profile for Ecuador's first population-based survey on spinal cord injury. We determined sample size eligibility using data from the National Council Disability Equality. The was developed with translation, cultural adaptation, pilot testing. In collaboration Federation of People Physical Disabilities Ecuador, were collected. Participants classified by SCI etiology severity to describe cohort profile. Additionally, incidence mortality rates 2017 2022 estimated hospital discharge data. involved 633 individuals, final 521 eligible participants, 75.2% whom male. mean age 45 years. Traumatic SCIs constituted 83.4% cases, 80.8% being paraplegic. median at onset 27 years, participants had lived injury 14 Traffic accidents leading cause traumatic injuries (36.1%), followed violence (16.6%) work (15.9%). Nontraumatic primarily resulted degeneration (31.4%) infections (29.1%). more common in younger males, while nontraumatic frequent among older females. Annually, Ecuador sees 516 new equating three cases per 100,000 people, rate during acute period 3%. presents national showing that predominantly affect young due traffic accidents. findings highlight areas intervention provide valuable insights into collection rehabilitation strategies future research.

Язык: Английский

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Setting me up or holding me back? Perspectives of people with spinal cord injury on rehabilitation supports at inpatient discharge and 3-months post-discharge

Disability and Rehabilitation, Год журнала: 2025, Номер unknown, С. 1 - 13

Опубликована: Март 9, 2025

Purpose The transition from hospital to the community following spinal cord injury (SCI) is a significant and challenging time. Rehabilitation aims equip individuals with skills resources required navigate this transition. This study explored rehabilitation priorities of people SCI, expectations for supports at discharge inpatient rehabilitation, experiences 3-months post-discharge.

Язык: Английский

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Unmet healthcare needs and health inequalities in people with spinal cord injury: a direct regression inequality decomposition

International Journal for Equity in Health, Год журнала: 2023, Номер 22(1)

Опубликована: Март 30, 2023

Abstract Background Inequality in health is a prevalent and growing concern among countries where people with disabilities are disproportionately affected. Unmet healthcare needs explain large part of the observed inequalities between within countries; however, there other causes, many non-modifiable, that also play role. Aim This article explores difference across income levels populations spinal cord injury (SCI). SCI special interest study systems, as it an irreversible, long-term condition combines high level impairment subsequent comorbidities. Methods We estimated importance modifiable non-modifiable factors through direct regression approach. used two outcomes: years living comorbidity index. Data come from International Spinal Cord Injury Survey (InSCI), which has individual data on 22 around world. Due to heterogeneity data, results were country by country. Results On average, exhibit prevalence pro-rich inequalities, i.e., better outcomes more likely high-income groups. For injury, inequality mostly explained factors, like age at time injury. In contrast, for index, unmet cause factors. Conclusions A significant portion or type accident. result low, middle, countries, pervasive effects vulnerable SCI, who, same highly dependent system. To reduce inequity, important not only address problems public but opportunities, risks, population. Highlights • Better status evident groups, reflected inequalities. Age most factor care The varies upon socioeconomic

Язык: Английский

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Ageing, functioning patterns and their environmental determinants in the spinal cord injury (SCI) population: A comparative analysis across eleven European countries implementing the International Spinal Cord Injury Community Survey

PLoS ONE, Год журнала: 2023, Номер 18(4), С. e0284420 - e0284420

Опубликована: Апрель 20, 2023

Background As the European population with Spinal Cord Injury (SCI) is expected to become older, a better understanding of ageing SCI using functioning, health indicator used model healthy trajectories, needed. We aimed describe patterns functioning in by chronological age, age at injury and time since across eleven countries common metric, identify country-specific environmental determinants functioning. Methods Data from 6’635 participants International Community Survey was used. The hierarchical version Generalized Partial Credit Model, casted Bayesian framework, create metric overall scores. For each country, linear regression investigate associations between or for persons para- tetraplegia. Multiple proportional marginal variance decomposition technique were determinants. Results In representative samples older consistently associated decline paraplegia but not Age level associated, differed countries. An association observed most countries, neither nor Problems accessibility homes friends relatives, access public places long-distance transportation key Conclusions Functioning fundament research. Enhancing methods traditionally develop metrics approach, we able cardinal properties estimate scores comparable Focusing on our study complements epidemiological evidence SCI-specific mortality morbidity Europe initial targets evidence-informed policy-making.

Язык: Английский

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Unmet health care needs and inequality: A cross‐country comparison of the situation of people with spinal cord injury

Health Services Research, Год журнала: 2021, Номер 56(S3), С. 1429 - 1440

Опубликована: Авг. 12, 2021

Abstract Objective To estimate and compare unmet health care needs of persons with spinal cord injury (SCI) across countries, the causes these shortfalls, role income. Data Sources We analyzed cross‐sectional data 20 countries from International Spinal Cord Injury (InSCI) survey, a compendium comparable on living situation SCI. included information high‐, middle‐, low‐income countries. The survey comprises 12,095 participants. Study Design used logit regressions to probability SCI its causes. adjusted results by individuals' characteristics countries' fixed effects. disaggregated income decile individuals in each country. Collection/Extraction Methods inclusion criteria for InSCI were adults aged 18 years older community, who able respond provided informed consent. Principal Findings Unmet are significant people long‐term conditions like SCI, where groups tend be more affected. Among barriers meeting needs, foremost is cost (in 11 countries), followed transportation service availability. Persons Morocco reported highest sample, 0.54 (CI: 047–0.59), well behind South Africa, 0.27 0.20–0.33), Brazil, 0.26 0.20–0.33). In contrast, Spain, 0.06 0.04–0.08), lowest closely Norway, 0.07 0.05–0.09), Thailand, 0.08 0.05–0.11), France, 0.06–0.11), Switzerland, 0.09 0.07–0.10). Conclusions long‐term, irreversible condition characterized physical impairment series chronic illness. This makes high‐need, high‐cost group that faces which mainly explained costs services, transportation, services prevalent low‐, high‐income lower disproportionately improve situation, combination measures social systems required.

Язык: Английский

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Relationship between secondary health conditions and life satisfaction in persons with spinal cord injury: study across twenty-one countries

Quality of Life Research, Год журнала: 2023, Номер 32(7), С. 2069 - 2077

Опубликована: Март 2, 2023

To determine the relationships between impact of secondary health conditions (SHCs), treatment SHCs, and life satisfaction (LS) following spinal cord injury (SCI) across 21 countries. Hypotheses were as follows: (1) Persons with SCI fewer SHCs report higher LS (2) who receive for than those do not treatment.Cross-sectional survey, including 10,499 persons traumatic or non-traumatic aged 18 years older living in community. assess 14 items adapted from SCI-Secondary Conditions Scale used (range 1-5). index was calculated mean all items. assessed using a selection 5 World Health Organization Quality Life Assessment. these items.South Korea, Germany, Poland exhibited highest (2.40-2.93) Brazil, China, Thailand lowest (1.79-1.90) SHCs. Indexes inversely correlated (- 0.418; p < 0.001). Mixed Model Analysis showed that fixed effect (key predictors study) (p 0.001) positive interaction = 0.002) significant determinants LS.Persons world are more likely to perceive better if they experience comparison not. Prevention should be high priority order improve lived enhance LS.

Язык: Английский

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Challenges in traumatic spinal cord injury care in developing countries – a scoping review

Frontiers in Public Health, Год журнала: 2024, Номер 12

Опубликована: Авг. 19, 2024

To evaluate the leading challenges in developing countries' traumatic spinal cord injury (TSCI) care.

Язык: Английский

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Bridging the gap: a translational perspective in spinal cord injury

Experimental Biology and Medicine, Год журнала: 2024, Номер 249

Опубликована: Сен. 26, 2024

Traumatic spinal cord injury (SCI) is a devastating and complex condition to treat with no curative options. In the past few decades, rapid advancements in our understanding of SCI pathophysiology as well mergence new treatments has created more optimism. Focusing on clinical translation, this paper provides comprehensive overview through its epidemiology, pathophysiology, currently employed management strategies, emerging therapeutic approaches. Additionally, it emphasizes importance addressing heavy quality life (QoL) challenges faced by patients their desires, providing basis tailor patient-centric forms care. Furthermore, discusses frequently encountered barriers translation from preclinical models settings. It also seeks summarize significant completed ongoing trials focused neuroprotective neuroregenerative strategies. While developing cohesive regenerative treatment strategy remains challenging, even modest improvements sensory motor function can offer meaningful benefits motivation for coping highly debilitating condition.

Язык: Английский

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Self-Management Support Apps for Spinal Cord Injury: Results of a Systematic Search in App Stores and Mobile App Rating Scale Evaluation

JMIR mhealth and uhealth, Год журнала: 2024, Номер 12, С. e53677 - e53677

Опубликована: Дек. 19, 2024

Background The use of mobile technology to meet health needs, widely referred as (mHealth), has played a critical role in providing self-management support for chronic conditions. However, despite its potential benefits, mHealth technologies such apps spinal cord injury (SCI) have received little research attention, and an understanding their public availability is lacking. Therefore, overview these needed complement findings from the literature complete tools SCI selection improvement existing development new ones. Objective This study aimed identify describe quantity, quality, focus, strengths, weaknesses available on major app digital distribution platforms. Methods A systematic search Google Play Store Apple App was conducted summarize that been updated since 2017. supplementary review across 11 bibliographic databases publications provided more detailed descriptions identified than what typically stores. data synthesis guided by tasks skills taxonomies. PRISMA (Preferred Reporting Items Systematic Reviews Meta-Analyses) guidelines informed reporting. Results 13 included final were launched between 2013 2021, mostly originating United States, with 72 countries 14 languages. Most used Android operating system (10/13, 77%), while 31% (4/13) iOS. mainly focused activities daily living, physical activity promotion, literacy, therapeutic exercise. All 3 (medical, role, emotional management) most supported apps. mean Mobile Rating Scale score 3.86 (SD 0.54), indicating good overall quality. No found describing Conclusions Despite measured assessment, apps, alone or combined, do not appear offer comprehensive approach incorporates theory-based strategies. Besides working improve comprehensiveness, future practice should consider adopting technologies, artificial intelligence, enhance SCI. Furthermore, methods, low-code platforms, could help reduce barriers development, time, cost, securing scarce expertise.

Язык: Английский

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The impact of the COVID-19 pandemic on individuals living with spinal cord injury: A qualitative study.

Rehabilitation Psychology, Год журнала: 2022, Номер 68(1), С. 12 - 24

Опубликована: Ноя. 17, 2022

To explore the impact of COVID-19 pandemic as experienced and reported by individuals living with a spinal cord injury (SCI).Descriptive qualitative design using in-depth semistructured interviews SCI (n = 33) followed thematic analysis.Three main themes described impacts pandemic. (a) Impact on health care use; subthemes elaborated that this was attributable to in-person facility restrictions or individual decisions delay care. Individuals lapses in primary SCI-specialty care, rehabilitation/therapy services, home but some made use telehealth services. (b) weight and/or management lifestyle behaviors; discussed engagement physical activity declined because fitness center closures, recreational cancellations, safety precautions limiting community-based outdoor activities. The disrupted participants' independence purchasing making preferred food selections which impacted healthy eating. Participants ate due boredom, at nonmealtimes, consumed unhealthy foods during (c) psychosocial factors; included noting reduced social interactions, participation, ability pursue pastimes family, friends, groups they belonged to. also triggered emotional reactions such worry, fear, doubt, demotivation, feelings isolation.Our findings highlight magnitude consequences faced when endeavors, participation occurred Findings may inform providers what is needed response future public natural disaster crises. (PsycInfo Database Record 2023 APA, all rights reserved).

Язык: Английский

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