Health equity in clinical trials for regional, rural and First nations communities: Need for networked clinical trial system, through a values and purpose‐aligned system culture DOI Creative Commons
Sabe Sabesan,

Melanie Poxton

Australian Journal of Rural Health, Год журнала: 2024, Номер 32(3), С. 588 - 591

Опубликована: Апрель 17, 2024

Clinical trials are essential components of health practice and vital to developing new therapies, advancing interventions, improving service delivery enhancing models care.1 For patients, participation in clinical improves outcomes many disease areas reduces variation practice, due strict monitoring requirements. practitioners, present an opportunity be at the cutting edge best practice. services, improve standard procedures. systems, industry sponsored additional source revenue that could reinvested build trial units. Reports suggest there is significant return on investment this sector.2 these other reasons, National Trial Governance Framework has called for included as a routine aspect practice.3 In cancer care sector, which serves number patients with incurable diseases, international guidelines recommend first option.4 This means, aligned every should offering all regardless postcode, least diseases. Australia Western countries have invested resources capabilities enable engagement local trials. However, people regional, rural First nations communities continue limited access close home.5, 6 As result, they must endure substantial travel, major costs inconvenience, often, relocate metropolitan centres or pass up participate. key challenge highlighted by accompanying commentary (Walsh et al.)7 specifically emphasised research paper (McPhee al.).7, 8 Alarmingly, MJA study recently described particularly poor representation (exemplified parenting programs).9 Many challenges barriers services apparent (or even more pronounced) case Workforce shortages turn over levels, skills awareness among staff potential benefit trials, inadequate infrastructure common. constrains such sites from attracting sponsors hosting stand-alone sites. Beyond this, system cultural issues within may stifle participation, economic imperatives units their overrule. light above, it not unreasonable conclude majority rural, remote unable function alternative, networked approach decentralises been advocated Government reviews strategic plans, including bodies NH&MRC. It pleasing see recommending decentralised edition al.).7 example, establish level, Commonwealth Government, via Medical Research Future Fund (MRFF), funded states territories Australian Teletrial Program led Queensland health, likewise, New South Wales Capital Territory governments established programs 2019. These two initiatives, combined value $100 M, use Australasian Model (originally designed regional group Oncology Society Australia) mechanism connect larger smaller form clusters. way, some aspects can potentially offered across country. (Operational details model found Teletrials Compendium; https://www.health.gov.au/resources/collections/the-national-teletrials-compendium). aspire set enabling infrastructure, regulatory processes capacity create viable system. Likewise, PARTNER program aims primary practices (https://partnernetwork.com.au/). Such coordinating (RCCC) each state/territory help clinicians navigate necessary approval processes. Over last 2 years, conducted teletrial model. improved patient We now M communities. Health incorporating into plans. relies overarching ownership, leadership layers national, state territory heath systems. will require values purpose culture, support officers, RCCC champions departments frontline workforce, drive uptake levels. The current culture working isolation does provide platform collaboration impedes harmonised national processes, resulting long variable work coordinators, researchers sponsors. Working Townsville, designing, piloting publishing telehealth closer home, lack alignment systems plans frustrating become psychological hazard everyone involved. fundamentally question equity having life changing saving therapy. one reasons (COSA) its partners embarked advocacy workplace reforms narrative healthy culture.10 COSA proposes well-being centred definition System Lasagne creating cultures democratic societies ours. A likely ensure greater focus equity, related better embedded whole illustrated Figure 1. Together we do better, putting our through action. Indeed, when also able teletrials initiatives seamlessly managed core business. When workforce inspired engaged productive workplaces remain mentally physically well. Sabe Sabesan: Conceptualization; methodology; formal analysis; data curation; writing – original draft; review editing; project administration; validation. Melanie Poxton: Open facilitated James Cook University, part Wiley - University agreement Council Librarians. Two authors declare no conflict interest.

Язык: Английский

Establishment of a Research Unit in Colac, a Medium Rural Town: An Update on Progress and Guidance for Rural Health Service Research Strategy Development DOI Creative Commons
Laura Alston, Michael Field, Alison Buccheri

и другие.

Australian Journal of Rural Health, Год журнала: 2025, Номер 33(1)

Опубликована: Фев. 1, 2025

ABSTRACT Background Rural health services have not had the same opporunities for research as metropolitan services. Despite increasing awareness of importance placed‐based led by rural services, there are few examples in literature on how this can be done. Aims In AJRH Practice Insight we aim to provide an update establishment and progress Colac Area Health (CAH) unit. This is a service unit that areas classified MM4‐5 Modified Monash Model. Methods insight. Discussion experience may assist other small or medium‐sized undertake strategic goal building locally relevant place‐based research, along with providing hope those setting out integrate into organisational structures, while minimising burden existing resources. Conclusion demonstrates units their minimal resources alongside support from partners who understand value research. Lessons learned serve valuable example seeking drive own programs staff access career opportunities.

Язык: Английский

Процитировано

0
‘The seagull theory: Where people fly in, gather information… fly out and nothing ever comes about’: A qualitative exploration of barriers and enablers to research participation among adults with type 2 diabetes living in Australian rural communities DOI Creative Commons
Joanne M. Jordan, Jo‐Anne Manski‐Nankervis,

Meaghan Read

и другие.

Diabetic Medicine, Год журнала: 2025, Номер unknown

Опубликована: Март 23, 2025

Abstract Aim Rural communities are under‐represented in diabetes research, with implications for the generalisability, implementation and reach of research outcomes. Increased efforts to conduct in, or inclusive of, rural predicated on effective participant recruitment. This study explores motivations for, barriers enablers participation among adults type 2 (T2D) Australian communities. Method A phenomenological qualitative was conducted involving (18+ years) living T2D communities, using multi‐modal recruitment approaches purposeful sampling across states gender. Audio‐recorded, semi‐structured interviews explored participants' perceptions participation. An abductive coding approach undertaken identify salient themes. Results Twenty‐one participants were recruited all six states, median (range) age 63 (41–78) years 65% women. Barriers include stigma, lack community awareness T2D, few opportunities, geographical distances from sites individual time resource constraints. Enablers strongly focused increased engagement involvement offering education access care as part activities. Motivations included opportunities help advocate highlight under‐resourcing healthcare services. Conclusion Study findings inform practical strategies that may improve mechanisms example, community‐driven methods. Evaluation effectiveness such practice will be needed.

Язык: Английский

Процитировано

0
Health equity in clinical trials for regional, rural and First nations communities: Need for networked clinical trial system, through a values and purpose‐aligned system culture DOI Creative Commons
Sabe Sabesan,

Melanie Poxton

Australian Journal of Rural Health, Год журнала: 2024, Номер 32(3), С. 588 - 591

Опубликована: Апрель 17, 2024

Clinical trials are essential components of health practice and vital to developing new therapies, advancing interventions, improving service delivery enhancing models care.1 For patients, participation in clinical improves outcomes many disease areas reduces variation practice, due strict monitoring requirements. practitioners, present an opportunity be at the cutting edge best practice. services, improve standard procedures. systems, industry sponsored additional source revenue that could reinvested build trial units. Reports suggest there is significant return on investment this sector.2 these other reasons, National Trial Governance Framework has called for included as a routine aspect practice.3 In cancer care sector, which serves number patients with incurable diseases, international guidelines recommend first option.4 This means, aligned every should offering all regardless postcode, least diseases. Australia Western countries have invested resources capabilities enable engagement local trials. However, people regional, rural First nations communities continue limited access close home.5, 6 As result, they must endure substantial travel, major costs inconvenience, often, relocate metropolitan centres or pass up participate. key challenge highlighted by accompanying commentary (Walsh et al.)7 specifically emphasised research paper (McPhee al.).7, 8 Alarmingly, MJA study recently described particularly poor representation (exemplified parenting programs).9 Many challenges barriers services apparent (or even more pronounced) case Workforce shortages turn over levels, skills awareness among staff potential benefit trials, inadequate infrastructure common. constrains such sites from attracting sponsors hosting stand-alone sites. Beyond this, system cultural issues within may stifle participation, economic imperatives units their overrule. light above, it not unreasonable conclude majority rural, remote unable function alternative, networked approach decentralises been advocated Government reviews strategic plans, including bodies NH&MRC. It pleasing see recommending decentralised edition al.).7 example, establish level, Commonwealth Government, via Medical Research Future Fund (MRFF), funded states territories Australian Teletrial Program led Queensland health, likewise, New South Wales Capital Territory governments established programs 2019. These two initiatives, combined value $100 M, use Australasian Model (originally designed regional group Oncology Society Australia) mechanism connect larger smaller form clusters. way, some aspects can potentially offered across country. (Operational details model found Teletrials Compendium; https://www.health.gov.au/resources/collections/the-national-teletrials-compendium). aspire set enabling infrastructure, regulatory processes capacity create viable system. Likewise, PARTNER program aims primary practices (https://partnernetwork.com.au/). Such coordinating (RCCC) each state/territory help clinicians navigate necessary approval processes. Over last 2 years, conducted teletrial model. improved patient We now M communities. Health incorporating into plans. relies overarching ownership, leadership layers national, state territory heath systems. will require values purpose culture, support officers, RCCC champions departments frontline workforce, drive uptake levels. The current culture working isolation does provide platform collaboration impedes harmonised national processes, resulting long variable work coordinators, researchers sponsors. Working Townsville, designing, piloting publishing telehealth closer home, lack alignment systems plans frustrating become psychological hazard everyone involved. fundamentally question equity having life changing saving therapy. one reasons (COSA) its partners embarked advocacy workplace reforms narrative healthy culture.10 COSA proposes well-being centred definition System Lasagne creating cultures democratic societies ours. A likely ensure greater focus equity, related better embedded whole illustrated Figure 1. Together we do better, putting our through action. Indeed, when also able teletrials initiatives seamlessly managed core business. When workforce inspired engaged productive workplaces remain mentally physically well. Sabe Sabesan: Conceptualization; methodology; formal analysis; data curation; writing – original draft; review editing; project administration; validation. Melanie Poxton: Open facilitated James Cook University, part Wiley - University agreement Council Librarians. Two authors declare no conflict interest.

Язык: Английский

Процитировано

2