Real-world psychosocial impact among patients with juvenile idiopathic arthritis and families in Spain DOI Creative Commons

Inmaculada Calvo Penadés,

E. Moreno, Joan Calzada‐Hernández

и другие.

Pediatric Rheumatology, Год журнала: 2024, Номер 22(1)

Опубликована: Ноя. 26, 2024

To assess the psychosocial impact of moderate-severe juvenile idiopathic arthritis (JIA) on patients and their families, among those who had been treated with at least one anti-tumor necrosis factor (anti-TNF-α), according to routine clinical practice in Spain. A 24-month observational, multicentric, cross-sectional retrospective study was performed. Children diagnosed JIA were enrolled three tertiary-care Spanish hospitals. The included children biologic disease-modifying antirheumatic drugs (bDMARD) participated a previous study, ITACA, continued follow-up these pediatric rheumatology units. Patient health-related quality life (HRQoL) assessed using Pediatric Quality Life Inventory (PedsQL™). Caregivers completed an interview gather information about school attendance, children's participation social activities, its jobs perceived support. descriptive statistical analysis all variables Mann–Whitney-U test or Kruskall-Wallis H used compare quantitative Fisher's exact tests for qualitative variables. Tests two-tailed significance level 5%. data analyzed SPSS V18.0 software. One hundred seven included. Overall, inactive disease low activity JADAS-71 score very functional disability CHAQ score. Up 94.4% receiving drug treatment, mainly bDMARD monotherapy (84.5%). Based PedsQL, parents referred high HRQoL. School Functioning PedsQL domain achieved lowest Work due child´s greater mothers than fathers. understanding lower family friends' environments. Most HRQoL controlled activity, despite having negative some them functioning. Children's seems involve work impacts fathers affected by JIA.

Язык: Английский

Association between internet addiction and sleep quality in medical students: a longitudinal study DOI Creative Commons

Chaowei Guo,

Ming Chen, Xiaotong Ji

и другие.

Frontiers in Psychology, Год журнала: 2025, Номер 16

Опубликована: Март 12, 2025

Objective The study aimed to confirm the hysteresis effect of internet addiction on sleep quality and examine association between among medical students from first third academic year. Methods A repeated measures observational cohort was conducted, involving 667 at China Medical University 2017 2019. Kruskal-Wallis test used analyze measurement data, cross-lagged panel models were employed assess associations within across different time intervals. Results Internet significantly associated with ( p < 0.001). Notably, in year positively second Conclusion This underscores importance understanding as progress through their years. Attention should be directed towards long-term adverse effects future students.

Язык: Английский

Процитировано

0
Real-world psychosocial impact among patients with juvenile idiopathic arthritis and families in Spain DOI Creative Commons

Inmaculada Calvo Penadés,

E. Moreno, Joan Calzada‐Hernández

и другие.

Pediatric Rheumatology, Год журнала: 2024, Номер 22(1)

Опубликована: Ноя. 26, 2024

To assess the psychosocial impact of moderate-severe juvenile idiopathic arthritis (JIA) on patients and their families, among those who had been treated with at least one anti-tumor necrosis factor (anti-TNF-α), according to routine clinical practice in Spain. A 24-month observational, multicentric, cross-sectional retrospective study was performed. Children diagnosed JIA were enrolled three tertiary-care Spanish hospitals. The included children biologic disease-modifying antirheumatic drugs (bDMARD) participated a previous study, ITACA, continued follow-up these pediatric rheumatology units. Patient health-related quality life (HRQoL) assessed using Pediatric Quality Life Inventory (PedsQL™). Caregivers completed an interview gather information about school attendance, children's participation social activities, its jobs perceived support. descriptive statistical analysis all variables Mann–Whitney-U test or Kruskall-Wallis H used compare quantitative Fisher's exact tests for qualitative variables. Tests two-tailed significance level 5%. data analyzed SPSS V18.0 software. One hundred seven included. Overall, inactive disease low activity JADAS-71 score very functional disability CHAQ score. Up 94.4% receiving drug treatment, mainly bDMARD monotherapy (84.5%). Based PedsQL, parents referred high HRQoL. School Functioning PedsQL domain achieved lowest Work due child´s greater mothers than fathers. understanding lower family friends' environments. Most HRQoL controlled activity, despite having negative some them functioning. Children's seems involve work impacts fathers affected by JIA.

Язык: Английский

Процитировано

0