Coping With COVID‐19: Perspectives of Caregivers of Children and Young People With Chronic Kidney Disease DOI Creative Commons
Caroline C. Piotrowski,

Julie Strong,

Ashley Giesbrecht

и другие.

Pediatric Transplantation, Год журнала: 2024, Номер 28(5)

Опубликована: Июль 19, 2024

ABSTRACT Background Caregivers of children and young people with chronic kidney disease (CKD) face challenging circumstances on a daily basis; however, the difficulties they experienced during COVID‐19 pandemic, as well potentially positive experiences, are not yet fully understood. The aim this study was to explore pandemic‐related experiences these caregivers. Methods Twelve caregivers were recruited from hospital‐based pediatric renal program; eight families posttransplant. participated in virtual semistructured interviews conducted between March 2021 November 2022. They provided responses open‐ended questions concerning how pandemic affected their child CKD, family, themselves. Interviews transcribed coded using thematic analysis. Results Four main themes identified: (1) Family Life, which included disruptions routine, reduced social supports, changes quality family relationships; (2) Mental Health Coping, increased anxiety coping strategies; (3) Work School work school; (4) Care Systems, health care public restrictions. Conclusions Despite facing profound challenges, identified both negative aspects experiences. Their strategies highlighted individual resilience characteristics. Implications for providers, including future planning, support transition in‐person care, better address barriers resources discussed.

Язык: Английский

Coping With COVID‐19: Perspectives of Caregivers of Children and Young People With Chronic Kidney Disease DOI Creative Commons
Caroline C. Piotrowski,

Julie Strong,

Ashley Giesbrecht

и другие.

Pediatric Transplantation, Год журнала: 2024, Номер 28(5)

Опубликована: Июль 19, 2024

ABSTRACT Background Caregivers of children and young people with chronic kidney disease (CKD) face challenging circumstances on a daily basis; however, the difficulties they experienced during COVID‐19 pandemic, as well potentially positive experiences, are not yet fully understood. The aim this study was to explore pandemic‐related experiences these caregivers. Methods Twelve caregivers were recruited from hospital‐based pediatric renal program; eight families posttransplant. participated in virtual semistructured interviews conducted between March 2021 November 2022. They provided responses open‐ended questions concerning how pandemic affected their child CKD, family, themselves. Interviews transcribed coded using thematic analysis. Results Four main themes identified: (1) Family Life, which included disruptions routine, reduced social supports, changes quality family relationships; (2) Mental Health Coping, increased anxiety coping strategies; (3) Work School work school; (4) Care Systems, health care public restrictions. Conclusions Despite facing profound challenges, identified both negative aspects experiences. Their strategies highlighted individual resilience characteristics. Implications for providers, including future planning, support transition in‐person care, better address barriers resources discussed.

Язык: Английский

Процитировано

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