Rethinking ‘Recovery’: A Comparative Qualitative Analysis of Experiences of Intensive Care With COVID and Long Covid in the United Kingdom DOI Creative Commons
Alice MacLean, Annelieke Driessen, Lisa Hinton

и другие.

Health Expectations, Год журнала: 2025, Номер 28(2)

Опубликована: Апрель 1, 2025

ABSTRACT Introduction Interpretations of ‘recovery’ from illness are complex and influenced by many factors, not least patient expectations experiences. This paper examines meanings ‘recovery’, how it is strived towards, drawing on the example COVID‐19 infection. Methods Drawing qualitative interviews ( n = 93) conducted in UK between February 2021 July 2022, we compare adults' accounts being admitted to an Intensive Care Unit (ICU) with ill Long COVID, defined as ongoing symptoms for at 12 weeks postinfection. We a multi‐stage comparative analysis using Nvivo organise code data. Results identified similarities differences participants' descriptions their ‘worlds illness’. For both groups, perceptions recovery were shaped novel, unknown nature COVID‐19. Participants questioned achievability full restoration prior states health, highlighted heterogeneity ‘recovery trajectories’ described hard physical emotional work adjusting changed selves. Themes that revealed illness’ included different baselines, waymarkers, pathways Differences other people's responses also evident. ICU participants, hospitalisation, especially admission, conferred legitimate status authenticity symptoms. Family, friends healthcare professionals acknowledged illness, celebrated survival, granted them latitude recover. Covid often lacked comparable others' eyes. They reported encountering lack recognition understanding need Conclusions study highlights ascribed others can influence experienced. Our findings highlight importance ensuring people made feel experiences legitimate, regardless hospitalisation status, formal diagnosis or medical knowledge pathways. indicate value emphasising permutations, linearity, take. may help guard against which do meet idealised notions. Patient Public Contribution Both studies guided advisory panel public involvement representatives lived experience Care/COVID COVID respectively. Through regular meetings research teams, had input into all aspects conduct, including recruitment methods content interview topic guide feedback preliminary analyses. The coinvestigator who contributed data interpretation analysis.

Язык: Английский

Rethinking ‘Recovery’: A Comparative Qualitative Analysis of Experiences of Intensive Care With COVID and Long Covid in the United Kingdom DOI Creative Commons
Alice MacLean, Annelieke Driessen, Lisa Hinton

и другие.

Health Expectations, Год журнала: 2025, Номер 28(2)

Опубликована: Апрель 1, 2025

ABSTRACT Introduction Interpretations of ‘recovery’ from illness are complex and influenced by many factors, not least patient expectations experiences. This paper examines meanings ‘recovery’, how it is strived towards, drawing on the example COVID‐19 infection. Methods Drawing qualitative interviews ( n = 93) conducted in UK between February 2021 July 2022, we compare adults' accounts being admitted to an Intensive Care Unit (ICU) with ill Long COVID, defined as ongoing symptoms for at 12 weeks postinfection. We a multi‐stage comparative analysis using Nvivo organise code data. Results identified similarities differences participants' descriptions their ‘worlds illness’. For both groups, perceptions recovery were shaped novel, unknown nature COVID‐19. Participants questioned achievability full restoration prior states health, highlighted heterogeneity ‘recovery trajectories’ described hard physical emotional work adjusting changed selves. Themes that revealed illness’ included different baselines, waymarkers, pathways Differences other people's responses also evident. ICU participants, hospitalisation, especially admission, conferred legitimate status authenticity symptoms. Family, friends healthcare professionals acknowledged illness, celebrated survival, granted them latitude recover. Covid often lacked comparable others' eyes. They reported encountering lack recognition understanding need Conclusions study highlights ascribed others can influence experienced. Our findings highlight importance ensuring people made feel experiences legitimate, regardless hospitalisation status, formal diagnosis or medical knowledge pathways. indicate value emphasising permutations, linearity, take. may help guard against which do meet idealised notions. Patient Public Contribution Both studies guided advisory panel public involvement representatives lived experience Care/COVID COVID respectively. Through regular meetings research teams, had input into all aspects conduct, including recruitment methods content interview topic guide feedback preliminary analyses. The coinvestigator who contributed data interpretation analysis.

Язык: Английский

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