Health conditions in spousal caregivers of people with dementia and their relationships with stress, caregiving experiences, and social networks: longitudinal findings from the IDEAL programme

BMC Geriatrics, Год журнала: 2024, Номер 24(1)

Опубликована: Фев. 19, 2024

Abstract Objectives Longitudinal evidence documenting health conditions in spousal caregivers of people with dementia and whether these influence caregivers’ outcomes is scarce. This study explores type number over two years subgroups based on age, sex, education, hours care, informant-rated functional ability, neuropsychiatric symptoms, cognition the person dementia, length diagnosis dementia. It also time associated stress, positive experiences caregiving, social networks Methods data from IDEAL (Improving experience Dementia Enhancing Active Life) cohort were used. Participants comprised ( n = 977) Self-reported using Charlson Comorbidity Index, network assessed years. Mixed effect models used Results On average participants had 1.5 at baseline; increasing to 2.1 More reported by who older, no formal provided 10 + care per day, and/or cared for a more symptoms baseline. baseline greater stress but not time. Over years, when increased, their increased whereas diminished Discussion Findings highlight that most have own problems which require management avoid shrinking

Язык: Английский

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Relationship of Physical Well-Being, Emotional Well-Being, and Social Engagement to Cognition in a Multiethnic Older Population

Research in Gerontological Nursing, Год журнала: 2025, Номер unknown, С. 1 - 13

Опубликована: Март 11, 2025

Purpose To investigate the association between cognition, social engagement, physical well-being, and emotional well-being in a diverse older population. Method A secondary data analysis was conducted using factor score structural equation model multiethnic sample of African American, Afro-Caribbean, Hispanic European American participants. Results Statistically significant (direct effects) latent constructs engagement were found. Model invariance testing suggests partial with differences life space, depression, anxiety across racial/ethnic groups. As mediator, significantly diminished effects (i.e., depression) increased (Life Space Assessment SF-36 Physical Component Summary: β = −0.07, standard error [SE] 0.14, p 0.045, −0.15, SE 0.040, respectively) on cognition. Conclusion suggest good fit critical role for its impact [ Research Gerontological Nursing, xx (x), xx–xx.]

Язык: Английский

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The Italian guideline on diagnosis and treatment of dementia and mild cognitive impairment

Age and Ageing, Год журнала: 2024, Номер 53(11)

Опубликована: Окт. 31, 2024

Abstract Introduction Approximately 2 million people in Italy are currently living with dementia or mild cognitive impairment (MCI), and 4 involved as family members caregivers. Considering the significant impact of dementia, Italian Ministry Health entrusted National Institute (Istituto Superiore di Sanità) development a guideline within Guideline System (Sistema Nazionale Linee Guida, SNLG) on diagnosis treatment MCI. The main objective was to provide evidence-based recommendations aimed at reducing variability ensuring appropriateness clinical practices throughout whole care process from identification end life for (PwD) MCI their families/caregivers. Methods GRADE-ADOLOPMENT approach used adopt, adapt update developed by Care Excellence 2018 (NG97). methodology based Methodological Handbook produced SNLG. A multidisciplinary panel 29 experts four representatives members/caregivers discussed approved 47 review questions. Of these, 34 questions were adopted NG97, 13 new questions, including 10 referring Systematic literature reviews performed each question, team methodological qualitatively assessed summarised results included studies GRADE approach. To facilitate implementation dissemination contents this guideline, pathway leaflet dedicated PwD families/caregivers also developed. Results published up November 2023. More than 1000 peer-reviewed publications included, covering following areas: (i) identification, post-diagnostic support; (ii) models coordination; (iii) pharmacological interventions symptoms; (iv) non-pharmacological (v) non-cognitive symptoms, intercurrent illnesses palliative care. 167 practice 39 research recommendations. Commentary Italy’s first addresses diagnosis, Healthcare System. It includes approaches, emphasises tailored interventions, comprehensive assessment, staff training underlines need involve decision-making supporting caregivers entire course disease. Conclusions Structured strategies will be defined Fund Alzheimer other Dementias 2024–2026. An interactive carers already available. updated starting January 2027, but early updates may planned case breakthrough advancements.

Язык: Английский

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Living with dementia and other long-term conditions: what works for patient/caregiver dyads? A realist review

Research Square (Research Square), Год журнала: 2025, Номер unknown

Опубликована: Янв. 23, 2025

Objectives Globally, increasing numbers of people are living with multiple long-term conditions. When dementia is a co-occurring condition, contact services complicated due to the person’s cognitive difficulties and often achieved as dyad (person carer). This realist review aimed explain how dyads alongside other conditions enabled (or not) access navigate health care systems. Method An iterative, three stage approach synthesised evidence from empirical studies stakeholders lived professional experience (ethics reference 23/LO/0829). Results Evidence 61 (30 participants, 68 consulted) built refined five programme theories for systems can achieve continuity support, anticipate adverse events maintain quality life. Belief that concerns would be listened acted upon led seek assistance. Time permission discuss priorities, prognosis acceptable levels burden uncertainties managed shared endeavour. The collective capacity was enhanced by peer expertise they accrued over time professionals who helped points change. Conclusion Despite years system changes, structural factors still create excessive burdens accessing constrain professionals’ ability respond complex needs.

Язык: Английский

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Living with dementia and other long-term conditions: what works for patient-caregiver dyads? A realist review

Aging & Mental Health, Год журнала: 2025, Номер unknown, С. 1 - 11

Опубликована: Апрель 3, 2025

Globally, increasing numbers of people are living with multiple long-term conditions. When dementia is a co-occurring condition, contact services complicated due to cognitive difficulties and often achieved as dyad (person-carer). This realist review aimed explain how dyads alongside other conditions enabled access navigate health care systems. An iterative, three-stage approach synthesised evidence from empirical studies stakeholders lived professional experience (ethics reference 23/LO/0829). Evidence 61 (30 participants, 68 consulted) built refined five programme theories for systems can achieve continuity support, anticipate adverse events maintain quality life. Belief that concerns would be listened acted upon led seek assistance. Time permission discuss priorities, prognosis acceptable levels burden uncertainties managed shared endeavour. The collective capacity the was enhanced by peer expertise they accrued professionals who helped points change. Despite years system changes, structural factors still create excessive burdens accessing constrain professionals' ability respond complex needs.

Язык: Английский

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Social Frailty and Social Isolation in the Context of Dementia: A Simultaneous Concept Analysis

International Journal of Geriatric Psychiatry, Год журнала: 2025, Номер 40(4)

Опубликована: Апрель 1, 2025

ABSTRACT Objectives Early management of risk factors related to social health such as frailty and isolation could modify the progression dementia reduce its impact on people with dementia. However, due overlapping definitions interchangeable use measurement tools, precise distinction between these two concepts is unclear. This simultaneous concept analysis aimed examine interrelationships within context Methods The method developed by Haase et al. was employed. A literature search conducted across six databases (Ovid Medline, CINAHL, PsycINFO, Scopus, Embase Cochrane Library) retrieve original research, review theoretical papers, published in English. Data from synthesised analysed thematically following Braun Clarke's steps. Results attributes overlap, including being alone having limited or less activities, engagements interactions. specific are financial difficulties talk while distinctly marked a lack networks relationships. Socio‐economic welfare antecedent frailty, decreased access resources lower well‐being distinctive consequences isolation. Cognitive decline antecedents isolation; however, they also exist shared both Conclusions clarified similarities differences clearer understanding distinct characteristics them will support strategies comprehensively address issues experienced

Язык: Английский

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Identifying predictors of transition to a care home for people with dementia: findings from the IDEAL programme

Aging & Mental Health, Год журнала: 2024, Номер unknown, С. 1 - 9

Опубликована: Авг. 8, 2024

Objectives This study investigates factors associated with the person dementia and caregiver to identify those an increased risk of transition a care home.

Язык: Английский

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Association Between Race and Comorbid Conditions Among Older Adults with Dementia

Journal of Clinical Medicine, Год журнала: 2024, Номер 13(21), С. 6368 - 6368

Опубликована: Окт. 24, 2024

Dementia is estimated to affect over 150 million individuals by 2050. Individuals with dementia commonly suffer from other comorbid conditions which can quality of life and result in increased health care expenditures. We conducted this study determine the frequency between representative samples non-Hispanic Black White US adults aged ≥65 dementia.

Язык: Английский

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Trends in prevalence, associated comorbid burden, and subsequent mortality of social isolation: A gender perspective

Research Square (Research Square), Год журнала: 2024, Номер unknown

Опубликована: Дек. 18, 2024

Background Social isolation has been a major public health issue associated with increased mortality. However, gender differences in social have not thoroughly characterized. This study aimed to estimate the trends prevalence of isolation, evaluate gender-based its comorbid burden, and examine their subsequent mortality by gender. Methods nationwide cross-sectional prospective cohort used data from China Health Retirement Longitudinal Study. was measured using 4 dichotomized indicators. The Cochran-Armitage trend test multivariate Poisson regression models were constructed analyze longitudinal associations between All analyses weighted account for multistage, probability-proportional-to-size sampling scheme. Results Among 10197 participants, mean age 60.0 years, 48.1% men. 20.8%, an average age-adjusted Charlson Comorbidity Index (ACCI) 2.7 (± 1.8) 1.5 1.4) comorbidities. A significant downward observed men, 19.4% (95% confidence interval (CI): 17.7, 21.3) 2011 14.1% CI: 12.9, 15.4) 2018 (P < 0.001). In contrast, stable noted women, 24.0% 22.5, 25.6) 24.1% 22.7, = 0.154). steeper increase ACCI number comorbidities women compared gender-by-social score interaction 0.001) Over 9-year follow-up period, females had more than double risk (incidence rate ratio (IRR): 2.05, 95% 1.65, 2.53), while males only 60% IRR 1.31, 1.95) all-cause 0.032). Conclusion Several observed, including higher prevalence, heavier burdens, prominent impact on highlighting importance enhancing family support older adults, particularly improving socioeconomic statuses rights women.

Язык: Английский

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