Social media as a source of information for patients with knee osteoarthritis
BMC Musculoskeletal Disorders,
Год журнала:
2025,
Номер
26(1)
Опубликована: Апрель 1, 2025
Язык: Английский
Online community discourse on spinal cord injury research
Journal of Communications In Healthcare,
Год журнала:
2025,
Номер
unknown, С. 1 - 8
Опубликована: Апрель 19, 2025
Public
perceptions
of
spinal
cord
injury
(SCI)
research
can
influence
trust
in
scientific
advancements
and
therapeutic
interventions.
Social
media
is
a
useful
tool
to
provide
insight
into
these
related
values.
This
study
examines
comments
posts
pertaining
SCI
reports
on
widely
used
social
platform.
We
search
term
'spinal
injury'
collect
associated
top-level
spanning
2016-2023
from
Reddit.
Posts
were
included
if
they
contained
one
the
following
interventions:
biologic
synthetic
materials;
devices
technologies;
physical
behavioral
interventions;
pharmacological
treatments.
Each
unique
comment
per
Reddit
post
was
coded
for
user
self-identification,
format,
intervention,
topic,
tone.
retrieved
analyzed
994
24
posts.
Key
topics
interest
were:
progress
(52%,
514/994),
details
(30%,
301/994),
ethical
implications
(24%,
237/994)
across
Comments
generally
neutral
Fifty-four
made
by
users
who
self-identified
as
persons
with
lived
experience
cord-related
condition.
Ethics-related
(237/994)
focused
themes
access
(35%,
84/237)
beneficence
58/237).
The
community
actively
using
platform
seek
information
about
its
dimensions.
Across
users,
significant
proportion
are
progress,
ethics
information.
largest
ethics-focused
self-identifiers
agency,
then
equally
access,
values,
resilience;
ethics-related
non-self-identifiers
focus
beneficence.
Язык: Английский
Exploring Pain in Social Media: A Study on Perceptions and Discussions of Chronic Pain Conditions (Preprint)
Опубликована: Окт. 13, 2024
BACKGROUND
Chronic
pain,
an
unpleasant
sensory
and
emotional
experience
lasting
over
six
months,
affects
a
large
proportion
of
the
global
population
significantly
impacts
health
quality
life.
Certain
diseases
cause
chronic
resulting
in
social
medical
misunderstanding
that
intensity
patient’s
suffering.
In
recent
years,
media
platform
Twitter,
now
called
“X,”
has
become
valuable
resource
for
research
discussion
on
providing
accessible
environment
communication
information
exchange.
OBJECTIVE
To
analyze
content
Twitter
related
to
fibromyalgia,
headache,
paraplegia,
neuropathy,
multiple
sclerosis,
as
well
characterize
profile
users
involved
these
conversations,
identify
prevalent
topics,
measure
public
perception,
evaluate
treatment
efficacy,
detect
discussions
most
frequent
non-medical
issues.
METHODS
72,874
tweets
English
Spanish
containing
pre-specified
keywords
were
collected
between
2018
2022.
A
manual
review
was
conducted
2,500
tweets,
larger
subset
classified
by
machine
learning
methods.
Subsequently,
pain
conditions
analyzed
examine
their
content,
types
X
users,
origin
disease,
efficacy
treatments.
RESULTS
Of
total
collected,
55,451
(76,1%)
classifiable.
The
active
healthcare
professionals
institutions.
primary
perceived
etiology
pharmacological,
higher
noted
sclerosis.
Regarding
there
more
definition
understanding
disease.
CONCLUSIONS
Social
platforms,
such
X,
are
playing
crucial
role
dissemination
pain.
Discussions
largely
focus
available
treatments
need
enhance
education,
utilizing
platforms
correct
misconceptions
provide
better
support
patients.
Язык: Английский
Using Natural Language Processing and Social Media Data to Understand the Lived Experience of People with Fibromyalgia
Healthcare,
Год журнала:
2024,
Номер
12(24), С. 2511 - 2511
Опубликована: Дек. 11, 2024
Fibromyalgia
has
many
unmet
needs
relating
to
treatment,
and
the
delivery
of
effective
evidence-based
healthcare
is
lacking.
We
analyzed
social
media
conversations
understand
patients'
perspectives
on
lived
experience
fibromyalgia,
factors
reported
trigger
flares
pain,
treatments
being
discussed,
identifying
barriers
opportunities
improve
delivery.
A
non-interventional
retrospective
analysis
accessed
detail-rich
about
fibromyalgia
experiences
with
714,000
documents,
including
a
language
tag,
which
were
curated
between
May
2019
April
2021.
Data
via
qualitative
quantitative
analyses.
found
most
Twitter
Reddit,
conversation
trends
remained
stable
over
time.
There
numerous
environmental
modifiable
triggers,
ranging
from
frequent
stress
anxiety
various
foods.
Arthritis
irritable
bowel
syndrome
(IBS)
frequently
associated
comorbidities.
Patients
wide
range
symptoms,
pain
cardinal
feature.
The
massage,
meditation
acupuncture
domains
treatment
modalities.
Opportunities
delivered
by
medical
providers
identified
current
frustration
lack
acknowledgement
their
disease,
minimization
symptoms
inadequately
meeting
care
needs.
developed
comprehensive,
large-scale
study
emphasizes
advanced
natural
processing
algorithm
application
in
real-world
research
design.
Through
extensive
encapsulation
patient
perspectives,
we
outlined
habitual
triggers
modalities
provide
durable
foundation
for
addressing
gaps
provision.
Язык: Английский