Living with Long COVID: A Narrative Study

Occupational Therapy In Health Care, Год журнала: 2025, Номер unknown, С. 1 - 20

Опубликована: Фев. 17, 2025

This qualitative narrative study describes the stories of persons with Long COVID. Four individuals participated in semi-structured interviews photo elicitation. Thematic analysis yielded six themes: symptom complexity, deep emotional impact, changes to daily life, not being believed, navigating healthcare alone, and positive influence social support illustrating that COVID experience major their bodies, routines, relationships. The results can inform occupational therapy services by encouraging practitioners pursue updated COVID-specific continuing education address functional limitations, role competencies, systems, life priorities these clients.

Язык: Английский

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All-cause healthcare resource utilization and costs among community-managed adults with long-COVID in France, 2020–2023

Journal of Medical Economics, Год журнала: 2025, Номер 28(1), С. 535 - 543

Опубликована: Апрель 8, 2025

The clinical and economic burden of long COVID is poorly understood. We aim to assess all-cause healthcare resource utilization (HCRU) costs in the primary care setting among adults with France. A retrospective cohort study using electronic records (EHRs) confirmed and/or probable COVID-19 patients from Health Improvement Network (THIN) data between March 2020 December 2022 was conducted. Long identified per World Organization (WHO) definition as suggestive symptoms present ≥3 months following acute SARS-CoV-2 infection. Patients' characteristics, HCRU, direct indirect (National Insurance-based prices) were summarized. Costs previous infection who developed COVID, did not develop (COVID only), contemporaneous controls without compared (Non-COVID). 30,122 (11.6%) adults; mean (SD) age 50 (17) years, 63.6% female 27.5% had a Charlson Comorbidity Index score >2. During post-infection follow-up (mean = 13 months), 97.3% general practitioner consultations (GP) 62.4% nursing care. highest during first post-diagnosis year patient €2,443 (total cost €52 million), including for GP (€208) specialist (€170) consultations, outpatient procedures (€413), retail pharmacy use (€595), biological testing (€147), medical device usage (€172). Patients additional €163 €176 when only Non-COVID cohorts, respectively. Since THIN database generated EHRs, there possibility measurement/documentation errors missing values which could compromise validity accuracy certain results. associated non-negligible French system. These findings reinforce importance optimizing long-term allocation infected SARS-CoV-2.

Язык: Английский

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Wie gehen Menschen mit Long COVID mit ihren Symptomen und Alltagseinschränkungen um? Eine qualitative Studie mit vier Fokusgruppen

Zeitschrift für Evidenz Fortbildung und Qualität im Gesundheitswesen, Год журнала: 2025, Номер unknown

Опубликована: Апрель 1, 2025

The heterogenous and fluctuating intensity of long COVID symptoms poses a challenge to both patients healthcare providers due lack causal treatment options. aim supportive therapies is help individuals cope with in daily life maintain functionality. This study aims identify coping strategies employed by those affected their perceived benefits. A qualitative was conducted four focus groups comprising 23 adult suffering from COVID. recorded transcribed group discussions were analyzed using content-structuring content analysis according Kuckartz. results then systematically analyzed, interpreted, put theoretical context. Participants utilized resources but developed own for dealing because dissatisfaction medical care. These included energy resource management, physical activity, enhancing health literacy, changing mindset lifestyle, infection prevention, aids, dietary changes. demonstrates that people employ variety impairments everyday life. According the interviewees, integrating these approaches into can reduce burden on affected, restore functionality, improve self-efficacy quality Established concepts like "pacing" or "shared-decision making" serve as starting point developing individualized together patients.

Язык: Английский

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Exploring the perceptions and experiences of community rehabilitation for Long COVID from the perspectives of Scottish general practitioners’ and people living with Long COVID: a qualitative study

BMJ Open, Год журнала: 2024, Номер 14(5), С. e082830 - e082830

Опубликована: Май 1, 2024

Objectives To explore the experience of accessing Long COVID community rehabilitation from perspectives people with and general practitioners (GPs). Design Qualitative descriptive study employing one-to-one semistructured virtual interviews analysed using framework method. Setting Four National Health Service Scotland territorial health boards. Participants 11 (1 male, 10 female; aged 40–65 (mean 53) 13 GPs (5 8 female). Results key themes were identified: (1) The lived COVID, describing negative impact on participants’ quality life; (2) challenges an emergent complex chronic condition, including uncertainties related to diagnosis management; (3) Systemic for service delivery, lack clear pathways access referral, siloed services, limited resource a perceived holistic care, (4) Perceptions experiences its management, rehabilitation. In this theme, knowledge by potential role was identified. Having prior or being healthcare professional appeared facilitate Finally, who had received generally found it beneficial. Conclusions There are several patient, GP service-level barriers COVID. is need greater understanding public, other referrers professionals in management also services be well promoted accessible whom they may appropriate. findings can used those (re)designing

Язык: Английский

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Barriers and facilitators of healthcare access for long COVID-19 patients in a universal healthcare system: qualitative evidence from Austria

International Journal for Equity in Health, Год журнала: 2024, Номер 23(1)

Опубликована: Окт. 23, 2024

Long COVID-19 challenges health and social systems globally. International research finds major inequalities in prevalence healthcare utilization as patients describe difficulties with accessing care. In order to improve long-term outcomes it is vital understand any underlying access barriers, for which relevant evidence on long thus far lacking a universal system like Austria. This study aims comprehensively identify barriers facilitators faced by Austria explore potential socioeconomic demographic drivers care access. Applying an exploratory qualitative approach, we conducted semi-structured interviews 15 experts including medical professionals senior officials well focus groups 18 confirmed diagnosis reflecting varying participant characteristics (age, gender, urbanicity, occupation, education, insurance status) (July-Nov 2023). Data were analysed following thematic framework drawing comprehensive 'access care' model. Based expert patient experiences, several emerged along all dimensions of the Main themes included scepticism stigma professionals, finding knowledgeable doctors, limited specialist capacities ambulatory sector, waiting times care, statutory coverage treatments resulting high out-of-pocket payments. Patients experienced constant self-organization their pathway stressful, emphasizing need multidisciplinary centralized coordination. Facilitators supportive environments, telemedicine, informal information provided nationwide patient-led support group. Differences experiences emerged, among others, women younger gender- age-based stigmatization. Complementary reduced financial strain, however, did not ease capacity constraints, particularly challenging those living rural areas. The findings this indicate call action situation empowering both providers via increased offerings, strengthened interdisciplinary treatment structures telemedicine offerings funding. Our insights potentially lay necessary foundation future quantitative inequality research.

Язык: Английский

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Insights into early recovery from Long COVID—results from the German DigiHero Cohort

Scientific Reports, Год журнала: 2024, Номер 14(1)

Опубликована: Апрель 13, 2024

Abstract 65 million people worldwide are estimated to suffer from long-term symptoms after their SARS-CoV-2 infection (Long COVID). However, there is still little information about the early recovery among those who initially developed Long COVID, i.e. had 4–12 weeks but no 12 weeks. We aimed identify associated factors with this recovery. used data SARS-CoV-2-infected individuals DigiHero study. Participants provided infections and at time of infection, weeks, more than post-infection. performed multivariable logistic regression COVID principal component analysis (PCA) groups symptoms. 5098 participants reported which 2441 (48%) Men, younger participants, mild course acute infected Omicron variant, did not seek medical care in week period a higher chance In PCA, we identified four distinct symptom groups. Our results indicate differential risk continuing COVID. The similar for development so these characteristics only developing also longer persistence Those sought help were likely have persistent

Язык: Английский

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“The dream is that there’s one place you go”: a qualitative study of women’s experiences seeking care from Long COVID clinics in the USA

BMC Medicine, Год журнала: 2024, Номер 22(1)

Опубликована: Июнь 13, 2024

Abstract Background Seeking and obtaining effective health care for Long COVID remains a challenge in the USA. Women have particularly been impacted, as they are both at higher risk of developing facing gendered barriers to having symptoms acknowledged. clinics, which provide multidisciplinary coordinated care, emerged potential solution. To date, however, there has little examination U.S. patient experiences with clinics how patients may or not come access clinic. Methods We conducted semi-structured interviews 30 women aged 18 older who had experienced least 3 months, hospitalized acute COVID-19, seen one medical provider about their symptoms. Participants were asked seeking COVID. clinic-related responses analyzed using qualitative framework analysis identify key themes clinics. Results Of women, 43.3% ( n = 13) clinic by affiliated 30.0% 9) explored attempted see but time interview. expressed five concerning from clinics: (1) Access an issue, (2) Clinics stop shop, (3) Not all providers sufficient knowledge, (4) can offer validation (5) Treatment options critical urgent. Conclusions While is significant, findings indicate that ongoing challenges related quality coordination hamper contribute distress among care. Since uniquely positioned framed being place go manage complex symptoms, it wellbeing be properly resourced level complies emerging best practices.

Язык: Английский

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Self-reported Health Service Utilization and Barriers to Care Among US Adults with a History of Post COVID-19 Condition

Journal of General Internal Medicine, Год журнала: 2024, Номер unknown

Опубликована: Окт. 7, 2024

Язык: Английский

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Improvement in quality of life and cognitive function in Post Covid Syndrome after online occupational therapy: results from a randomized controlled pilot study

medRxiv (Cold Spring Harbor Laboratory), Год журнала: 2024, Номер unknown

Опубликована: Май 10, 2024

Abstract Background Post-COVID-Syndrome (PCS) poses enormous clinical challenges. Occupational therapy (OT) is recommended in PCS, but structural validation of this concept pending. Methods In an unblinded randomized pilot study (clinical trial # DRKS0026007), feasibility and effects online OT PCS were tested. Probands received structured over 12 weeks either via interactive treatment sessions (interactive group) or prerecorded videos (video group). 50% probands no (control At week 0, 12, 24, we analyzed experience, health-related quality life, impairment performance, participation, cognitive functions. Results N=158 (mean age 38 yrs., 86% female) included into the analyses. 83.3% versus 48.1% video group described their experience as positive very (p=0.001). After weeks, all groups displayed significant improvement concentration, memory, performance daily tasks. 24 concentration memory observed control- video-probands, social participation had improved after video-OT. However, only that showed measured endpoints including participation. Conclusion We show feasible a promising strategy for affected patients. present exploratory data on its efficacy describe variables can be employed further investigations confirmatory trials.

Язык: Английский

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A Journey Through Grief: Experiences of Loss Among Patients With Long COVID

Journal of Patient Experience, Год журнала: 2024, Номер 11

Опубликована: Янв. 1, 2024

Long COVID is a growing health concern with data continuing to emerge about the psychosocial consequences of this new chronic condition. We aimed improve understanding experiences patients COVID, focusing on emotional impacts arising from loss and grief caused by persistent physical symptoms changes in lifestyle social support. Patients (n = 21) were recruited August September 2022 post-COVID recovery clinic participate semistructured interviews. found that (1) reported experiencing across multiple domains including health, mental support connections, roles their families, self-identities, (2) described mirrored 5 stages Kubler-Ross model: denial, anger, bargaining, depression, for some, acceptance. Our findings highlight importance evaluating among as well systems patient population. Providers may be encouraged incorporate bereavement resources address critical needs patients.

Язык: Английский

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