Digital Information Exchange Between the Public and Researchers in Health Studies: Scoping Review

Journal of Medical Internet Research, Год журнала: 2025, Номер 27, С. e63373 - e63373

Опубликована: Янв. 28, 2025

Background Information exchange regarding the scope and content of health studies is becoming increasingly important. Digital methods, including study websites, can facilitate such an exchange. Objective This scoping review aimed to describe how digital information occurs between public researchers in studies. Methods was prospectively registered adheres PRISMA-ScR (Preferred Reporting Items for Systematic Reviews Meta-Analyses Extension Scoping Reviews) guidelines. Eligibility defined using population (public researchers), concept (digital exchange), context (health studies) framework. Bibliographic databases (MEDLINE, PsycINFO, CINAHL, Web Science), bibliographies included studies, Google Scholar were searched up February 2024. Studies published peer-reviewed journals screened inclusion based on title, abstract, full text. Data items charted from bibliographic PCC (Population, Concept, Context) characteristics. processed into categories that inductively emerged data synthesized main themes descriptive statistics. Results Overall, 4072 records screened, 18 2010 2021 included. All evaluated or assessed preferences The target populations (mainly adults with any specific diseases), researchers, both. methods emails, forums, platforms, social media, portals. Interactivity (ie, if should be active passive) addressed half Exchange aim inform, recruit, link, gather innovative research ideas participants We identified 7 facilitators 9 barriers consideration stakeholder perspectives needs clarify expectations responsibilities, use modern low-cost communication technologies public-oriented language, continuous process. not planned feasible due inadequate resources, highly complex technical language used, ethical concerns (eg, breach anonymity are brought together) raised. Evidence gaps indicate new assess receiver public) required deliver interactive Conclusions Few addressing could this review. There little focus interactivity associated more than facilitators, suggesting effort improve researchers. Future investigate

Язык: Английский

---

Educational Technologies to Promote Self-Care in People Affected by Leprosy: A Systematic Review

Aquichan, Год журнала: 2025, Номер 25(1), С. 1 - 20

Опубликована: Март 26, 2025

Introduction: The disabilities caused by leprosy, in addition to being stigmatizing, interfere the emotional, social, and productive stability of person affected. For this reason, it must be prevented during treatment post-discharge, when support for self-care is essential. In context, crucial use educational technologies that encourage understanding incorporation daily care. Objective: To highlight contributions used promote people affected leprosy. Materials Methods: This a systematic review conducted December 2022, SciELO, Cochrane Library, Embase, Lilacs, PubMed, Scopus, Web Science databases as well gray literature, which Catalogue Theses Dissertations Coordination Improvement Higher Education Personnel (Coordenação de Aperfeiçoamento Pessoal Nível Superior - Capes), ProQuest, OpenGrey were searched. eligibility criteria consisted primary studies with aged 15 or over leprosy; healthcare professionals who provided guidance on guide self-care; their improvement self-care. Results: total, five included; all manuscripts presented interventions via oral communication; there was significant adherence regarding face, hands, feet; addition, minimization hospital admissions increased levels independence performing activities living. Conclusion: significant, an increase frequency practices leprosy treatment.

Язык: Английский

---

Cochrane reviews received more online attention than other systematic reviews—except when published in leading medical journals

Scientometrics, Год журнала: 2025, Номер unknown

Опубликована: Апрель 19, 2025

Язык: Английский

---

An Altmetric Analysis of the Research Literature About Traditional, Complementary, and Integrative Medicine

Research Square (Research Square), Год журнала: 2024, Номер unknown

Опубликована: Авг. 27, 2024

Background The use of traditional, complementary, and integrative medicine (TCIM) is known to be popular worldwide; there have been over 200 000 research articles published on this topic as 2024. For decades, traditional citation-based metrics the assumed norm when assessing impact research, but in digital age, alternative (altmetrics) also become a valuable proxy. By analyzing trends associated with altmetrics scholarly outputs relating TCIM, patterns social engagement were identified obtain better understanding factors that drive field online. Methods This study was conducted using Altmetric.com, whereby database searched by subject area “Traditional, Complementary Integrative Medicine”. subsequent data obtained further analyzed discern within TCIM at article level. Results Outputs from Journal Natural Products mentioned most frequently online (n = 5314, 10.56%). highest average Altmetric attention scores news (M 203.67), under bronze OA type 17.54). mentions contributed X 350 630, 70.41%), Facebook 57 540, 11.55%), outlets 39 941, 8.02%). Conclusions Implementing characteristics increased reported sharing findings channels may help align dissemination efforts public interests increase visibility online, ultimately shortening gap between policy.

Язык: Английский

---

Digital Information Exchange Between the Public and Researchers in Health Studies: Scoping Review (Preprint)

Опубликована: Июнь 18, 2024

Information exchange regarding the scope and content of health studies is becoming increasingly important. Digital methods, including study websites, can facilitate such an exchange. This scoping review aimed to describe how digital information occurs between public researchers in studies. was prospectively registered adheres PRISMA-ScR (Preferred Reporting Items for Systematic Reviews Meta-Analyses Extension Scoping Reviews) guidelines. Eligibility defined using population (public researchers), concept (digital exchange), context (health studies) framework. Bibliographic databases (MEDLINE, PsycINFO, CINAHL, Web Science), bibliographies included studies, Google Scholar were searched up February 2024. Studies published peer-reviewed journals screened inclusion based on title, abstract, full text. Data items charted from bibliographic PCC (Population, Concept, Context) characteristics. processed into categories that inductively emerged data synthesized main themes descriptive statistics. Overall, 4072 records screened, 18 2010 2021 included. All evaluated or assessed preferences The target populations (mainly adults with any specific diseases), researchers, both. methods emails, forums, platforms, social media, portals. Interactivity (ie, if should be active passive) addressed half Exchange aim inform, recruit, link, gather innovative research ideas participants We identified 7 facilitators 9 barriers consideration stakeholder perspectives needs clarify expectations responsibilities, use modern low-cost communication technologies public-oriented language, continuous process. not planned feasible due inadequate resources, highly complex technical language used, ethical concerns (eg, breach anonymity are brought together) raised. Evidence gaps indicate new assess receiver public) required deliver interactive Few addressing could this review. There little focus interactivity associated more than facilitators, suggesting effort improve researchers. Future investigate

Язык: Английский

---