Caring for People with Rare Diseases: A Systematic Review of the Challenges of, and Strategies for Dealing with, COVID-19 DOI Open Access
Elena Faccio, Matteo Bottecchia, Michele Rocelli

и другие.

International Journal of Environmental Research and Public Health, Год журнала: 2023, Номер 20(19), С. 6863 - 6863

Опубликована: Сен. 29, 2023

The COVID-19 pandemic took a toll on everyone’s lives, and patients with rare diseases (RDs) had to pay an even higher price. In this systematic review, we explored the impact of individuals RDs from psychological perspective. Using Preferred Reporting Items for Systematic Reviews Meta-Analyses (PRISMA) guidelines, retrieved articles Google Scholar, Scopus, PubMed databases focusing ‘COVID-19,’ ‘psychology,’ ‘rare diseases.’ Seventeen primary were identified (mainly continental Europe). results revealed effects disease patients, including increased anxiety, stress, depressive moods. This review also highlighted vulnerability reduced quality life during pandemic, as well importance telecare support critical interventions improving their well-being. There is urgent need multidisciplinary research stronger healthcare systems meet unique challenges who represent 3.5–5.9% global population.

Язык: Английский

Caring for People with Rare Diseases: A Systematic Review of the Challenges of, and Strategies for Dealing with, COVID-19 DOI Open Access
Elena Faccio, Matteo Bottecchia, Michele Rocelli

и другие.

International Journal of Environmental Research and Public Health, Год журнала: 2023, Номер 20(19), С. 6863 - 6863

Опубликована: Сен. 29, 2023

The COVID-19 pandemic took a toll on everyone’s lives, and patients with rare diseases (RDs) had to pay an even higher price. In this systematic review, we explored the impact of individuals RDs from psychological perspective. Using Preferred Reporting Items for Systematic Reviews Meta-Analyses (PRISMA) guidelines, retrieved articles Google Scholar, Scopus, PubMed databases focusing ‘COVID-19,’ ‘psychology,’ ‘rare diseases.’ Seventeen primary were identified (mainly continental Europe). results revealed effects disease patients, including increased anxiety, stress, depressive moods. This review also highlighted vulnerability reduced quality life during pandemic, as well importance telecare support critical interventions improving their well-being. There is urgent need multidisciplinary research stronger healthcare systems meet unique challenges who represent 3.5–5.9% global population.

Язык: Английский

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