Public interests as a basis for the genetic information obtaining and using without consent of the person DOI Open Access

Ю. С. Поваров

Juridical Journal of Samara University, Год журнала: 2021, Номер 7(2), С. 42 - 47

Опубликована: Окт. 19, 2021

The article systematically examines the collection, storage, dissemination and use of information about private life (including genetic data) without consent data subject under pretext having public interests. relevant legal provision (Article 152.2 Civil Code Russian Federation) is subjected to a thorough critical analysis from perspective of: a) identifying its relationship with norm Federation, which provides for general ban on uncoordinated transactions specified information; b) breadth uncertainty content due absence any differentiation regulation based type actions performed information, as well evaluative nature concept interest). Based thesis inexpediency unconditional refusal category interest, author emphasizes relevance formulation legislative fixation algorithms recognizing fact presence interest (taking into account provisions Article 55 Constitution Federation), establishment restrictions subject, target, organizational other in interest. Particular attention paid issue voluntary participation individuals planned passporting population Russia (it emphasized that ignoring principle cannot be explained only by referring

Язык: Английский

PERSONAL DATA AS A CIVIL LAW CATEGORY DOI Creative Commons

Валентина Дмитриевна РУЗАНОВА

The rule-of-law state theory and practice, Год журнала: 2022, Номер 18(3(69)), С. 77 - 83

Опубликована: Окт. 20, 2022

In the context of development information technologies, there is an urgent need to strengthen protection personal data, including by actively involving them in sphere civil law regulation and expanding application private enforcement mechanism. Purpose: substantiate possibility legal recognition data as a category identify main directions legislation this area. Methods: methods comparison, description, interpretation, formal dialectical logic, legal-dogmatic method interpretation norms. Results: research gives opportunity reveal characteristics which allow legally recognizing intangible benefits, acting objects rights; establish ratio right citizen his privacy independent, but intersecting concepts; role Federal Law «On Personal Data» determining basic conceptual apparatus field data; propose approach formation regime identifying general provisions establishing specific regimes.

Язык: Английский

Процитировано

3

Application of Genomic Data for Consumer Procedures in Banking DOI Creative Commons
Д. Г. Алексеева, I. E. Mikheeva, Д. В. Пономарева

и другие.

Lex genetica., Год журнала: 2024, Номер 3(1), С. 33 - 43

Опубликована: Май 3, 2024

The use of genomic information in banking – particular, when issuing consumer loans and identifying clients determines areas for the development legal regulation application information. establishment regime is important due to need designate responsible persons ensuring safety such In order avoid disputable situations, as well protect interests customers, present work advocates introduction certain amendments Federal Law ‘On Personal Data’ Russian Federation (2006). According proposed amendments, (genetic) should be classified personal data. It therefore becomes necessary increase responsibility recipient information, establish rules restoration a violated right. A suitable package measures aimed at sector will create an effective mechanism protecting customers provided credit institution purposes receiving or other services

Язык: Английский

Процитировано

0

Civil Regulation of Genomic Data Sharing DOI Creative Commons

I. Z. Ayusheeva

Lex genetica., Год журнала: 2024, Номер 3(2), С. 54 - 73

Опубликована: Авг. 3, 2024

The legal regulation of relations concerning genomic information has undergone several transformations over recent years in the Russian Federation. Not only is a universal approach towards such civil law, including regarding possibility sharing information, currently lacking, concept remains poorly defined as an object rights. A special regime for big data capable processing with help artificial intelligence technologies also lacking current legislation Considering great potential value all humanity, and need data, proposed balanced will ensure proper protection personal non-propertyand other Thus, present work sets out to identify specific features sharing. When determining balance between public private interests can be ensured by maintaining non-property rights, ensuring confidentiality obtaining consent dissemination accordance law. However, order do this, it necessary distinguish conceptually about particular person on basis which obtained. status human biological material should determined along regulations its obtain at same time defining regulating biobanks stored.

Язык: Английский

Процитировано

0

Handling of Family Genetic and Genomic Data: An International Legal Aspect DOI Creative Commons
A. V. Kubyshkin

Lex Russica, Год журнала: 2024, Номер 77(12), С. 84 - 93

Опубликована: Дек. 21, 2024

The paper attempts to analyze international legal acts that express approaches and principles aimed at regulating the handling of genetic genomic data, including family data. At level, processing data is regulated as part a more general management regulation. Meanwhile, there are documents devoted directly analyzes specific documents, in relation relevant level Russian Federation. Based on results study, conclusions drawn related possibility using domestic legislation. It noted most regulation expressed norms «soft law», which quite consistent with stage development considered social relations. All finding balance interests between different groups and, any case, public private (individual) interests. Rational use formulated organizations, taking into account Federation, will make it possible develop proposals for improving this area.

Язык: Английский

Процитировано

0

Actual Problems of Domestic Legal Regulation of the Collection, Storage and Transmission of Genomic Information in the Context of Modern Challenges DOI Creative Commons
Konstantin G. Balashov, Natalia V. Kravchenko

Proceedings of the Southwest State University Series History and Law, Год журнала: 2023, Номер 13(3), С. 42 - 57

Опубликована: Июнь 30, 2023

Relevance. The implementation of the international project "Human Genome" made it possible to decipher it, however, volume this information and possibilities its application both for universal (pandemic control) terrorist purposes (development biological weapons, targeted at a particular nation), especially in conditions political tension competition leadership, determine need forecast potential risks develop an adequate legal regulation. purpose study is assess current state security genomic obtained framework biomedical research, as well within public policy sphere security. It also necessary experience foreign countries field with view further use Russian practice. Objectives. Comprehensive regulation collection, storage, destruction allowed identify gaps Finding ways solve them objective study. Methodology. To achieve set were applied methods scientific knowledge: analysis, synthesis, system-analytical, formal-logical, system-legal by means which authors carried out analytical review domestic legislation, identified specifics relations under proposed solutions problems. Results are formulated suggestions changes acts legislation relating storage control access information, taking into account studied experience. Conclusion. existing regulations on do not provide protection from processing transfer third parties. For reason human data should be designated "sui generis", expanded, including formation federal agencies responsible ethical aspects genetic research.

Язык: Английский

Процитировано

0

Harmonization of health protection legislation and personal data legislation as a basis for the development of personalized medicine DOI Open Access
Valentina D. Ruzanova

Juridical Journal of Samara University, Год журнала: 2023, Номер 9(4), С. 38 - 45

Опубликована: Дек. 30, 2023

The article analyzes the health protection legislation and personal data in terms of their impact on implementation personalized medicine practice. It is concluded that since development associated with study a person’s individual data, first all, his genetic harmonization legal provisions medical activities information as type takes special significance. In relation to medicine, «head» law proposes consolidate general regarding use an individualized method, laws identify groups norms establish specifics using this method carrying out specific (direction) activity. As final conclusion, idea need harmonize substantiated, primarily regime information, well features medicine.

Язык: Английский

Процитировано

0

Public interests as a basis for the genetic information obtaining and using without consent of the person DOI Open Access

Ю. С. Поваров

Juridical Journal of Samara University, Год журнала: 2021, Номер 7(2), С. 42 - 47

Опубликована: Окт. 19, 2021

The article systematically examines the collection, storage, dissemination and use of information about private life (including genetic data) without consent data subject under pretext having public interests. relevant legal provision (Article 152.2 Civil Code Russian Federation) is subjected to a thorough critical analysis from perspective of: a) identifying its relationship with norm Federation, which provides for general ban on uncoordinated transactions specified information; b) breadth uncertainty content due absence any differentiation regulation based type actions performed information, as well evaluative nature concept interest). Based thesis inexpediency unconditional refusal category interest, author emphasizes relevance formulation legislative fixation algorithms recognizing fact presence interest (taking into account provisions Article 55 Constitution Federation), establishment restrictions subject, target, organizational other in interest. Particular attention paid issue voluntary participation individuals planned passporting population Russia (it emphasized that ignoring principle cannot be explained only by referring

Язык: Английский

Процитировано

0