Engaging Sexual and Gender Minority (SGM) Communities for Health Research: Building and Sustaining PRIDEnet

Journal of Community Engagement and Scholarship, Год журнала: 2024, Номер 16(2), С. 9 - 9

Опубликована: Апрель 3, 2024

Lesbian, gay, bisexual, transgender, queer, intersex, asexual, aromantic, and other sexual and/or gender minority (LGBTQIA+) communities are underrepresented in health research subject to documented disparities. In addition, LGBTQIA+ have experienced mistreatment, discrimination, stigma care settings. Effectively engaging individuals is critical developing representative data sets, improving provision policy, reducing However, little known about what engagement approaches work well with people. This paper describes the development of PRIDEnet (pridenet.org), a national network dedicated catalyzing community involvement built upon well-established community-engaged (CEnR) principles. PRIDEnet’s relationship building digital communications activities engage thousands LGBTQIA+-identified people across country offer multiple low-threshold ways participate specific studies shape research. These comprise CEnR infrastructure that engages on behalf projects, primarily The PRIDE Study (pridestudy.org) National Institutes Health’s All Us Research Program (joinallofus.org/lgbtqia). Our impact, results, lessons learned apply those underserved biomedical include: importance adaptable sustains transformational relationships long-term; implementing high-touch establish trust broad-reach build large sets; nurturing team diverse professionals lived experiences reflect be engaged; maintaining mechanisms exceed advice-giving result substantive contributions from beginning end.

Язык: Английский

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Models of Disability and Sexuality

Springer eBooks, Год журнала: 2024, Номер unknown, С. 1 - 21

Опубликована: Янв. 1, 2024

Язык: Английский

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Differences by Sexual Orientation in Patient-Centered Care Outcomes for Veterans Utilizing Primary Care Services at the Veterans Health Administration

LGBT Health, Год журнала: 2024, Номер 11(6), С. 455 - 464

Опубликована: Март 4, 2024

Purpose: This study examined the differences by sexual orientation in patient-centered care outcomes (including health experiences and health-related screening) of veterans utilizing Veterans Health Administration (VHA) primary care. Methods: VHA's adapted version Consumer Assessment Healthcare Providers Systems was used to compare experience services among minority (SM) heterosexual veterans. measures were dichotomized "always" versus "less" stratified SM status. Health-related screening dichotomous. Survey data weighted using provided sample weights. Descriptive statistics performed on sociodemographic characteristics. Logistic regression coefficients represented as adjusted odds ratios (aORs). A total 66,348 included analytic sample, which 2.9% (n = 1,935) identified SM. Sexual ascertained self-report Results: significantly younger (56.95 years vs. 63.43 years, p < 0.001), less likely report that their provider showed respect for what they had say (aOR: 0.76; 95% confidence interval [CI]: 0.61–0.95), asked about difficulties taking 0.81; CI: 0.67–0.96), listened carefully them 0.71; 0.57–0.87) compared Conclusion: differed between who sought VHA care, suggesting need increase trainings, may improve cultural competency promote a more welcoming inclusive environment.

Язык: Английский

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Current Issues in Intellectual and Developmental Disabilities: Families, Self-Advocates, and Intersectionality

Contemporary clinical neuroscience, Год журнала: 2024, Номер unknown, С. 31 - 49

Опубликована: Янв. 1, 2024

Язык: Английский

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Mental health care-seeking and barriers: a cross-sectional study of an urban Latinx community

BMC Public Health, Год журнала: 2024, Номер 24(1)

Опубликована: Ноя. 8, 2024

The Latinx community faces an increasing amount of mental health challenges and disparities in care. While the contributing factors are complex, there likely potential barriers related to connecting with support accessing care that can be addressed.

Язык: Английский

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Chronic Conditions Among Transgender Medicare Beneficiaries: Variation By Race/Ethnicity and Medicaid Dual-Enrollment

Disability and health journal, Год журнала: 2024, Номер 18(2), С. 101764 - 101764

Опубликована: Дек. 8, 2024

Язык: Английский

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Gender Diversity, Disability, and Well-Being: Impact of Delayed and Foregone Care Because of COVID-19

LGBT Health, Год журнала: 2023, Номер 11(3), С. 210 - 218

Опубликована: Дек. 7, 2023

Purpose: This study explored the impact of delayed and foregone care due to COVID-19 on well-being among disabled gender diverse adults.

Язык: Английский

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The role of metaverse on sexual health of people with disabilities: narrative review

International Journal of Impotence Research, Год журнала: 2023, Номер 36(7), С. 715 - 721

Опубликована: Дек. 21, 2023

Язык: Английский

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