A Qualitative Exploration of Patients’ Experiences of Living with Chronic Respiratory Diseases before and after Participating in a Pulmonary Rehabilitation Program at a Tertiary Hospital in Malawi, and Their Suggestions to Improve a Future Program DOI Creative Commons
Fanuel Meckson Bickton,

Talumba Mankhokwe,

Beatrice Chavula

и другие.

medRxiv (Cold Spring Harbor Laboratory), Год журнала: 2023, Номер unknown

Опубликована: Дек. 15, 2023

Abstract Background Community-based surveys suggest a substantial burden of chronic respiratory diseases (CRDs) in the Malawian population, causing significant morbidity and loss economic productivity. Pulmonary rehabilitation (PR) is an effective non-pharmacological intervention for people with CRDs, but there limited data on its feasibility acceptability Malawi. Objectives To explore experiences patients CRDs before after participating PR program at Queen Elizabeth Central Hospital (QECH), Blantyre, Malawi, their suggestions to improve future program. Methods Fourteen adult (eight females six males) presenting functionally limiting QECH were invited participate six-week Following completion, face-to-face semi-structured in-depth interviews participants conducted. Interviews audio-recorded transcribed verbatim. The transcripts anonymised thematically analysed using deductive approach. Results Ten adults (five five participated Their documented CRD diagnoses included obstructive pulmonary disease (COPD), asthma, post-tuberculosis lung disease, bronchiectasis. Five key themes emerged: (1) living PR, (2) (3) feedback conduct completed program, (4) (5) continuation/maintenance home. Participants reported experiencing improvements physical, psychological, social health associated participation. provision transport was considered facilitator completion. Realising gained benefits, willing continue exercising homes, albeit potential barriers including lack equipment. Conclusion improved participants’ perceived status well-accepted. Addressing related facilitated immediate implementation while providing challenge scaling sustainability beyond project duration. These findings support drive shifting care, rehabilitation, towards primary care community. Trial Registration Prospective; 27/08/2021; ISRCTN13836793

Язык: Английский

Unmet Diagnostic and Therapeutic Opportunities for Chronic Obstructive Pulmonary Disease in Low- and Middle-Income Countries DOI Creative Commons

K Florman,

Trishul Siddharthan, Suzanne L. Pollard

и другие.

American Journal of Respiratory and Critical Care Medicine, Год журнала: 2023, Номер 208(4), С. 442 - 450

Опубликована: Июнь 27, 2023

Chronic obstructive pulmonary disease (COPD) is a prevalent and burdensome condition in low- middle-income countries (LMICs). Challenges to better care include more effective diagnosis access affordable interventions. There are no previous reports describing therapeutic needs of populations with COPD LMICs who were identified through screening.

Язык: Английский

Процитировано

24
Barriers to Pulmonary Rehabilitation DOI
Carolyn L. Rochester

Respiratory Care, Год журнала: 2024, Номер 69(6), С. 713 - 723

Опубликована: Май 28, 2024

Pulmonary rehabilitation (PR) is one of the most effective therapies for chronic respiratory diseases, yet it significantly underutilized. There are several patient-related, geographic, societal, and health system-related barriers to PR. People with disease face a collectively high burden treatments including care provider visits, medications, oxygen other durable medical equipment, providers' recommendation undertake PR may be considered an added more than likely benefit. Transportation difficulties, lack insurance coverage, competing time priorities, low knowledge PR, perceived benefit, comorbidities, factors also pose obstacles participation in patients. Geographic availability heterogenous; United States, out-patient center-based programs often not available within close proximity patients' residence, posing access it. lacking altogether many areas; rural areas particularly affected. Existing poorly funded underresourced. Socioeconomic racial disparities influence likelihood receiving Also, professionals (HCPs) do refer their patients owing awareness its content benefits, patient candidacy, or referral process. A limited number multidisciplinary HCPs trained contributes Collectively, these multifaceted create unacceptable disparities. Strategies address urgently needed order enable individuals who need receive

Язык: Английский

Процитировано

5
Knowledge, attitudes and practices regarding pulmonary rehabilitation among patients with chronic respiratory diseases: a cross-sectional questionnaire-based study in a tertiary hospital in China DOI Creative Commons

Lin Su,

Lingling Wang,

Jie Ding

и другие.

BMJ Open, Год журнала: 2025, Номер 15(1), С. e085944 - e085944

Опубликована: Янв. 1, 2025

Objectives This study aimed to evaluate the knowledge, attitudes and practices (KAP) of patients with chronic respiratory diseases towards pulmonary rehabilitation. Design Cross-sectional, web-based questionnaire study. Setting Tertiary healthcare hospital in Taiyuan, Shanxi Province, China. Participants A total 511 were recruited from hospital’s outpatient inpatient departments. After data cleaning, 501 valid responses (98.04% response rate) analysed. aged 18 or older, able complete independently assistance included individuals diverse demographic backgrounds. Primary secondary outcome measures outcomes KAP scores related The assessed association between factors (age, gender, income, education, smoking status) using structural equation modelling (SEM). Results mean 1.26±2.85 for 30.46±3.63 34.58±5.55 practices. SEM analysis showed that knowledge directly influenced (β=−0.538, p<0.001) both (β=0.668, significantly Additionally, factors, such as monthly household type disease, educational level status associated variations (all p<0.05). Conclusions Patients demonstrated poor generally positive attitudes, moderate regarding Tailored interventions focusing on bridging gap promoting behavioural changes are essential improving rehabilitation engagement among disease patients. Trial registration number ChiCTR2400080271.

Язык: Английский

Процитировано

0
Acceptability of pulmonary rehabilitation in Malawi: a qualitative study DOI Creative Commons
Fanuel Meckson Bickton,

Talumba Mankhokwe,

Beatrice Chavula

и другие.

BMJ Open Respiratory Research, Год журнала: 2025, Номер 12(1), С. e002547 - e002547

Опубликована: Май 1, 2025

Background Pulmonary rehabilitation (PR) is an effective non-pharmacological intervention for people with chronic respiratory diseases (CRDs), but its acceptability in Malawi was unknown. Objectives To explore patients’ of PR at Queen Elizabeth Central Hospital, Blantyre, Malawi. Methods This a pre–post cohort study where participants were offered two times per week hospital-based programme 6 weeks, consisting endurance and strengthening exercises. Following completion, face-to-face semistructured in-depth interviews the conducted. Interview transcripts thematically analysed using deductive approach. Results 10 adults (five females five males) out 14 invited (~70% uptake) participated subsequent interviews. Five key themes emerged: (1) debilitating symptom experience CRD prior to PR; (2) positive impact on living CRD; (3) contextual design improved participants’ (4) one size does not fit all (5) challenges opportunities home-based PR. Participants reported experiencing improvements physical, psychological social health associated participation. The provision transport considered facilitator completion. Realising gained benefits, willing continue exercising their homes. Conclusion perceived status well-accepted. Addressing barriers related facilitated immediate implementation while providing challenge scaling sustainability beyond project duration. These findings support drive shifting care, including rehabilitation, towards primary care community. Trial registration number Prospective; 27 August 2021; ISRCTN13836793 .

Язык: Английский

Процитировано

0
Implementing an Evidence-Based COPD Hospital Discharge Protocol: A Narrative Review and Expert Recommendations DOI Creative Commons
Marc Miravitlles, Mohit Bhutani, John R. Hurst

и другие.

Advances in Therapy, Год журнала: 2023, Номер 40(10), С. 4236 - 4263

Опубликована: Авг. 4, 2023

Discharge bundles, comprising evidence-based practices to be implemented prior discharge, aim optimise patient outcomes. They have been recommended address high readmission rates in patients who hospitalised for an exacerbation of chronic obstructive pulmonary disease (COPD). Hospital is associated with increased morbidity and healthcare resource utilisation, contributing substantially the economic burden COPD. Previous studies suggest that COPD discharge bundles may result fewer hospital readmissions, lower risk mortality improvement quality life. However, evidence their effectiveness inconsistent, likely owing variable content implementation these bundles. To ensure consistent provision high-quality care reduce following we propose a comprehensive protocol, provide highlighting importance each element protocol. We then review used other areas understand how they affect outcomes, barriers implementing what strategies overcome barriers. identified four bundle items patient's from hospital, including (1) smoking cessation assessment environmental exposures, (2) treatment optimisation, (3) rehabilitation, (4) continuity care. Resource constraints, lack staff engagement knowledge, complexity population were some key inhibiting effective implementation. These can addressed by applying learnings on successful areas, such as practitioner education audit feedback. By utilising relevant strategies, more (cost-)effectively delivered improve discharged exacerbation.

Язык: Английский

Процитировано

9
Factors Related to the Implementation of Pulmonary Rehabilitation in Jordan: Perspective of Healthcare Professionals DOI
Adnan Wshah, Nisrin Alqatarneh, Saad Al‐Nassan

и другие.

Respiratory Medicine, Год журнала: 2024, Номер 231, С. 107728 - 107728

Опубликована: Июль 4, 2024

Язык: Английский

Процитировано

3
Delivering remote pulmonary rehabilitation in Bangladesh: a mixed-method feasibility study DOI Creative Commons
GM Monsur Habib, Md. Nazim Uzzaman, Roberto Rabinovich

и другие.

Journal of Global Health, Год журнала: 2025, Номер 15

Опубликована: Фев. 13, 2025

Abstract Background Pulmonary rehabilitation (PR) is an effective and essential component of care for the increasing number individuals with chronic respiratory diseases (CRDs). Despite benefits, it remains underutilised poorly accessible in low- middle-income countries (LMICs). We aimed to determine feasibility delivering PR Bangladesh at home because pandemic travel restrictions. Methods Aligned Medical Research Council framework development evaluation complex interventions, we recruited CRDs from Community Respiratory Centre, Khulna, a mixed-methods study. assessed their functional exercise capacity quality life before after eight-week course PR, conducted semi-structured interviews providers professional stakeholders by using topic guide aligned normalisation process theory (NPT) interpreting findings within its constructs. Results 51 out 61 referred patients range CRDs, whom 44 (86%) completed ≥70% course. Functional capacity, measured endurance shuttle walk test, improved 78% patients, 48% exceeding minimum clinically important difference (MCID). Health-related life, Chronic Obstructive Disease Assessment Test, more than MCID 83% patients. Through interviews, found that encountered challenges remote video supervision due unstable internet connections, forcing them resort telephone calls. The strength support NPT constructs varied; many participants understood appreciated role could make sense innovation (NPT-1), most were assessing potential service decide if was worthwhile (NPT-4). Participants not yet ready endorse or actively (NPT-2) operationalise (NPT-3) roll-out PR. Conclusions A programme, supported monitoring, feasible Bangladesh, but local evidence will be needed promote implementation.

Язык: Английский

Процитировано

0
Community-Based Pulmonary Rehabilitation in an Economically Deprived Area of Jodhpur, India: A Mixed-Methods Feasibility Trial DOI Creative Commons
Mahendra Thakor, Vishal Singh, James Manifield

и другие.

International Journal of COPD, Год журнала: 2025, Номер Volume 20, С. 473 - 478

Опубликована: Фев. 1, 2025

Язык: Английский

Процитировано

0
Exploring the perceptions of patients with chronic respiratory diseases and their insights into pulmonary rehabilitation in Bangladesh DOI Creative Commons
GM Monsur Habib, Md. Nazim Uzzaman, Roberto Rabinovich

и другие.

Journal of Global Health, Год журнала: 2024, Номер 14

Опубликована: Фев. 1, 2024

Chronic respiratory diseases (CRDs) require holistic management which considers patients' preferences, appropriate pharmacotherapy, pulmonary rehabilitation, and integrated care. We aimed to understand the perceptions of people with CRDs about their condition rehabilitation in Bangladesh.

Язык: Английский

Процитировано

2
Online interviews for qualitative health research in Africa: a scoping review DOI Creative Commons
Samuel Akyirem, Emmanuel Ekpor,

Gloria Ama Aidoo-Frimpong

и другие.

International Health, Год журнала: 2023, Номер 16(1), С. 4 - 13

Опубликована: Фев. 14, 2023

Abstract Online interviews can be powerful tools in global health research. In this article, we review the literature on use of and challenges associated with online research Africa make recommendations for future qualitative studies. The scoping methodology was used. We searched Medline Embase March 2022 articles that used internet-based as a data collection method. Following full-text reviews, included nine articles. found were typically conducted via Microsoft Teams, Zoom, Skype, WhatsApp, Facebook Messaging E-mail chats. because restrictions imposed by coronavirus disease 2019 pandemic need to sample participants across multiple countries or communities. Recruitment occurred online, characterised inaudible sounds, inability video options including people low income education. recommend researchers critically evaluate feasibility within particular African locality before fully implementing approach. Researchers may also collaborate community-based organisations help recruit more socioeconomically diverse potential excluding limited internet access.

Язык: Английский

Процитировано

4