medRxiv (Cold Spring Harbor Laboratory),
Год журнала:
2024,
Номер
unknown
Опубликована: Окт. 13, 2024
Abstract
Background
The
German
electronic
health
record
(EHR)
aims
to
enhance
patient
care
and
reduce
costs,
but
users
often
worry
about
data
security.
To
mitigate
disease-related
privacy
concerns,
for
instance,
surrounding
stigmatized
diseases,
we
test
the
effect
of
fact
sheets
(PFS)
-
a
concise
comprehensive
transparency
feature
on
increasing
EHR
usage.
Objective
We
investigate
whether
displaying
PFS
shortly
before
upload
decisions
must
be
made
mitigates
concerns
makes
uploads
more
likely.
Methods
In
an
online
user
study,
393
participants
interacted
with
randomly
assigned
medical
report
that
varied
systematically
in
terms
stigma
(high
vs.
low)
time
course
(acute
chronic).
They
were
then
asked
decide
EHR,
while
presentation
information
(PFS
no
PFS).
Results
results
show
that,
general,
behavior
is
negatively
influenced
by
(OR
0.130,
p<.001)
positively
when
given
4.527,
p<.001).
This
increase
was
particularly
pronounced
diseases
5.952,
p=.006).
Time
had
effect.
Conclusions
Our
demonstrate
PFSs
help
mitigating
related
diseases.
indicates
mainly
relevant
effective
increased
risk
perceptions,
they
do
not
hurt
other
users.
Thus,
implementing
can
likelihood
patients,
even
those
due
their
ultimately
equity.
That
is,
may
realize
benefits
such
as
efficient
healthcare
processes,
improved
treatment
outcomes,
reduced
costs
Trial
Registration
Deutsches
Register
Klinischer
Studien
DRKS00033652,
https://drks.de/search/de/trial/DRKS00033652
The
overturn
of
Roe
v.
Wade
has
taken
away
the
constitutional
right
to
abortion.
Prior
work
shows
that
period-tracking
apps'
data
practices
can
be
used
detect
pregnancy
and
abortion,
hence
putting
women
at
risk
being
prosecuted.
It
is
unclear
how
much
know
about
privacy
such
apps
concerned
they
are
after
overturn.
Such
knowledge
critical
designing
effective
strategies
for
stakeholders
enhance
women's
reproductive
privacy.
We
conducted
an
online
183-participant
vignette
survey
with
US
from
states
diverse
policies
on
Participants
were
significantly
apps,
as
access
by
law
enforcement
third
parties.
However,
participants
felt
uninformed
powerless
mitigation
practices.
provide
several
recommendations
awareness
toward
their
JMIR Human Factors,
Год журнала:
2024,
Номер
11, С. e52625 - e52625
Опубликована: Фев. 22, 2024
Background
The
rollout
of
the
electronic
health
record
(EHR)
represents
a
central
component
digital
transformation
German
care
system.
Although
EHR
promises
more
effective,
safer,
and
faster
treatment
patients
from
systems
perspective,
successful
implementation
largely
depends
on
patient.
In
recent
survey,
3
out
4
Germans
stated
that
they
intend
to
use
EHR,
whereas
other
studies
show
intention
technology
is
not
reliable
sufficient
predictor
actual
use.
Objective
Controlling
for
patients’
we
investigated
whether
disease-specific
risk
perceptions
related
time
course
disease
disease-related
stigma
explain
additional
variance
in
decisions
upload
medical
reports
EHR.
Methods
an
online
user
study,
241
participants
were
asked
interact
with
randomly
assigned
report
varied
systematically
terms
(high
vs
low)
(acute
chronic)
decide
it
Results
Disease-related
(odds
ratio
0.154,
P<.001)
offset
generally
positive
relationship
between
decision
2.628,
P<.001),
showed
no
effect.
Conclusions
Even
if
such
as
those
diseases
associated
social
may
deter
people
uploading
To
ensure
this
key
digitalized
system,
transparent
easy-to-comprehend
information
about
safety
standards
are
warranted
across
board,
even
populations
favor
using
The
electronic
health
record
(EHR)
is
integral
to
improving
healthcare
efficiency
and
quality.
Its
successful
implementation
hinges
on
patient
willingness
use
it,
particularly
in
Germany
where
concerns
about
data
security
privacy
significantly
influence
usage
intention.
Little
known
how
specific
characteristics
of
medical
patients'
intention
the
EHR.
Digital Government Research and Practice,
Год журнала:
2025,
Номер
unknown
Опубликована: Фев. 3, 2025
Citizen
trust
is
critical
for
effective
public
policy
implementation.
However,
according
to
a
recent
report
from
the
OECD,
only
39%
of
citizens
have
medium
or
high
in
government.
Among
others,
use
digital
technology
has
been
considered
foster
by
leveraging
transparency
government
data,
information,
decision-making
process.
The
purpose
this
scoping
review
provide
an
overview
relationship
between
digitalization
services
and
using
Arksey
O'Malley
methodological
framework.
Based
on
technology,
organization,
environment
(TOE)
framework,
individual,
aspect,
study
identifies
categorizes
112
distinct
constructs
mapped
across
five
key
contexts:
environment,
trust.
findings
help
improve
our
previously
limited
understanding
identifying
set
concepts
related
each
six
research
contexts
that
may
prove
fruitful
efforts
develop
theory
explaining
e-government
relationship.
Furthermore,
practical
it
provides
insights
administrators
policymakers
should
be
when
developing
policies
regarding
Frontiers in Digital Health,
Год журнала:
2025,
Номер
7
Опубликована: Март 7, 2025
Introduction
The
integration
of
Electronic
Health
Records
(EHRs)
offers
significant
potential
to
improve
patient
care
and
reduce
costs.
In
Germany,
every
will
be
provided
with
an
EHR
starting
January
2025.
However,
the
success
EHRs
depends
on
trust
usage.
Understanding
factors
that
shape
perceived
trustworthiness
is
crucial,
yet
EHR-specific
research
remains
limited.
Methods
To
explore
key
influencing
initial
trust,
30
German
participants
interacted
a
functionally
realistic
prototype.
Semi-structured
interviews
were
conducted
evaluate
its
suggest
improvements.
Results
Thematic
analysis
identified
five
themes:
Provider
Reputation,
User
Feedback,
Experience
Contents,
Functions,
Data
Control.
Discussion
Fostering
in
requires
attention
technical
features
contextual
factors.
Beyond
provider
reputation,
three
aspects
emerged
as
central:
(a)
professional
visual
user
experience
design
enhance
usability
signal
reliability;
(b)
accurate,
clear
content
foster
transparency;
(c)
empowerment
through
intuitive
data
control
accessible
support.
Transparent
communication
about
GDPR
compliance
further
strengthens
supports
adoption.
Germany's
tightly
regulated
environment,
clearly
conveying
security
standards,
providing
robust
support,
leveraging
social
proof
can
significantly
drive
adoption
digital
health
solutions.
International Journal of Medical Informatics,
Год журнала:
2025,
Номер
unknown, С. 105907 - 105907
Опубликована: Апрель 1, 2025
Mobile
health
(mHealth)
applications
have
revolutionized
healthcare
by
offering
accessible
and
efficient
services
through
mobile
devices.
However,
privacy
concerns
regarding
the
protection
of
sensitive
information
remain
a
significant
barrier
to
widespread
adoption.
This
study
investigates
factors
influencing
privacy-related
behaviours
among
mHealth
users
proposes
user-centric
model
address
these
concerns.
research
aims
identify
strategies
that
enhance
protections
in
while
maintaining
usability.
It
focuses
on
transparency,
user
autonomy,
trust
as
key
fostering
responsible
data-sharing
practices
encouraging
broader
An
online
survey
targeting
Australia
was
conducted
assess
relationships
between
policy
effectiveness,
perceived
benefits
risks,
trust,
privacy-enhancing
behaviours.
The
data
were
analysed
using
Partial
Least
Squares
Structural
Equation
Modelling
(PLS-SEM)
validate
proposed
test
hypotheses.
findings
highlight
clear
transparent
policies
increase
benefits,
such
personalized
insights.
detailed
may
also
user's
awareness
making
them
more
cautious.
Autonomy
emerged
critical
factor
for
building
trust;
who
feel
empowered
control
their
are
likely
positively
engage
with
platforms.
Trust
significantly
drives
behaviours,
active
management
settings.
risks
alone
did
not
deter
from
engaging
applications.
Effective
communication,
robust
security
measures,
user-friendly
features
identified
mitigate
highlights
need
balanced,
approach
Transparent
policies,
features,
empowering
controls
essential
adoption,
ensuring
secure
delivery.
BACKGROUND
The
proliferation
of
wearable
devices
and
advances
in
data
analytics
are
accelerating
the
adoption
personalized
digital
healthcare.
Patient-Generated
Health
Data
(PGHD),
created
recorded
directly
by
individuals,
plays
a
critical
role
this
transformation.
However,
willingness
to
share
such
sensitive
remains
limited
due
privacy
concerns,
perceived
risks,
uncertainty
about
use.
While
previous
studies
have
examined
factors
influencing
health
sharing,
most
focused
on
specific
patient
populations
lacked
comprehensive
analysis
psychological
social
determinants
among
general
public.
OBJECTIVE
This
study
aimed
examine
individuals'
applying
Privacy
Calculus
Communication
Management
(CPM)
theories,
with
particular
focus
literacy
interpersonal
trust.
METHODS
We
conducted
cross-sectional
using
from
2023
Intelligent
Information
Society
User
Panel
Survey,
nationally
representative
sample
4,518
Internet
users
Korea
aged
15–69.
Key
variables
included
(dependent),
risk
benefit,
(use,
understanding,
engagement),
trust,
control
variables.
Digital
was
measured
media
framework
modeled
as
latent
construct
structural
equation
modeling
(SEM).
SEM
performed
lavaan
lavaan.survey
packages
R
WLSMV
estimation
population
weights.
Hypothesis
9
tested
via
Wald
tests
assess
differential
effects
subcomponents,
mediation
were
also
estimated.
RESULTS
Of
respondents
(weighted
N
=
38.4
million),
55.8%
female,
largest
age
group
≤20.
average
2.73
5-point
scale.
revealed
that
negatively
affected
(β
–0.045,
P
.049),
while
benefit
0.046,
.024),
trust
0.073,
<
.001),
moral
motivation
0.309,
.001)
had
significant
positive
effects.
showed
no
direct
effect
–0.001,
.945),
but
indirect
0.035,
.038).
Interpersonal
indirectly
increased
reducing
0.045,
.001).
indicated
differences
subcomponents
their
(χ²
54.496,
.001);
“understanding”
strongest
effect.
No
subcomponent
total
CONCLUSIONS
Willingness
is
influenced
combination
risk,
motivation,
literacy,
understanding
emerged
key
drivers
through
paths.
These
findings
highlight
importance
trust-based
governance,
context-sensitive
consent,
education.
Future
research
should
incorporate
health-specific
tools
how
contextual
factors,
sensitivity
purpose
use,
influence
sharing
decisions.