Privacy Fact Sheets mitigate Disease-related Privacy Concerns and Facilitate Equal Access to the Electronic Health Record: Randomized Controlled Trial DOI Creative Commons
Niklas von Kalckreuth, Markus A. Feufel

medRxiv (Cold Spring Harbor Laboratory), Год журнала: 2024, Номер unknown

Опубликована: Окт. 13, 2024

Abstract Background The German electronic health record (EHR) aims to enhance patient care and reduce costs, but users often worry about data security. To mitigate disease-related privacy concerns, for instance, surrounding stigmatized diseases, we test the effect of fact sheets (PFS) - a concise comprehensive transparency feature on increasing EHR usage. Objective We investigate whether displaying PFS shortly before upload decisions must be made mitigates concerns makes uploads more likely. Methods In an online user study, 393 participants interacted with randomly assigned medical report that varied systematically in terms stigma (high vs. low) time course (acute chronic). They were then asked decide EHR, while presentation information (PFS no PFS). Results results show that, general, behavior is negatively influenced by (OR 0.130, p<.001) positively when given 4.527, p<.001). This increase was particularly pronounced diseases 5.952, p=.006). Time had effect. Conclusions Our demonstrate PFSs help mitigating related diseases. indicates mainly relevant effective increased risk perceptions, they do not hurt other users. Thus, implementing can likelihood patients, even those due their ultimately equity. That is, may realize benefits such as efficient healthcare processes, improved treatment outcomes, reduced costs Trial Registration Deutsches Register Klinischer Studien DRKS00033652, https://drks.de/search/de/trial/DRKS00033652

Язык: Английский

"I Deleted It After the Overturn of Roe v. Wade": Understanding Women's Privacy Concerns Toward Period-Tracking Apps in the Post Roe v. Wade Era DOI Creative Commons
Jiaxun Cao, Hiba Laabadli, Chase H Mathis

и другие.

Опубликована: Май 11, 2024

The overturn of Roe v. Wade has taken away the constitutional right to abortion. Prior work shows that period-tracking apps' data practices can be used detect pregnancy and abortion, hence putting women at risk being prosecuted. It is unclear how much know about privacy such apps concerned they are after overturn. Such knowledge critical designing effective strategies for stakeholders enhance women's reproductive privacy. We conducted an online 183-participant vignette survey with US from states diverse policies on Participants were significantly apps, as access by law enforcement third parties. However, participants felt uninformed powerless mitigation practices. provide several recommendations awareness toward their

Язык: Английский

Процитировано

12

Influence of Disease-Related Stigma on Patients’ Decisions to Upload Medical Reports to the German Electronic Health Record: Randomized Controlled Trial DOI Creative Commons
Niklas von Kalckreuth, Markus A. Feufel

JMIR Human Factors, Год журнала: 2024, Номер 11, С. e52625 - e52625

Опубликована: Фев. 22, 2024

Background The rollout of the electronic health record (EHR) represents a central component digital transformation German care system. Although EHR promises more effective, safer, and faster treatment patients from systems perspective, successful implementation largely depends on patient. In recent survey, 3 out 4 Germans stated that they intend to use EHR, whereas other studies show intention technology is not reliable sufficient predictor actual use. Objective Controlling for patients’ we investigated whether disease-specific risk perceptions related time course disease disease-related stigma explain additional variance in decisions upload medical reports EHR. Methods an online user study, 241 participants were asked interact with randomly assigned report varied systematically terms (high vs low) (acute chronic) decide it Results Disease-related (odds ratio 0.154, P<.001) offset generally positive relationship between decision 2.628, P<.001), showed no effect. Conclusions Even if such as those diseases associated social may deter people uploading To ensure this key digitalized system, transparent easy-to-comprehend information about safety standards are warranted across board, even populations favor using

Язык: Английский

Процитировано

5

Disease characteristics influence the privacy calculus to adopt electronic health records: A survey study in Germany DOI Creative Commons
Niklas von Kalckreuth, Markus A. Feufel

Digital Health, Год журнала: 2024, Номер 10

Опубликована: Янв. 1, 2024

The electronic health record (EHR) is integral to improving healthcare efficiency and quality. Its successful implementation hinges on patient willingness use it, particularly in Germany where concerns about data security privacy significantly influence usage intention. Little known how specific characteristics of medical patients' intention the EHR.

Язык: Английский

Процитировано

5

Demystifying the Relationship between Digitalization of Government Services and Public Trust: A Scoping Review DOI Creative Commons
Sose Raeinaldo Virnandes, Jun Shen, Elena Vlahu‐Gjorgievska

и другие.

Digital Government Research and Practice, Год журнала: 2025, Номер unknown

Опубликована: Фев. 3, 2025

Citizen trust is critical for effective public policy implementation. However, according to a recent report from the OECD, only 39% of citizens have medium or high in government. Among others, use digital technology has been considered foster by leveraging transparency government data, information, decision-making process. The purpose this scoping review provide an overview relationship between digitalization services and using Arksey O'Malley methodological framework. Based on technology, organization, environment (TOE) framework, individual, aspect, study identifies categorizes 112 distinct constructs mapped across five key contexts: environment, trust. findings help improve our previously limited understanding identifying set concepts related each six research contexts that may prove fruitful efforts develop theory explaining e-government relationship. Furthermore, practical it provides insights administrators policymakers should be when developing policies regarding

Язык: Английский

Процитировано

0

Trustworthiness of the electronic health record in Germany: an exploratory, user-centered analysis DOI Creative Commons
Niklas von Kalckreuth, Marvin Kopka, Christine Schmid

и другие.

Frontiers in Digital Health, Год журнала: 2025, Номер 7

Опубликована: Март 7, 2025

Introduction The integration of Electronic Health Records (EHRs) offers significant potential to improve patient care and reduce costs. In Germany, every will be provided with an EHR starting January 2025. However, the success EHRs depends on trust usage. Understanding factors that shape perceived trustworthiness is crucial, yet EHR-specific research remains limited. Methods To explore key influencing initial trust, 30 German participants interacted a functionally realistic prototype. Semi-structured interviews were conducted evaluate its suggest improvements. Results Thematic analysis identified five themes: Provider Reputation, User Feedback, Experience Contents, Functions, Data Control. Discussion Fostering in requires attention technical features contextual factors. Beyond provider reputation, three aspects emerged as central: (a) professional visual user experience design enhance usability signal reliability; (b) accurate, clear content foster transparency; (c) empowerment through intuitive data control accessible support. Transparent communication about GDPR compliance further strengthens supports adoption. Germany's tightly regulated environment, clearly conveying security standards, providing robust support, leveraging social proof can significantly drive adoption digital health solutions.

Язык: Английский

Процитировано

0

Mobile Applications for People Experiencing Homelessness DOI
Mateusz Smieszek

Опубликована: Янв. 1, 2025

Язык: Английский

Процитировано

0

Benefits for thee, not for me? mHealth engagement through the lens of privacy calculus theory and trust DOI Creative Commons

Georgios Tsirozidis,

Ulrik Bak Kirk, Michael A. Zaggl

и другие.

Behaviour and Information Technology, Год журнала: 2025, Номер unknown, С. 1 - 21

Опубликована: Апрель 3, 2025

Язык: Английский

Процитировано

0

Enhancing privacy in mHealth Applications: A User-Centric model identifying key factors influencing Privacy-Related behaviours DOI Creative Commons

Parisasadat Shojaei,

Elena Vlahu‐Gjorgievska, Yang-Wai Chow

и другие.

International Journal of Medical Informatics, Год журнала: 2025, Номер unknown, С. 105907 - 105907

Опубликована: Апрель 1, 2025

Mobile health (mHealth) applications have revolutionized healthcare by offering accessible and efficient services through mobile devices. However, privacy concerns regarding the protection of sensitive information remain a significant barrier to widespread adoption. This study investigates factors influencing privacy-related behaviours among mHealth users proposes user-centric model address these concerns. research aims identify strategies that enhance protections in while maintaining usability. It focuses on transparency, user autonomy, trust as key fostering responsible data-sharing practices encouraging broader An online survey targeting Australia was conducted assess relationships between policy effectiveness, perceived benefits risks, trust, privacy-enhancing behaviours. The data were analysed using Partial Least Squares Structural Equation Modelling (PLS-SEM) validate proposed test hypotheses. findings highlight clear transparent policies increase benefits, such personalized insights. detailed may also user's awareness making them more cautious. Autonomy emerged critical factor for building trust; who feel empowered control their are likely positively engage with platforms. Trust significantly drives behaviours, active management settings. risks alone did not deter from engaging applications. Effective communication, robust security measures, user-friendly features identified mitigate highlights need balanced, approach Transparent policies, features, empowering controls essential adoption, ensuring secure delivery.

Язык: Английский

Процитировано

0

Digital Literacy and Interpersonal Trust as Predictors of Willingness to Share Patient-Generated Health Data Among Korean Internet Users: A Cross-sectional Study Using Privacy Calculus and Communication Privacy Management Theories (Preprint) DOI

dongsu lee,

Won Seuk Jang

Опубликована: Апрель 20, 2025

BACKGROUND The proliferation of wearable devices and advances in data analytics are accelerating the adoption personalized digital healthcare. Patient-Generated Health Data (PGHD), created recorded directly by individuals, plays a critical role this transformation. However, willingness to share such sensitive remains limited due privacy concerns, perceived risks, uncertainty about use. While previous studies have examined factors influencing health sharing, most focused on specific patient populations lacked comprehensive analysis psychological social determinants among general public. OBJECTIVE This study aimed examine individuals' applying Privacy Calculus Communication Management (CPM) theories, with particular focus literacy interpersonal trust. METHODS We conducted cross-sectional using from 2023 Intelligent Information Society User Panel Survey, nationally representative sample 4,518 Internet users Korea aged 15–69. Key variables included (dependent), risk benefit, (use, understanding, engagement), trust, control variables. Digital was measured media framework modeled as latent construct structural equation modeling (SEM). SEM performed lavaan lavaan.survey packages R WLSMV estimation population weights. Hypothesis 9 tested via Wald tests assess differential effects subcomponents, mediation were also estimated. RESULTS Of respondents (weighted N = 38.4 million), 55.8% female, largest age group ≤20. average 2.73 5-point scale. revealed that negatively affected (β –0.045, P .049), while benefit 0.046, .024), trust 0.073, < .001), moral motivation 0.309, .001) had significant positive effects. showed no direct effect –0.001, .945), but indirect 0.035, .038). Interpersonal indirectly increased reducing 0.045, .001). indicated differences subcomponents their (χ² 54.496, .001); “understanding” strongest effect. No subcomponent total CONCLUSIONS Willingness is influenced combination risk, motivation, literacy, understanding emerged key drivers through paths. These findings highlight importance trust-based governance, context-sensitive consent, education. Future research should incorporate health-specific tools how contextual factors, sensitivity purpose use, influence sharing decisions.

Язык: Английский

Процитировано

0

Who is Trusted for a Second Opinion? Comparing Collective Advice from a Medical AI and Physicians in Biopsy Decisions After Mammography Screening DOI
Henrik Detjen,

Lars Densky,

Niklas von Kalckreuth

и другие.

Опубликована: Апрель 24, 2025

Язык: Английский

Процитировано

0