Conceptual framework of episodic disability in the context of Long COVID: Findings from a community-engaged international qualitative study

medRxiv (Cold Spring Harbor Laboratory), Год журнала: 2024, Номер unknown

Опубликована: Май 30, 2024

Abstract Background Increasing numbers of adults are living with the health-related consequences Long COVID. The Episodic Disability Framework (EDF), derived from perspectives HIV, characterizes multidimensional and episodic nature challenges (disability) experienced by an individual. Our aim was to determine applicability conceptualize among Methods We conducted a community-engaged qualitative descriptive study involving online semi-structured interviews. recruited who self-identified as COVID via collaborator community organizations in Canada, Ireland, United Kingdom, States. purposively for diversity age, gender identity, ethnicity, sexual orientation, time since initial COVID-19 infection. used interview guide informed EDF explore experiences disability COVID, specifically how were over time. group-based content analysis. Results Of 40 participants, median age 39 years; majority white (73%), women (63%), ≥1 year (83%). Consistent Framework, described episodic, characterized unpredictable periods health illness. Experiences consistent three main components Framework: A) dimensions (physical, cognitive, mental-emotional challenges, difficulties day-to-day activities, social inclusion, uncertainty); B) contextual factors, extrinsic (social support; accessibility environment services; stigma epistemic injustice) intrinsic (living strategies; personal attributes) that exacerbate or alleviate disability; C) triggers initiate episodes disability. Conclusions provides way guidance future measurement disability, rehabilitation approaches enhance practice, research, policy

Язык: Английский

---

‘I'm still here, I'm alive and breathing’: The experience of Black Americans with long COVID

Journal of Clinical Nursing, Год журнала: 2023, Номер 33(1), С. 162 - 177

Опубликована: Май 4, 2023

Abstract Aims and Objectives In this study, we aimed to characterize the impact of long COVID on quality life approaches symptom management among Black American adults. Background As a novel condition, qualitative evidence concerning symptoms their can inform refinement diagnostic criteria care plans. However, underrepresentation Americans in research is barrier achieving equitable for all patients. Design We employed an interpretive description study design. Methods recruited convenience sample 15 adults with COVID. analysed anonymized transcripts from race‐concordant, semi‐structured interviews using inductive, thematic analysis approach. followed SRQR reporting guidelines. Results identified four themes: (1) The personal identity pre‐existing conditions; (2) Self‐management strategies symptoms; (3) Social determinants health management; (4) Effects interpersonal relationships. Conclusion Findings demonstrate comprehensive ramifications lives also articulate how conditions, social risk factors, distrust due systemic racism, nature relationships complicate management. Relevance Clinical Practice Care that support access implementation integrative therapies may be best suited meet needs Clinicians should prioritize eliminating patient exposure discrimination, implicit bias, microaggressions. This particular concern patients who have are difficult objectively quantify, such as pain fatigue. No Patient or Public Contribution While perspectives experiences were focus not involved design conduct data interpretation, writing manuscript.

Язык: Английский

---

Episodic disability framework in the context of Long COVID: Findings from a community-engaged international qualitative study

PLoS ONE, Год журнала: 2025, Номер 20(2), С. e0305187 - e0305187

Опубликована: Фев. 27, 2025

Background Increasing numbers of adults are living with the health-related consequences Long COVID. The Episodic Disability Framework (EDF), derived from perspectives HIV, characterizes multi-dimensional and episodic nature challenges (disability) experienced by an individual. Our aim was to determine applicability conceptualize among Methods We conducted a community-engaged qualitative descriptive study involving online semi-structured interviews. recruited who self-identified as COVID via collaborator community organizations in Canada, Ireland, United Kingdom, States. purposively for diversity age, gender identity, ethnicity, sexual orientation, time since initial COVID-19 infection. used interview guide informed EDF explore experiences disability COVID, specifically how were over time. group-based content analysis. Results Of 40 participants, median age 39 years; majority white (73%), women (63%), ≥ 1 year (83%). Consistent Framework, described episodic, characterized unpredictable periods health illness. Experiences consistent three main components Framework: A) dimensions (physical, cognitive, mental-emotional challenges, difficulties day-to-day activities, social inclusion, uncertainty); B) contextual factors, extrinsic (social support; accessibility environment services; stigma epistemic injustice) intrinsic (living strategies; personal attributes) that exacerbate or alleviate disability; C) triggers initiate episodes disability. Conclusions provides way guidance future measurement disability, rehabilitation approaches enhance practice, research, policy

Язык: Английский

---

Social determinants of recovery from ongoing symptoms following COVID-19 in two UK longitudinal studies: a prospective cohort study

BMJ Public Health, Год журнала: 2025, Номер 3(1), С. e001166 - e001166

Опубликована: Янв. 1, 2025

Introduction Social gradients in COVID-19 exposure and severity have been observed internationally. Whether combinations of pre-existing social factors, particularly those that confer cumulative advantage disadvantage, affect recovery from ongoing symptoms following long COVID is less well understood. Methods We analysed data on self-perceived self-reported illness two UK community-based cohorts, Symptom Study Biobank (CSSB) (N=2548) TwinsUK (N=1334). Causal effects sociodemographic variables reflecting status prior to the pandemic were estimated with multivariable Poisson regression models, weighted for inverse probability questionnaire participation infection adjusted potential confounders. Associations between strata comprising sex, education level local area deprivation using intersectional multilevel analysis individual heterogeneity discriminatory accuracy (MAIHDA) approach. Further analyses associations experiences during pandemic. Results Gradients along lines MAIHDA predicted lowest female highest levels (CSSB: 55.1% (95% CI 44.0% 65.1%); TwinsUK: 73.9% 61.1% 83.0%)) male 79.1% 71.8% 85.1%); 89.7% 82.5% 94.1%)). not explained by differences prepandemic health. Adverse employment, financial, healthcare access personal also negatively associated recovery. Conclusions Inequalities likelihood observed, several months after coronavirus more likely individuals greater disadvantage

Язык: Английский

---

Stigma, Chronicity and Complexity of Living with Long Covid in Kenya

Culture Medicine and Psychiatry, Год журнала: 2025, Номер unknown

Опубликована: Апрель 5, 2025

Язык: Английский

---

Feasibility and preliminary efficacy of an online mindful walking intervention among COVID-19 long haulers: A mixed methods study including daily diary surveys

PLOS Digital Health, Год журнала: 2025, Номер 4(4), С. e0000794 - e0000794

Опубликована: Апрель 8, 2025

COVID-19 long haulers face profound psychosocial stressors (e.g., depression, anxiety, PTSD) and physical health challenges brain fog, fatigue). This study tests the feasibility initial impact of a digitally delivered mindful-walking (MW) intervention for improving wellbeing haulers. We recruited 23 participants via Facebook groups, between March November 2021, 4-week online MW (i.e., 2 mindfulness practice sessions per week), that was entirely through group. The assessed using mixed methods. Quantitative data were collected brief daily evening surveys 28 days) over period, measured affect, cognition, mindfulness, activity, engagement. Qualitative extracted from group’s Paradata participant feedback, engagement metrics, all social media interactions). Multilevel modeling employed statistical analysis pragmatic approach used qualitative analysis. reported high score (mean=4.93/7, SD=1.88), which comprised perceived usefulness, satisfaction, ease use. Those who engaged in MW, on any given day, frequently better moods with more positive affect (β=0.89, p<0.01), less negative (β=−0.83, higher cognitive ability (β=0.52, p<0.05), activity (β=0.41, p<0.05). Additionally, practiced consistently during levels momentary (β=0.3 p<0.01). Participants expressed satisfaction intervention, reporting benefits such as symptom management an overall improvement wellbeing. Despite small sample size, digital delivery our showed acceptability. Preliminary efficacy findings indicate improved mental among Larger-scale RCTs are needed future to improve robustness applicability findings.

Язык: Английский

---

Long-term Post COVID-19 Health and Psychosocial Effects and Coping Resources Among Severe and Critical COVID-19 Survivors in Central and Eastern Europe: Protocol for an International Qualitative Study (Preprint)

JMIR Research Protocols, Год журнала: 2024, Номер 13, С. e57596 - e57596

Опубликована: Авг. 22, 2024

There is a strong need to determine pandemic and postpandemic challenges effects at the individual, family, community, societal levels. Post-COVID-19 health psychosocial have long-lasting impacts on physical mental quality of life large proportion survivors, especially survivors severe critical COVID-19, extending beyond end pandemic. While research has mostly focused negative short- long-term few studies examined positive pandemic, such as posttraumatic growth. It essential study both post-COVID-19 acknowledge role resources available individual cope with stress trauma. This knowledge needed in understudied regions hit hard by region Central Eastern Europe. A qualitative approach could provide unique insights into subjective perspectives their experiences COVID-19 disease its lingering impact lives.

Язык: Английский

---

Psychosocial Aspects of the Lived Experience of Long COVID: A Systematic Review and Thematic Synthesis of Qualitative Studies

Health Expectations, Год журнала: 2024, Номер 27(5)

Опубликована: Окт. 1, 2024

ABSTRACT Background Despite increasing recognition of long COVID, the psychosocial impacts lived experience on individuals remain underexplored. This systematic review sought to fill this gap by identifying key themes that describe dimensions COVID. Objective The aim study is identify illustrating aspects individuals' Search Strategy Searches were conducted in multiple databases and grey literature sources for qualitative studies published between November 2019 June 2024. Inclusion Criteria Eligible involved adult participants self‐reporting needed provide data could be synthesised thematically. Data Extraction Synthesis extraction thematic synthesis at least two independent reviewers each stage. Quality appraisal was performed using Critical Appraisal Skills Programme tool. Results included 34 studies. Thematic yielded five themes: ‘Debilitation’, ‘Uncertainty’, ‘Sources Support’, ‘Meaning Making: Adjusting a New Normal’ ‘Experiences with Healthcare Services’. Individuals COVID reported experiencing physical, economic, social challenges. Uncertainty scepticism from others caused anxiety. Support healthcare services, friends online groups played an important role. Acceptance gratitude found meaningful adjusting new normal. Experiences services varied. Discussion Conclusions provides valuable insights into impact highlighting profound changes challenges face. should adopt holistic approach integrate support within their management strategies, improve overall patient outcomes.

Язык: Английский

---

Patient experiences with SARS-CoV-2: Associations between patient experience of disease and coping profiles

PLoS ONE, Год журнала: 2023, Номер 18(11), С. e0294201 - e0294201

Опубликована: Ноя. 20, 2023

Severe acute respiratory syndrome coronavirus 2, (SARS-CoV-2,) caused an influx of patients with disease characterized by a variety symptoms termed COVID-19 disease, some going on to develop post-acute syndrome. Individual factors like sex or coping styles are associated person's experience and quality life. differences in used manage related stress correlate physical mental health outcomes. Our study sought understand the relationship between symptoms, severity profiles.

Язык: Английский

---

Feasibility and preliminary efficacy of an online mindful walking intervention among COVID-19 long haulers: A mixed method study including daily diary surveys

medRxiv (Cold Spring Harbor Laboratory), Год журнала: 2024, Номер unknown

Опубликована: Янв. 29, 2024

Abstract Objective Mindful-walking (MW) intervention could be an effective strategy to address the psychosocial stressors and physical health challenges faced by COVID-19 long haulers. This study aims test feasibility of digitally delivering MW among haulers via social media assess its preliminary efficacy on enhancing wellbeing. Method We recruited 23 participants Facebook groups in March November 2021 for a 4-week online intervention, consisting mindfulness practices (2 sessions per week), delivered entirely through group. The was assessed using mixed methods. Quantitative data were collected 28-day brief daily evening surveys over 4 weeks period, including affect, cognition, mindfulness, activity, engagement. Qualitative extracted from Paradata (i.e., participants’ responses posts). Multilevel modeling employed statistical analysis pragmatic approach used qualitative analysis. Results mean score 4.93/7 ( SD= 1.88). models showed that uptake given day positively associated with positive affect β =0.89, p <0.01), perceived cognition =0.52, <0.05), activity levels =0.41, negatively negative =-0.83, <0.01). Total number days across period =0.3 reported satisfaction skill enhancement, symptom management well-being promotion. Conclusion digital delivery our high acceptability. Preliminary findings indicate improved mental wellbeing

Язык: Английский

---