“I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic DOI Creative Commons

Lara Burton,

Silvia Goss, Stephanie Sivell

и другие.

BMC Palliative Care, Год журнала: 2024, Номер 23(1)

Опубликована: Дек. 26, 2024

Abstract Background COVID-19 drastically affected healthcare services world-wide. In the UK, many cancer were overwhelmed as oncology staff reassigned, and diagnoses treatments delayed. The impact of these pressures on end-of-life care for patients with advanced their relatives is not well understood. Methods Secondary thematic analysis qualitative survey interview data, collected from family members close friends bereaved by cancer, part a national bereavement study (Survey N = 156; Interview 10). Results Four key themes identified: contact towards end life; Mixed experiences support members; Variable communication quality health social professionals; Prioritisation its patient care. Hospital was perceived more negatively than community in almost all areas, while charities district nurses appreciated most. Almost participants felt that detrimentally prioritised over relative/friend. Conclusions People uniquely pandemic-restrictions disruptions to services. As re-build post-pandemic, improvements palliative hospitals, investment into care, ensuring compassionate families must be prioritised, alongside preparedness future pandemics or similar events.

Язык: Английский

Prolonged Grief Disorder DOI
Naomi M. Simon,

M. Katherine Shear

New England Journal of Medicine, Год журнала: 2024, Номер 391(13), С. 1227 - 1236

Опубликована: Окт. 2, 2024

Процитировано

5
Prolonged grief reactions and help-seeking in bereaved adults during the COVID-19 pandemic DOI Creative Commons
Fiona Maccallum, Lauren J. Breen, Serra Ivynian

и другие.

Journal of Affective Disorders, Год журнала: 2025, Номер unknown

Опубликована: Янв. 1, 2025

Язык: Английский

Процитировано

0
Impact of the contextual factors regarding the COVID-19 pandemic on bereavement: an integrative review of the literature from a bioethical perspective DOI Creative Commons
Luciana Soares Rosas, Mary Rute Gomes Esperandio

Global Bioethics, Год журнала: 2025, Номер 36(1)

Опубликована: Янв. 29, 2025

The advent of the COVID-19 pandemic has profoundly transformed grief around world. What are impacts context factors regarding on dysfunctional symptoms grief? This is a study with qualitative approach, integrative review, whose article data collection was carried out in following databases: Biblioteca Virtual de Saúde (BVS), Portal Brasileiro Publicações e Dados Científicos em Acesso Aberto (Oasisbr), United States National Library Medicine (PubMed), Scientific Electronic (SciELO) and Web Science. Thirty-three articles were selected for analysis. studies showed different results when risk detailed individually. However, proved to be complex element that created vulnerability associated grieving. Bioethics presents itself as locus interdisciplinary discussion more profound understanding specificities and, based social political responsibility Protection protect vulnerable populations, it recommended mental health professionals who intentionally explore grieving process. suffering people bereaved during must publicly recognized, offering safe spaces reception sharing.

Язык: Английский

Процитировано

0
Prevalence and correlates of positive and negative psychological effects of bereavement due to COVID-19: A systematic review DOI
Lyanne Reitsma, Clare Killikelly,

H. Müller

и другие.

Journal of Affective Disorders, Год журнала: 2025, Номер unknown

Опубликована: Фев. 1, 2025

Язык: Английский

Процитировано

0
Rituals in Grief: Why Meaning Matters More than Numbers DOI
Jacques Cherblanc, Isabelle Côté,

Camille Mercure

и другие.

Journal of Loss and Trauma, Год журнала: 2025, Номер unknown, С. 1 - 22

Опубликована: Март 3, 2025

Язык: Английский

Процитировано

0
Caregiving burden, receipt of palliative care, and the use of bereavement support: secondary analysis of population-based data DOI Creative Commons
Maja de Brito, Lucy Selman, Natália Calanzani

и другие.

BMC Palliative Care, Год журнала: 2025, Номер 24(1)

Опубликована: Апрель 2, 2025

The levels of support needs among people bereaved due to cancer are high; however, bereavement services underutilised. Reasons unknown. We aimed examine the relationship caregiving burden and involvement palliative care with utilisation formal by family carers who died cancer. Secondary analysis population-based mortality follow-back study (QUALYCARE) relatives adults registered death an adult involved in caregiving. ran a multivariate logistic regression determine whether explain support. Out 523 members (66% women, Mage=59 (SD = 14), 43% spouses/partners, 41% children), 149 (28.8%) utilised (73.8% Mage=60 55% spouse/partner, 36% children). found higher grief intensity (measured Texas Revised Inventory Grief) than reported population norms. Bivariate confirmed hypothesised associations. However, these were not retained model. Utilisation was associated presence at moment (OR 1.769, 95%CI 1.044-2.994) (1.036, 1.015-1.058). Subjective experiences such as being present need for support, raising issue continuity into bereavement. Further research is warranted better understand complex relationships between caregiving, bereavement, role facilitating access

Язык: Английский

Процитировано

0
Prolonged grief disorder DOI
Clare Killikelly, Kirsten V. Smith, Ningning Zhou

и другие.

The Lancet, Год журнала: 2025, Номер unknown

Опубликована: Апрель 1, 2025

Язык: Английский

Процитировано

0
Trajectories of Prolonged Grief Disorder Severity after Loss during the COVID-19 Pandemic DOI Creative Commons
Lyanne Reitsma, Trudy Mooren, Joanne Mouthaan

и другие.

Journal of Loss and Trauma, Год журнала: 2025, Номер unknown, С. 1 - 24

Опубликована: Апрель 16, 2025

Язык: Английский

Процитировано

0
Grief and coping among relatives of patients who died of COVID-19 in intensive care during the height of the COVID-19 pandemic DOI Creative Commons
S. Rodríguez-Villar,

Elijah Oluwafemi Okegbola,

Juan Arévalo‐Serrano

и другие.

BJPsych Open, Год журнала: 2024, Номер 10(6)

Опубликована: Окт. 15, 2024

Background The grief of relatives patients who died COVID-19 in an intensive care unit (ICU) has exacted enormous toll worldwide. Aims To determine the prevalence probable prolonged disorder (PGD) at 12 months post-loss and beyond. We also sought to examine circumstances death during pandemic that might pose a heightened risk PGD, associations between PGD diagnosis, quality life social disconnection. Method conducted observational, cross-sectional multicentre study next kin those March 2020 December 2021. Participants were recruited from ICUs South-East London. Prolonged Grief Disorder Scale (PG-13-R), Quality-of-Life (QOLS) Oxford Grief-Social Disconnection (OG-SD) used. Results A total 73 assessed, all them over year after their loss. Twenty-five (34.2%; 95% CI 23.1–45.4%) ICU met criteria for PGD. Those had significantly worse (QOLS score mean difference 26; 17–34; P < 0.001) endorsed greater disconnection (OG-SD means 41; 27–54; 0.001). Conclusions findings suggest rates are elevated among ICU. This, coupled with experienced by meeting criteria, suggests need attend deprivations dysfunctions this population group.

Язык: Английский

Процитировано

1
A rapid review of the evidence for online interventions for bereavement support DOI Creative Commons
Anne Finucane, Anne Canny, Ally Pax Arcari Mair

и другие.

Palliative Medicine, Год журнала: 2024, Номер unknown

Опубликована: Окт. 15, 2024

Grieving is a natural process, and many people adjust with support from family friends. Around 40% of would benefit additional input. Online bereavement interventions may increase access to support. Evidence regarding their acceptability effectiveness emerging but needs be synthesised.

Язык: Английский

Процитировано

1