“I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic DOI Creative Commons

Lara Burton,

Silvia Goss, Stephanie Sivell

и другие.

BMC Palliative Care, Год журнала: 2024, Номер 23(1)

Опубликована: Дек. 26, 2024

Abstract Background COVID-19 drastically affected healthcare services world-wide. In the UK, many cancer were overwhelmed as oncology staff reassigned, and diagnoses treatments delayed. The impact of these pressures on end-of-life care for patients with advanced their relatives is not well understood. Methods Secondary thematic analysis qualitative survey interview data, collected from family members close friends bereaved by cancer, part a national bereavement study (Survey N = 156; Interview 10). Results Four key themes identified: contact towards end life; Mixed experiences support members; Variable communication quality health social professionals; Prioritisation its patient care. Hospital was perceived more negatively than community in almost all areas, while charities district nurses appreciated most. Almost participants felt that detrimentally prioritised over relative/friend. Conclusions People uniquely pandemic-restrictions disruptions to services. As re-build post-pandemic, improvements palliative hospitals, investment into care, ensuring compassionate families must be prioritised, alongside preparedness future pandemics or similar events.

Язык: Английский

Funeral directors’ experiences during the COVID-19 pandemic: a mixed method study DOI Creative Commons
Atle Dyregrov, Pål Kristensen, Anita Fjærestad

и другие.

Mental Health Religion & Culture, Год журнала: 2024, Номер unknown, С. 1 - 18

Опубликована: Авг. 29, 2024

To investigate the impact of COVID-19 pandemic on death rituals among funeral directors (FDs) (N = 134), we administered a questionnaire and conducted three focus group interviews 21). The merged results showed that FDs perceived significant disruptions to all but mostly memorials. Infection control, social distancing, constraints attendee numbers difficult prioritisation who be allowed into rituals, highly impacted grief bereaved their own ability convey care. Despite low burnout scores, found work life stressful, changed challenging amid still filled with meaning job satisfaction. Our recommendations include for spacious venues, prioritising efforts feasible memorials, maintaining stable distance restrictions, ensuring participation children easily left out groups, creating guide quantity offering digital support staff.

Язык: Английский

Процитировано

0

“I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic DOI Creative Commons

Lara Burton,

Silvia Goss, Stephanie Sivell

и другие.

Research Square (Research Square), Год журнала: 2024, Номер unknown

Опубликована: Апрель 23, 2024

Abstract Background COVID-19 drastically affected healthcare services world-wide. In the UK, many cancer were overwhelmed as oncology staff reassigned, and diagnoses treatments delayed. The impact of these pressures on end-of-life care for patients with advanced their relatives is not well understood. Methods Secondary thematic analysis qualitative survey interview data, collected from family members close friends bereaved by cancer, part a national bereavement study (Survey N = 156; Interview 10). Results Four key themes identified: contact towards end life; Mixed experiences support members; Variable communication quality health social professionals; Prioritisation its patient care. Hospital was perceived more negatively than community in almost all areas, while charities district nurses appreciated most. Almost participants felt that detrimentally prioritised over relative/friend. Conclusions People uniquely pandemic-restrictions disruptions to services. As re-build post-pandemic, improvements palliative hospitals, investment into care, ensuring compassionate families must be prioritised, alongside preparedness future pandemics or similar events.

Язык: Английский

Процитировано

0

Trajectories of DSM-5-TR Prolonged Grief Disorder Severity in the First Two Years After Loss During the COVID-19 Pandemic DOI Open Access
Lyanne Reitsma, Trudy Mooren, Joanne Mouthaan

и другие.

Опубликована: Июнь 25, 2024

Due to the presumed high risk for prolonged grief disorder (PGD) in people bereaved during COVID-19 pandemic, it is crucial examine how develops over time this population. This first study examining longitudinal symptom-profiles of PGD severity pandemic. We aimed identify latent trajectories DSM-5-TR and predictors thereof Dutch adults Latent class growth modeling was employed differential 266 on average 115 days prior when entering study. Participants completed a measure online (using Traumatic Grief Inventory-Self Report-Plus) at three time-intervals six months apart. Associations between class-membership socio-demographic, loss-related, health-related, trauma-related characteristics were examined using multinomial logistic regression. Three identified: Low/decreasing symptoms (74%), Mild/stable (18%), High/decreasing trajectory (8%). Closer kinship deceased, poorer self-rated health status, having mental increased likelihood belonging trajectories. provides insights found that either remained low/mild or eventually decreased time.

Язык: Английский

Процитировано

0

Spiritual Care for the Bereaved DOI
Bruce Rumbold, Samar Aoun

Опубликована: Янв. 1, 2024

Язык: Английский

Процитировано

0

Navigating grief in unprecedented times: risk factors in the wake of pandemic loss and end-of-life care DOI
Sara Albuquerque,

Giovanna Pennetta,

Alexandra Coelho

и другие.

Psychology Health & Medicine, Год журнала: 2024, Номер unknown, С. 1 - 14

Опубликована: Окт. 16, 2024

Coronavirus is an infectious disease that has left tens of millions deaths around the world, and which had social, economic, emotional, psychological consequences. To mitigate spread virus, several countries have adopted restrictive measures impacted way people experienced end-of-life death their loved one. This study aimed to identify variables associated with prolonged grief symptoms in context both pandemic-related losses unique challenges related care. An anonymous online survey was disseminated widely through various channels including local press, social media, professional networks hospitals. Socio-demographic information collected, as well loss (cause death, place care death) bereavement, on impact restrictions imposed by pandemic. The participants were 163 bereaved who lost a one received during pandemic Portugal. Most female, married, professionally active grandparents. A hierarchical multiple regression performed determine factors symptoms. results showed more less support, worsening financial situation, greater communicating deceased, deceas having hospital. early identification based these individuals at higher risk for could allow targeted interventions support services.

Язык: Английский

Процитировано

0

Wie ging es Trauernden in der Corona-Pandemie? Eine qualitative Studie DOI

Daniela Blank,

Klaus Baumann

Spiritual Care, Год журнала: 2024, Номер 13(3), С. 206 - 218

Опубликована: Окт. 24, 2024

Zusammenfassung Hintergrund: Die COVID-19-Pandemie führte zu Einschränkungen (Lockdown, Kontaktbeschränkungen, Maskierung, Restriktionen bei Bestattungen, etc.) für Angehörige von Sterbenden und Verstorbenen ihre Trauerprozesse. Wie erlebten sie diese Coronabedingungen? Wie, wem in welchen Kontexten wurde ihren Bedürfnissen, auch nach Begleitung Ritualen, begegnet? sehen die Trauernden dies zum Zeitpunkt des Interviews? Methode: Leitfadengestützte Online-Interviews mit 12 (Wohnort: Deutschland), denen jeweils ein oder mehrere während der Pandemie verstarben. Ergebnisse: Inhaltsanalyse brachte zehn Kategorien hervor, das subjektive Trauererleben beschreiben. legen neben belastenden Faktoren unterstützende dar – vor, dem Tod nahestehenden Person. Gesprächsthemen waren besonders Möglichkeit Abschiednehmen im Sterbeprozess, Ansprechpersonen, Beteiligung Mitgestaltung Bestattung, religiöse spirituelle Bedürfnisse Fragen, Einklang pandemiebedingter Maßnahmen inneren Wahrnehmung Trauer. Einige Trauernde stufen rückblickend individuellen Abschiedsprozesse positiv Dankbarkeit innerem Frieden trotz Einschränkungen. Schlussfolgerungen: Interviewten bestätigen Bild Beeinträchtigungen Belastungen ergänzen es durch Erfahrungen unterstützender Trauerprozessen, ihnen hindurch ihrer Trauer Resilienz halfen, sowohl Personal Pflegeeinrichtungen Seelsorgepersonen als gesellschaftliche Bedingungen, nicht „exkommunizierten“ (Ariès).

Процитировано

0

“I have never felt so alone and vulnerable” – A qualitative study of bereaved people’s experiences of end-of-life cancer care during the Covid-19 pandemic DOI Creative Commons

Lara Burton,

Silvia Goss, Stephanie Sivell

и другие.

BMC Palliative Care, Год журнала: 2024, Номер 23(1)

Опубликована: Дек. 26, 2024

Abstract Background COVID-19 drastically affected healthcare services world-wide. In the UK, many cancer were overwhelmed as oncology staff reassigned, and diagnoses treatments delayed. The impact of these pressures on end-of-life care for patients with advanced their relatives is not well understood. Methods Secondary thematic analysis qualitative survey interview data, collected from family members close friends bereaved by cancer, part a national bereavement study (Survey N = 156; Interview 10). Results Four key themes identified: contact towards end life; Mixed experiences support members; Variable communication quality health social professionals; Prioritisation its patient care. Hospital was perceived more negatively than community in almost all areas, while charities district nurses appreciated most. Almost participants felt that detrimentally prioritised over relative/friend. Conclusions People uniquely pandemic-restrictions disruptions to services. As re-build post-pandemic, improvements palliative hospitals, investment into care, ensuring compassionate families must be prioritised, alongside preparedness future pandemics or similar events.

Язык: Английский

Процитировано

0