How do patients with head and neck cancer and low skeletal muscle mass experience cisplatin-based chemoradiotherapy? A qualitative study DOI Creative Commons
Anouk W. M. A. Schaeffers,

Maartje A. van Beers,

Lot A. Devriese

и другие.

Supportive Care in Cancer, Год журнала: 2024, Номер 32(11)

Опубликована: Окт. 28, 2024

Abstract Background Patients with head and neck squamous cell carcinoma (HNSCC) face several physical, emotional, psychological challenges throughout treatment. Cisplatin-based chemoradiotherapy (CRT) is an effective but toxic treatment, increased risk for toxicities in patients low skeletal muscle mass (SMM). Consequently, these are anticipated to experience greater treatment-related difficulties. We aimed explore the experiences of HNSCC SMM regarding cisplatin-based CRT. Methods A descriptive qualitative study was conducted, interviewing seven 3 months after CRT using a topic guide. Thematic analysis semi-structured interviews create multi-dimensional understanding patients’ during Results Prior themes included pre-treatment information, expectations towards treatment trial, psychosocial circumstances, supporting network. During toxicities, impact, After reflection on period CRT, informal support from networks healthcare workers, ongoing toxicities. Conclusion Most as life-changing distressing life event cope through various strategies networks. Tailored counseling, ideally on-demand consultations, recommended. No differences were noted perceptions their cisplatin regimen.

Язык: Английский

Perceived burden and need for support among caregivers of cancer patients DOI Creative Commons
Gunhild M. Gjerset, Cecilie E. Kiserud, Torbjørn Wisløff

и другие.

Acta Oncologica, Год журнала: 2023, Номер 62(7), С. 794 - 802

Опубликована: Июль 3, 2023

The aims of this study were to examine (1) the perceived burden among caregivers and identify those in risk high (2) need for support associated factors.Cancer patients who participated an educational program at Montebello Center (MBC) Norway between May 2021 February 2022 asked invite a caregiver answer questionnaire. caregiving was assessed with Caregivers Reaction Assessment (CRA) that consists 24 questions scored from 1 (strongly disagree) 5 agree), covering five domains. A mean sum score calculated each domain. Higher subscale scores indicate higher levels burden, except esteem where indicates low burden. Need 13 questions.Of 464 invitations, 185 responded (response 40%), median age 58.0 years 58% male. Caregiver were: 2.6 (SD 1.03) Impact on schedule, 2.1 0.79) Lack family support, 0.76) health, 2.0 0.86) finances, 4.2 0.47) esteem. Female caregivers, younger, education, having comorbidities, caring recurrence cancer, shorter time since diagnosis measured individual subscales CRA. Most reported needs information about: late effects rehabilitation services peers professionals cope new situation. Younger, comorbidity cancer patient more needs.The results participating MBC report moderate however, numerous within several areas. Our findings be confirmed larger unselected group.

Язык: Английский

Процитировано

2

Caring the caregivers. An online psychological intervention for family caregivers of oncological palliative patients DOI Creative Commons
A. González,

Carmen Yélamos Agua,

Sofía Luque Suárez

и другие.

Psicooncología, Год журнала: 2024, Номер 21(1), С. 11 - 22

Опубликована: Апрель 11, 2024

Aim: analyze the effectiveness of an online delivered psychological intervention program for oncological palliative caregivers in order to reduce distress and caregiver burden. Methods: The was developed primary advanced cancer patients, with a life expectancy less than 6 months. consisted 4 weekly sessions. assessment instruments were Caregiver Emotional Distress Detection Scale Zarit’s Reduced applied at beginning end program. In addition, main worries categorized by Scale. Descriptive statistics Student’s t used. Results: 38 enrolled intervention, 81.6% whom women. Regarding degree kinship, 44.7% descendants patient. significantly reduced after intervention. Uncertainty remained worry both moments measurement. Before program, second most frequent suffering patient, while it about other family members. Conclusions: Carrying out this group proved be effective reducing emotional patients life. constant concern throughout relatives.

Язык: Английский

Процитировано

0

Informal caregiver burden among carers of bedridden elderly: a cross sectional study in North Kerala DOI Open Access

Anjala V. Sajeev,

C.T. John

International Journal of Community Medicine and Public Health, Год журнала: 2024, Номер 11(7), С. 2780 - 2786

Опубликована: Июнь 28, 2024

Background: In the cultural context of India, informal caregiving stands as foremost form support to elderly. This study investigates status caregiver burden and it’s psychological impact on caregivers bedridden elderly in rural north Kerala, India. The also delves into socio-demographic factors associated with well distress among family caregivers. Methods: A cross-sectional descriptive study. data was collected from (n=120) using assessment scale scale. Descriptive statistics inferential statistical tests were employed this Results: results reveal that female experience a higher compared male counterpart. Most mild moderate levels significant stress anxiety depression. Caregiver has difference type relationship care recipient duration care. Conclusions: implies there is need for multifaceted interventions alleviate address manifestations

Язык: Английский

Процитировано

0

Comprehensive Needs Assessment Tool for Informal Cancer Caregivers (CNAT-ICs): Instrument development and cross-sectional validation study DOI Creative Commons
Eranthi Weeratunga, Sampatha Goonewardena, Lalitha Meegoda

и другие.

International Journal of Nursing Studies Advances, Год журнала: 2024, Номер 7, С. 100240 - 100240

Опубликована: Сен. 19, 2024

Язык: Английский

Процитировано

0

How do patients with head and neck cancer and low skeletal muscle mass experience cisplatin-based chemoradiotherapy? A qualitative study DOI Creative Commons
Anouk W. M. A. Schaeffers,

Maartje A. van Beers,

Lot A. Devriese

и другие.

Supportive Care in Cancer, Год журнала: 2024, Номер 32(11)

Опубликована: Окт. 28, 2024

Abstract Background Patients with head and neck squamous cell carcinoma (HNSCC) face several physical, emotional, psychological challenges throughout treatment. Cisplatin-based chemoradiotherapy (CRT) is an effective but toxic treatment, increased risk for toxicities in patients low skeletal muscle mass (SMM). Consequently, these are anticipated to experience greater treatment-related difficulties. We aimed explore the experiences of HNSCC SMM regarding cisplatin-based CRT. Methods A descriptive qualitative study was conducted, interviewing seven 3 months after CRT using a topic guide. Thematic analysis semi-structured interviews create multi-dimensional understanding patients’ during Results Prior themes included pre-treatment information, expectations towards treatment trial, psychosocial circumstances, supporting network. During toxicities, impact, After reflection on period CRT, informal support from networks healthcare workers, ongoing toxicities. Conclusion Most as life-changing distressing life event cope through various strategies networks. Tailored counseling, ideally on-demand consultations, recommended. No differences were noted perceptions their cisplatin regimen.

Язык: Английский

Процитировано

0