Self-Reliance, Social Norms, and Self-Stigma as Barriers to Psychosocial Help Seeking Among Rural Cancer Survivors with Cancer-Related Distress DOI Creative Commons
Pamela B. DeGuzman, David L. Vogel, Veronica Bernacchi

и другие.

medRxiv (Cold Spring Harbor Laboratory), Год журнала: 2021, Номер unknown

Опубликована: Июль 16, 2021

Objectives Even when technology allows rural cancer survivors to connect with supportive care providers from a distance, uptake of psychosocial referrals is low. During our telemedicine-delivered intervention aimed at identifying high distress and connecting them care, fewer than 1/3 those accepted referral. The purpose this research was examine the reasons did not accept Methods We utilized qualitative descriptive design analyze data interviews conducted participants who had been offered referral during intervention. Interviews were 6 weeks following (n=14) 9 months after completion (n=6). Results Ultimately, none in study engaged provider, including originally for further care. When explaining their decisions, minimized distress, emphasizing self-reliance need handle on own. They expressed preference dealing via informal support networks, which often limited close family members. No endorsed public stigma as barrier accepting help, but several suggested that self-stigma associated being able own reason seeking Significance Rural survivors’ willingness may be mediated by cultural norm self-reliance, self-stigma. Interventions address benefit illumination these relationships well strength-based approach emphasizes positive aspects community individual self-affirmation.

Язык: Английский

Body Image Concerns in Patients With Head and Neck Cancer: A Longitudinal Study DOI Creative Commons
Mélissa Henry,

Justine G. Albert,

Saul Frenkiel

и другие.

Frontiers in Psychology, Год журнала: 2022, Номер 13

Опубликована: Март 24, 2022

Head and neck cancer (HNC) treatments are known to significantly affect functionality appearance, leading an increased risk for body image disturbances. Yet, few longitudinal studies exist examine in these patients. Based on a conceptual model, the current study aimed determine, patients newly diagnosed with HNC: (1) prevalence, level, course of concerns; (2) correlates upon diagnosis (pre-treatment) (3) predictors immediate post-treatment (4) association between concerns levels anxiety, depression, suicidal ideation, support (i.e., satisfaction from physician, social/family wellbeing, unmet needs), alcohol drug misuse.Two hundred twenty-three (participation rate = 72%), primary HNC were assessed using structured clinical interviews psychometric measures at three, 6 months after diagnosis. Primary outcome was 3-month, as it most salient disturbance. Multiple linear regression analyses conducted potential predictors, based model.Sixty-eight percent (n 148 218) presented some level concerns. Body baseline diagnosis, pre-treatment) related pre- post-treatment. Immediately 3 month follow-up), 89% 132 148) Correlates included: physical symptom burden, difficulties communication eating, coping denial, having had past anxiety When controlling sociodemographic medical variables, predicted by: image, neuroticism.This helps identify more susceptible experience disturbance following head cancer. Clinicians ought pay special attention neuroticism, may want target factors future preventive interventions.

Язык: Английский

Процитировано

37

Psychological Factors Related to Treatment Outcomes in Head and Neck Cancer DOI Creative Commons
Antti Mäkitie, Rasheed Omobolaji Alabi, Laura Pulkki-Råbäck

и другие.

Advances in Therapy, Год журнала: 2024, Номер 41(9), С. 3489 - 3519

Опубликована: Авг. 7, 2024

Patients with head and neck cancer (HNC) often demonstrate stress, distress, anxiety, depression, are at risk for suicide. These affect their quality of life (QoL) but less attention has been given to psychological variables that may impact response treatment. This study aims systematically review publications during 2013–2023 collate evidence on the effects HNC treatment outcomes. We searched Ovid Medline, PubMed, Scopus, Web Science articles examined factors related outcomes in patients HNC. There were 29 studies (5 before treatment, 2 during, 17 after, 5 covering whole management trajectory) including 362,766 patients. The either behavioral (adjustment coping strategy, unrealistic ideas, self-blame), cognitive (elevated psychiatric co-comorbidity), or emotional (distress, nervousness, fear disfigurement complications). It was found there a relationship between depression decreased survival Pretreatment pain an independent predictor large sample distress level approximately 54%, problems ranged 10 44%, while financial difficulties identified 54% Sixty-nine percent reported have used least one cost-coping strategy within 6 months after initiation. During post-treatment period, increased from 15% baseline 29%, recurrence among 35% Several predict QoL survivors. Distress encompasses physical burden diagnosis Routine screening early interventions target could improve survivors' QoL. A systematic standardized measurement approach is warranted homogenize these findings understand underlying relationships.

Язык: Английский

Процитировано

5

Self-reliance, Social Norms, and Self-stigma as Barriers to Psychosocial Help-Seeking Among Rural Cancer Survivors With Cancer-Related Distress: Qualitative Interview Study DOI Creative Commons
Pamela B. DeGuzman, David L. Vogel, Veronica Bernacchi

и другие.

JMIR Formative Research, Год журнала: 2022, Номер 6(5), С. e33262 - e33262

Опубликована: Март 28, 2022

Even when technology allows rural cancer survivors to connect with supportive care providers from a distance, uptake of psychosocial referrals is low. Fewer than one-third participants in telemedicine intervention for identifying high distress and connecting them accepted referral.The purpose this research was examine the reasons which did not accept referral.We utilized qualitative design address purpose. We interviewed who had been offered referral. Semistructured interviews were conducted 6 weeks later (n=14), structured 9 months (n=6). Data analyzed descriptively using an inductive approach.Ultimately, none (0/14, 0%) engaged provider, including those originally (0/4, further care. When explaining their decisions, minimized distress, emphasizing self-reliance need handle on own. They expressed preference dealing via informal support networks, often limited close family members. No endorsed public stigma as barrier accepting help, but several suggested that self-stigma associated being able own reason seeking care.Rural survivors' willingness referral may be mediated by cultural norm self-stigma. Interventions benefit illumination these relationships well strength-based approach emphasizes positive aspects community individual self-affirmation.

Язык: Английский

Процитировано

19

Novel Survivorship Paradigms in Head/Neck Cancer DOI

Maria Armache,

Alexis Larson,

Rachel Stemme

и другие.

Seminars in Radiation Oncology, Год журнала: 2025, Номер 35(2), С. 285 - 300

Опубликована: Март 14, 2025

Язык: Английский

Процитировано

0

Color Match Following Free Flap Surgery in Head and Neck Reconstruction: A Colorimetric and Aesthetic Analysis DOI
Sarah M. Dermody, Peter W. Kahng, Vishwanatha M. Rao

и другие.

Plastic & Reconstructive Surgery, Год журнала: 2023, Номер unknown

Опубликована: Июнь 6, 2023

Many options for free tissue transfer have been described head and neck reconstruction. Although functional outcomes remain paramount, aesthetic considerations such as color match can be equally consequential patient quality of life. It is important to understand differences in based on flap donor site

Язык: Английский

Процитировано

9

Psychosocial outcomes of human papillomavirus (HPV)‐ and non‐HPV‐related head and neck cancers: A longitudinal study DOI
Mélissa Henry,

Emily Arnovitz,

Saul Frenkiel

и другие.

Psycho-Oncology, Год журнала: 2021, Номер 31(2), С. 185 - 197

Опубликована: Сен. 7, 2021

Abstract Objectives Human papillomavirus (HPV) has prompted a need to further investigate how this new biomarker changes the head and neck cancer (HNC) psychosocial landscape. This study aimed to: (a) characterize sociodemographic, psychological, social profiles of patients with HPV‐positive versus ‐negative squamous cell carcinoma neck; (b) identify HPV status contributes anxiety depression (primary outcome), quality life (QoL), sexuality needs. Methods We conducted prospective longitudinal 146 newly diagnosed oral, oropharyngeal, nasopharyngeal, hypopharyngeal cancer. Seventy‐nine were 67 HPV‐negative. Patients completed self‐administered psychometric measures upon HNC 3‐month follow‐up, Structured Clinical Interviews for DSM Diagnoses. Results HPV‐negative tumors generally presented higher lower QoL immediately post‐HNC diagnosis (<2 weeks) compared cancers. A Major Depressive Disorder (MDD) negatively affected patients' levels only when was HPV‐positive. Immediately posttreatment, not associated outcomes. previous history suicidal ideation, cigarette smoking, depression, feeling close one's partner instead explanatory. Conclusion While present initially psychological distress, their vulnerability posttreatment indicates an equal support. Head clinics may better address MDD, prior health behavior change, relationships.

Язык: Английский

Процитировано

21

Screening for Distress and Health Outcomes in Head and Neck Cancer DOI Creative Commons
Bryan Gascon, Aliza A. Panjwani,

Olivia Mazzurco

и другие.

Current Oncology, Год журнала: 2022, Номер 29(6), С. 3793 - 3806

Опубликована: Май 24, 2022

Head and neck cancers (HNC) have higher rates of emotional distress than other cancer types the general population. This paper compares prevalence in HNC across various screening measures examines whether significant or are associated with cancer-related survival. A retrospective observational cohort design was employed, data collected from Distress Assessment Response Tool (DART) linkages to administrative databases 2010 2016. Descriptive were reported using multiple concurrently administered tools, including Patient Health Questionaire-9 (PHQ-9), Generalized Anxiety Disorders-7 (GAD-7), Edmonton Symptom Scale-revised (ESAS-r), MD Anderson Index-Head Neck module (MDASI-HN). Across measures, 7.8 28.1% sample clinically distress, PHQ-9 GAD-7 identifying lowest moderate/severe ultrashort screens within ESAS-r MDASI-HN performing equivalently. Cox hazards models used univariate multivariate survival analyses. ESAS depression (≥4), but not anxiety, increased risk mortality patient completion DART greater The findings underscore importance implementing routine for populations utility ultra-brief measures.

Язык: Английский

Процитировано

15

Experiences and perspectives of suffering in cancer: A qualitative systematic review DOI
Ayuk Cucuk Iskandar, Erna Rochmawati,

Rick Wiechula

и другие.

European Journal of Oncology Nursing, Год журнала: 2021, Номер 54, С. 102041 - 102041

Опубликована: Сен. 24, 2021

Язык: Английский

Процитировано

17

Barriers to accessing psycho-oncological support in head and neck cancer: A qualitative exploration of healthcare professionals’ perspectives DOI Creative Commons
Lorna Gurren, Eleanor O’Sullivan, Ivan Keogh

и другие.

European Journal of Oncology Nursing, Год журнала: 2022, Номер 58, С. 102145 - 102145

Опубликована: Апрель 23, 2022

Disease- and treatment-related consequences in Head Neck Cancer (HNC) can result psychological issues for which specialist support, dubbed psycho-oncology, is recommended. Health Social Care Professionals (HSCPs) function as a crucial link between survivors these services, through onward referral pathways. However, little known about HSCPs' perspectives on barriers to accessing psycho-oncology HNC. The current study sought investigate such perspectives.Eleven HSCPs from national cancer centres across Ireland were recruited using purposive sampling. A qualitative, cross-sectional research design was implemented utilising virtual semi-structured interviews. Interviews audio-recorded, transcribed, analysed inductive, reflexive thematic analysis.The researcher identified four themes relating access: Lack of Access Perceived Elitism Onward Referral; Communication Barriers; Stigma Associated with Mental Illness Psychological Services, Inadequate Signposting Advertising Existing Psycho-Oncology Services. These findings indicate that face multiple when attempting refer HNC services. Some relate survivors, others themselves, some professionals within services.By removing faced by HSCPs, may more readily pre-existing services the future. following assist barriers: increased inter-professional dialogue communication skills training; mental health stigma reduction campaigns targeted at wider society; signposting available in-service training HSCPs.

Язык: Английский

Процитировано

11

Effect of medical qigong therapy on distress, fatigue, and quality of life in head and neck cancer patients undergoing intensity-modulated radiation therapy: A single arm clinical trial DOI Creative Commons

Priyanka S. Sagaonkar,

Renu Pattanshetty

World Journal of Traditional Chinese Medicine, Год журнала: 2021, Номер 7(4), С. 427 - 435

Опубликована: Окт. 1, 2021

Background: Cancer of Head and Neck (HNC) is the 2 nd common cancer in India leading to around 8% global mortality. Intensity-modulated radiation therapy (IMRT) advanced method minimizing exposure adjacent normal structures but associated with higher fatigue indirectly elevating distress levels. Medical Qigong (MQ), a meditative mind has numerous health benefits. The purpose current study was investigate effect MQ on distress, fatigue, quality life HNC patients undergoing IMRT. Materials Methods: This experimental conducted 16 Hospitalized subjects IMRT aged 18–65 years. All performed Walk Cycle for 5 weekdays 4 weeks from initiation Scores Brief Fatigue Inventory (BFI), 6 min walk distance (6MWD), Functional Assessment Therapy-Head (FACT-HN) were documented at baseline end th week compared. Results: IBM SPSS Statistics version 23.0; Indian Windows used statistical analysis. majorly rural residents (62.5%) mean age group 47.68 ± 10.25 years tobacco chewing as prevalent habit (94%) maximum cases recorded stage III disease. pre post test score comparison serum cortisol, BFI 6MWD found high significance P = 0.001 while that total all components FACT HN be significant ≤ 0.05. Conclusion: effective managing levels thereby improving subjects.

Язык: Английский

Процитировано

15