Lived experiences of neurofibromatosis type 1 patients: Social life, stigma, and intervention strategies
Journal of Health Psychology,
Год журнала:
2023,
Номер
29(8), С. 811 - 824
Опубликована: Ноя. 6, 2023
Neurofibromatosis
type
1
(NF1)
is
a
neurogenetic
disorder
associated
with
visual-spatial
problems,
executive
dysfunction,
and
language
deficits,
making
patients
experience
social
isolation,
stigma,
anxiety,
depression.
Here,
we
explored
NF1
patients’
lived
experiences
by
conducting
semi-structured,
in-depth
interviews
21
16
care
providers.
The
thematic
analysis
uncovered
dimensions
of
lives
at
different
ecological
levels,
including
their
relationships
family,
friends,
teachers,
coworkers,
providers,
society.
Positive
life
(e.g.
familial
support
sacrifice,
responsibility,
self-sufficiency,
supportive
professors)
counter
negative
the
vulnerability
in
sexual
relationships,
interactions,
discriminatory
professors,
misconceptions
about
abilities,
appearance
bias,
internalized
violence,
low
self-esteem).
Adaptive
strategies
used
or
suggested
personal
network,
positive
reframing,
acceptance
bodies)
levels
psychological
support,
group
therapy,
public
awareness,
governmental
support)
were
identified.
Язык: Английский
Youth-caregiver relationship quality in residential youth care: Professionals’ perceptions and experiences
Journal of Social and Personal Relationships,
Год журнала:
2023,
Номер
41(4), С. 822 - 845
Опубликована: Ноя. 16, 2023
This
study
aimed
to
explore
the
perceptions
and
experiences
of
professionals
working
in
residential
care
(RC)
settings
(i.e.,
caregivers
directors)
about
youth-caregiver
relationship
quality
(YCRQ).
Method:
A
qualitative
was
developed
Portugal
including
15
(73.3%
women,
23–50
years)
directors
34–45
18
generalist
RC
units.
Data
were
collected
through
six
focus
groups
using
a
semi-structured
interview
script.
analyzed
following
content
analysis
approach
NVIVO
12
software.
Results:
Our
findings
revealed
that
concept
YCRQ
mainly
described
terms
good
qualities,
organizational
determinants
relationships
most
mentioned
both
by
social
context,
intervention
models
strategies).
Individual
characteristics
youth
staff
less
as
YCRQ.
These
provide
important
insights
for
practice.
Conclusions:
efforts
should
be
made
design
interventions
aim
improve
its
climate
so
with
necessary
support
resources
enable
them
enhance
positive
Язык: Английский
Organizational social context and academic achievement of youth in residential care: The mediating role of youth-caregiver relationship quality
Children and Youth Services Review,
Год журнала:
2022,
Номер
137, С. 106449 - 106449
Опубликована: Март 1, 2022
Язык: Английский
Future expectations of adolescents in Residential Care: The role of self-perceptions
Children and Youth Services Review,
Год журнала:
2022,
Номер
143, С. 106686 - 106686
Опубликована: Окт. 7, 2022
Язык: Английский
Közösségi média és auto-agresszió – interdiszciplináris kitekintés
Miskolci Jogi Szemle,
Год журнала:
2021,
Номер
16(5), С. 95 - 112
Опубликована: Янв. 1, 2021
A
közösségi
média
szerepe
a
mindennapokban
mint
kommunikációs
platform
és
információforrás
kiemelkedő.
Számos
pozitív
hatása
mellett
azonban
több
olyan
jellemzővel
is
bír,
melynek
következményei
használói
közösségre
károsak.
Ezek
egy
részére
jog
reagál,
bár
különböző
jogterületek
más-más
normasértéseket
szabályoznak.
tanulmány
elsősorban
az
autoagresszív
magatartásokra
fókuszál,
melyek
súlyosságuknál
fogva
kiemelkedő
veszélyességűek.
kutatás
kriminológiai
pszichológiai
aspektusból,
leíró,
összehasonlító,
esetelemző
módszerrel
arra
keresi
választ,
hogy
ezek
milyen
formái
(beleértve
kiber-öngyilkosságot
is)
találhatóak
meg
online
platformokon,
s
ennek
hatásai
lehetnek
fiatal
korosztályra.