International handbooks of quality-of-life, Год журнала: 2024, Номер unknown, С. 211 - 226
Опубликована: Янв. 1, 2024
Язык: Английский
British Journal of Learning Disabilities, Год журнала: 2025, Номер unknown
Опубликована: Апрель 22, 2025
ABSTRACT Background Women with intellectual disabilities face major barriers to healthcare access. This study explored the experiences of 120 women mild moderate in Chile and their interactions systems. Method A qualitative design was used, collecting data through semi‐structured interviews examine communication challenges, discrimination unmet support needs. Results Participants reported difficulties understanding medical terminology, limited time for questions a lack visual aids. They also experienced discrimination, including infantilization negative provider attitudes, which undermined autonomy. The absence tailored support, such as simplified materials personalized guidance, further hindered engagement services. Conclusions Findings highlighted systemic inequities influenced by gender disability biases. stressed need inclusive training accessible tools. Recommendations included aids, specialized navigation health education programs improve equitable
Язык: Английский
Процитировано
0
British Journal of Learning Disabilities, Год журнала: 2024, Номер unknown
Опубликована: Ноя. 12, 2024
ABSTRACT Background Women with intellectual disabilities confront distinct challenges as they age, compounded by cognitive and adaptive constraints. These encompass heightened health risks, barriers to social support susceptibility violence, underscoring the critical role of self‐determination in enhancing their quality life. Method This quantitative study utilised a scale based on Functional Model Self‐Determination assess levels 218 Chilean women aged 45 80 disabilities. The research also explored potential personal environmental factors influencing these levels. Findings Employed participants those supportive family environments demonstrated higher Moreover, without mental issues exhibited advanced skills self‐regulation, empowerment self‐realisation. Significant disparities were noted varying disability, types received socioeconomic status, highlighting necessity for tailored diversified systems. Conclusion Developing personalised programs that address individual contextual differences is crucial. Despite limitations, this emphasises urgency inclusive public policies aimed at eliminating cultural barriers, thereby fostering conducive community engagement autonomous decision‐making.
Язык: Английский
Процитировано
1
Siglo Cero, Год журнала: 2023, Номер 54(4), С. 49 - 64
Опубликована: Дек. 29, 2023
El paradigma de apoyos y el calidad vida se han transformado en guías fundamentales para los avances ámbito la discapacidad intelectual (DI). Con base una muestra 93 personas adultas con DI, analiza, desde un enfoque cuantitativo no experimental, relación entre las necesidades apoyo, aplicando escala INICO-FEAPS Intensidad Apoyos (SIS) cada constructo. Los principales resultados evidencian que existe fuerte e indirecta apoyos, también relevancia analizar dichos variables como grado discapacidad, sexo o nivel socioeconómico. La discusión permite inferir necesidad discutir nuevas estrategias torno a categorías autodeterminación inclusión social, elementos facilitadores integral contribuya al desarrollo programas sociales población DI.
Процитировано
2
Developmental Disabilities Network Journal, Год журнала: 2024, Номер 4(1)
Опубликована: Апрель 15, 2024
Although we do not have robust prevalence studies in the U.S., a recent meta-analysis estimated that 33.6% of individuals with intellectual and developmental disabilities (I/DD) mental health (MH) condition. We know this may be an underrepresentation because factors like diagnostic overshadowing. also people I/DD experience inequitable access to quality MH preventive care. This highlights chronic lack holistic, integrated care for I/DD, especially those who conditions. Consequently, increasing number crises suffer adverse consequences. These consequences range from negative outcomes difficulties accessing community-based services, prolonged boarding hospital emergency departments, placement at psychiatric settings without proper accommodations communication or disability-related needs, engagement law enforcement when behaviors are perceived as problematic public large. critical issues highlight need comprehensive, national center pulls together resources focusing on dual diagnosis support states all their system partners, most importantly families. The resource focused capacity guided by principles diversity, equity, inclusion is significant. paper outlines establishment Link Center funded Administration Community Living (ACL) led collective expertise following organizations unparalleled I/DD-MH leadership: National Association State Directors Developmental Disabilities Services (NASDDDS); Dually Diagnosed (NADD), Persons Intellectual Mental Health Conditions; Program (NASMHPD). three overarching goals increase U.S. equitably more effectively co-occurring cognitive, conditions: (1) systems change, (2) direct service workforce clinical development, (3) improved access. grant's steering committee, comprised entirely lived experience, serves essential rudder Center. Other efforts incorporated into grant include shared learning groups, identification other collaboration Substance Abuse (SAMHSA).
Язык: Английский
Процитировано
0
Siglo Cero, Год журнала: 2024, Номер 55(3), С. 71 - 91
Опубликована: Сен. 30, 2024
La autodeterminación es un constructo clave para garantizar el desarrollo de habilidades que permitan a personas con Trastorno del Espectro Autista (TEA) tomar control sus vidas. Sin embargo, estudio relacionadas la en adultos TEA sigue siendo limitado. Esta investigación busca examinar los niveles 189 entre 30 y 75 años, así como factores personales o ambientales relacionados estos niveles. Los datos se recopilaron utilizando una escala ad hoc desarrollada partir Modelo Funcional Autodeterminación. mayoría participantes tienen nivel bajo autodeterminación, especialmente lo respecta empoderamiento. Factores edad, tipo apoyo socioeconómico afectan También existe asociación inversa ciertas autodeterminación. Adoptar enfoque integral promueva puede mejorar significativamente calidad vida TEA. Esto implica no solo identificar influyen sino también diseñar intervenciones aborden las necesidades individuales contextuales cada persona
Процитировано
0
International handbooks of quality-of-life, Год журнала: 2024, Номер unknown, С. 211 - 226
Опубликована: Янв. 1, 2024
Язык: Английский
Процитировано
0