Barriers and facilitators to self-management in people living with a lower-grade glioma
Journal of Cancer Survivorship,
Год журнала:
2024,
Номер
unknown
Опубликована: Март 21, 2024
Self-management
can
have
clinical
and
quality-of-life
benefits.
However,
people
with
lower-grade
gliomas
(LGG)
may
face
chronic
tumour-
and/or
treatment-related
symptoms
impairments
(e.g.
cognitive
deficits,
seizures),
which
could
influence
their
ability
to
self-manage.
Our
study
aimed
identify
understand
the
barriers
facilitators
self-management
in
LGG.
We
conducted
semi-structured
interviews
28
LGG
across
United
Kingdom,
who
had
completed
primary
treatment.
Sixteen
participants
were
male,
mean
age
was
50.4
years,
time
since
diagnosis
8.7
years.
Interviews
audio-recorded
transcribed.
Following
inductive
open
coding,
we
deductively
mapped
codes
Schulman-Green
et
al.'s
framework
of
factors
influencing
self-management,
developed
illness.
Data
suggested
extensive
support
for
all
five
categories
('Personal/lifestyle
characteristics',
'Health
status',
'Resources',
'Environmental
'Healthcare
system'),
encompassing
18
self-management.
How
experience
many
these
appears
somewhat
distinct
from
other
cancers;
described
multiple,
often
co-occurring,
challenges,
primarily
knowledge
acceptance
incurable
condition,
impact
seizures
transport
difficulties,
access
(in)formal
support.
Several
on
a
continuum,
example,
sufficient
facilitator,
whereas
lack
thereof,
barrier
People
distinctive
experiences
wide-ranging
These
findings
will
improve
awareness
potential
challenges
faced
by
around
inform
development
interventions
this
population.
Язык: Английский
“Oh when’s your treatment ending?” “Never!” The unmet needs of cancer patients treated with immuno-, biological and precision therapies: a qualitative interview study.
European Journal of Oncology Nursing,
Год журнала:
2024,
Номер
73, С. 102696 - 102696
Опубликована: Сен. 23, 2024
Язык: Английский
Preoperative subjective impairments in language and memory in brain tumor patients
Frontiers in Oncology,
Год журнала:
2024,
Номер
14
Опубликована: Окт. 29, 2024
Background
Subjective
reports
can
reveal
relevant
information
regarding
the
nature
of
impairment
brain
tumor
patients,
unveiling
potential
gaps
in
current
assessment
practices.
The
co-occurrence
language
and
memory
impairments
has
been
previously
reported,
albeit
scarcely.
aim
this
study
is
therefore
to
understand
subjective
complaints
preoperative
state
patients
its
impact
on
Quality
Life
(QoL).
Methods
31
(12
LGG,
19
HGG)
underwent
a
semi-structured
interview
assess
deficits,
co-occurrences
between
dysfunction,
changes
QoL.
Group
subgroup
analyses
were
conducted
provide
general
grade
specific
data.
Results
48.4%
mentioned
reading,
writing,
conversation.
HGG
group
reported
all
three
these
(reading:
31.6%;
writing:
21.1%;
conversation:
26.3%),
while
LGG
only
described
reading
(25%)
conversation
(8.3%),
although
not
statistically
significant.
All
with
co-occurring
deficits
be
linked
reduced
QoL
(48.4%).
In
an
HGG,
number
was
slightly
higher
(52.6%)
than
(41.7%).
Conclusion
Language
co-occur
dysfunction
as
perceived
patients’
daily
life.
Patients
see
affecting
their
quality
Further
attention
dedicated
tasks
seems
necessary.
Язык: Английский