Experiences of parents of children with rare neurogenetic conditions during the COVID-19 pandemic: an interpretative phenomenological analysis

BMC Psychology, Год журнала: 2023, Номер 11(1)

Опубликована: Июнь 8, 2023

Abstract Background The Coronavirus disease 2019 (COVID-19) pandemic has impacted parental and child mental health wellbeing in the UK. This study aimed to explore experiences of parents children with rare neurological neurodevelopmental conditions a known or suspected genetic cause (neurogenetic) across first year Methods Semi-structured interviews were conducted 11 neurogenetic conditions. Parents recruited via opportunity sampling from CoIN Study, longitudinal quantitative exploring impact on families Interviews analysed using Interpretative Phenomenological Analysis. Results Four main themes identified: (1) “A varied wellbeing: detrimental ‘no big drama’”; (2) “Parental impact, changes, coping”; (3) “'The world had shut its doors that was that’: care social services during pandemic”; (4) “Time luck: abstract concepts central parents’ perspectives how they coped pandemic”. majority described experiencing an exacerbation pre-pandemic challenges due increased uncertainty lack support, minority reporting positive effects family wellbeing. Conclusions These findings offer unique insight into They highlight not pandemic-specific, will continue be highly relevant non-pandemic context. Future support should tailored needs implemented diverse future scenarios promote coping

Язык: Английский

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Changes in UK Parental Mental Health Symptoms over 10 months of the COVID-19 Pandemic

Опубликована: Июль 21, 2022

BackgroundThe threats to health, associated restrictions and economic consequences of the COVID-19 pandemic have been linked increases in mental health difficulties for many. Parents, particular, experienced many challenges such as having combine work with home-schooling their children other caring responsibilities. Yet, it remains unclear how parental has changed throughout or what factors may mitigated compounded impact on parents' health.MethodsWe examined monthly survey data from two UK-based longitudinal studies: COVID-19: Supporting Adolescents Children during Epidemics' (Co-SPACE) Parents Young (Co-SPYCE). Data 5576 parents/carers 2–17-year-old collected between April 2020 January 2021 was analysed using mixed-effect modelling latent class growth (mixture) modelling.ResultsParental stress depression, but not anxiety, were higher periods restrictions. This pattern most pronounced parents primary-school-aged children, those that worked at home had adults household. Being younger, reporting secondary below education, working out home, secondary-school-aged special education needs (SEN)/neurodevelopmental disorders (ND) further moderated whether, when symptoms changed. Although around three quarters reported consistently low symptoms, a substantial minority high increasing depression. The latter more likely be who younger than average, single adult household, pre-existing diagnosis child educational ND.ConclusionsThese findings emphasise different personal circumstances inequalities shaped affected by this unprecedented global highlight need support consideration meet families future.

Язык: Английский

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Experiences of parents of children with rare neurogenetic conditions during the COVID-19 pandemic: an interpretative phenomenological analysis.

Опубликована: Окт. 7, 2022

BackgroundThe Coronavirus disease 2019 (COVID-19) pandemic has impacted parental and child mental health wellbeing in the UK. This study aimed to explore experiences of parents children with rare neurological neurodevelopmental conditions a known or suspected genetic cause (neurogenetic) across first year MethodsSemi-structured interviews were conducted 11 neurogenetic conditions. Parents recruited via opportunity sampling from CoIN Study, longitudinal quantitative exploring impact on families Interviews analysed using Interpretative Phenomenological Analysis.ResultsFour main themes identified: (1) “A varied wellbeing: detrimental ‘no big drama’”; (2) “Parental impact, changes coping”; (3) “The world had shut its doors that was that’: care social services during pandemic”; (4) “Time luck: abstract concepts central understanding their experience”. The majority described experiencing an exacerbation pre-pandemic challenges due increased uncertainty lack support, minority reporting minimal positive effects family wellbeing.ConclusionsThese findings offer unique insight into They highlight are not pandemic-specific, will continue be highly relevant non-pandemic context. Future support should tailored needs identified this implemented diverse future scenarios promote coping wellbeing.

Язык: Английский

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Adolescents’ Strategies to Manage Psychopathology Symptoms: a Mixed Methods Study in a Community Sample

Research Square (Research Square), Год журнала: 2023, Номер unknown

Опубликована: Сен. 22, 2023

Abstract Adolescents' management of psychopathology symptoms is crucial for preventing diagnosed conditions, yet little known about adolescents’ specific strategies to do so. For instance, it remains unclear how adolescents manage worrying (symptom emotional problems) or lack focus hyperactivity/inattention). To address this gap, we created an innovative online tool surveying a community sample 218 aged 16 19. They shared they hyperactivity/inattention, conduct problems, and rated effectiveness their strategies. Qualitative inductive analysis uncovered 51 strategies, some mirroring established emotion regulation coping while others were novel. Interestingly, varied across symptoms, the most frequently used considered effective. These findings shed light on wide array adolescent-specific symptom-specific that find helpful. offer valuable insights designing prevention programs resonate with adolescents' unique lives needs.

Язык: Английский

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