A Middle-Range Theory of Social Isolation in Chronic Illness

International Journal of Environmental Research and Public Health, Год журнала: 2023, Номер 20(6), С. 4940 - 4940

Опубликована: Март 10, 2023

Chronic illnesses and social isolation are major public phenomena that drive health policy worldwide. This article describes a middle-range theory of as experienced by chronically ill individuals. Key concepts include disconnectedness, loneliness, chronic illness. Antecedents predisposing factors (e.g., ageism immigration) precipitating stigma grief). Outcomes psychosocial responses depression quality life), health-related behaviors (i.e., self-care), clinical cognitive function service use). Possible patterns in illness described.

Язык: Английский

---

Exploring the health consequences of armed conflict: the perspective of Northeast Ethiopia, 2022: a qualitative study

BMC Public Health, Год журнала: 2023, Номер 23(1)

Опубликована: Окт. 24, 2023

Abstract Background Conflict is a complicated topic with multidimensional consequences for community health. Its effects have broad pattern, starting from direct war-related morbidity and mortality caused by bullets bombs to indirect due the interruption of delivery preventive curative health services. This study aimed explore northern Ethiopian conflict in North Wollo zone, northeast Ethiopia, 2022. Methods descriptive qualitative was conducted May June 2022 on six conflict-affected Woredas north zone. A total 100 purposively selected participants, which included patients, pregnant women, elders, religious leaders, professionals, were interviewed using IDI FGD. The data entered, coded, analyzed Open Code version 4.03. Thematic analysis approach employed conduct interpretation. Data presented statistics form texts tables. Results findings indicate that has profound consequence population It resulted wide range consequences, ranging casualties, famine, disruptions supply chains forced displacement instances violence rape associated insecurity. also breakdown system causing distraction infrastructure, fleeing workers shortage medication, together insecurity lack transportation, greatly affected provision utilization Additionally, long-term such as destruction facilities, immunization services, posttraumatic stress disorders, lifelong disabilities. coping strategies utilized available traditional medicines home remedies, obtaining medications conflict-unaffected areas, implementing home-to-home healthcare services supplies. Conclusion Northern an impact both directly indirectly through conflict-related causalities health-supporting structures. Therefore, this recommends immediate rehabilitation interventions damaged infrastructure individuals.

Язык: Английский

---

There but not really involved: The meanings of loneliness for people with chronic illness

Social Science & Medicine, Год журнала: 2024, Номер 343, С. 116596 - 116596

Опубликована: Янв. 17, 2024

Loneliness is one of the most pressing and rapidly growing contemporary social challenges around world. Yet we still lack a good understanding how loneliness constituted experienced by those affected. We conducted semi-structured interviews with 40 people chronic illness who were experiencing to explore what means them it impacts in their daily lives. Drawing on ideas liquidity performativity, identify relational, temporal layers loneliness. Our analysis reveals interconnectedness participants’ lives, as well shifts orientation, transforms interpersonal relationships relationship self, contributing experiences Though participants described many conditions that restricted opportunities for participation, giving sense being left behind spectating life others, rhetoric problem responsibility individual was prominent. A narrative need perform connection emerged absence meaningful bonds others. argue normative ideals wellness positivity circulating communities society more broadly are implicated experience whom these exclude. conclude considering expansive representations live may be important reducing personal collective

Язык: Английский

---

The Lived Experience of Nurses in Conserving the Dignity of Patients With Life‐Limiting Illnesses

Nursing and Health Sciences, Год журнала: 2025, Номер 27(1)

Опубликована: Янв. 16, 2025

To explore the experiences of nurses in maintaining dignity patients with life-limiting illnesses. A phenomenological study was conducted 15 purposively selected who provide care for Colaizzi's naturalistic approach utilized to analyze data. The followed COREQ guidelines qualitative research reporting. Three themes emerged: (1) Establishing a therapeutic environment, (2) Respecting humanity patients, and (3) Strengthening spirituality patients. Building trust, providing compassionate care, motivating are integral establishing environment. Nurses emphasized enhancing patients' by encouraging religious rituals supporting positive interpretations illness from perspectives. Creating environment is fundamental dignified care. In addition, humanized critical components These findings have implications nursing practice, education, policy, highlighting need integrate into through spiritual/religious support.

Язык: Английский

---

Reactions, reality, and resilience in adults with Crohn’s disease: a qualitative study

Crohn s & Colitis 360, Год журнала: 2025, Номер unknown

Опубликована: Янв. 16, 2025

Abstract Background Crohn’s disease (CD) is a lifelong condition that poses unique challenges. This study reports findings from person’s perspective of living with CD to help enhance the understanding an individual’s specific care and support needs. Methods Semi-structured telephone interviews were conducted convenience sample adults recruited Newcastle Hospitals NHS Foundation Trust. Data analysed after data collection using thematic analysis. Results Forty-one (68% female) participants aged 49.1±12 years duration between 1 55 interviewed. Three overarching themes emerged, along 12 subthemes: (1) Reactions presenting symptoms, emotions, challenges at diagnosis; (2) Reality condition, seeking information, decision making, psychological challenges, experiencing symptoms/complications during remission impact on social life, education, employment, relationships; (3) Resilience involving emotional adaptations, strategies self-management, comparisons as means coping barriers resilience. Conclusions The results highlight complex health journey faced by people provide professionals greater insight into complexities facilitate more holistic approach planning care.

Язык: Английский

---

Workload-capacity imbalances and their impact on self-management complexity in patients with multimorbidity: a multicenter cross-sectional study

Annals of Medicine, Год журнала: 2025, Номер 57(1)

Опубликована: Янв. 17, 2025

Introduction Multimorbidity is increasing globally, emphasizing the need for effective self-management strategies. The Cumulative Complexity Model (CuCoM) offers a unique perspective on understanding based workload and capacity. This study aims to validate CuCoM in multimorbid patients identify tailored predictors of self-management.

Язык: Английский

---

Challenges of diagnosing and managing Addison’s disease in a resource-limited setting

BMJ Case Reports, Год журнала: 2025, Номер 18(2), С. e259945 - e259945

Опубликована: Фев. 1, 2025

This case from Tanzania involving a black woman in her 60s with Addison’s disease (AD) highlights the diagnostic and management challenges of this condition resource-limited setting. It underscores need for increased awareness, better facilities more accessible treatment options AD other developing countries. The also role junior, inexperienced medical staff, which is common Africa, contributing to delays diagnosis treatment. context crucial understanding complexities involved diagnosing managing such regions, where can often go unrecognised due overlapping symptoms conditions limited healthcare resources.

Язык: Английский

---

A mixed studies systematic review on the health and wellbeing effects, and underlying mechanisms, of online support groups for chronic conditions

Communications Psychology, Год журнала: 2025, Номер 3(1)

Опубликована: Март 15, 2025

Abstract This pre-registered systematic review aimed to examine whether online support groups affect the health and wellbeing of individuals with a chronic condition, what mechanisms may influence such effects. In September 2024, literature searches were conducted across electronic databases (Medline, Embase, PsycInfo, Web Science Google Scholar), pre-publication websites (MedRxiv PsyArXiv) grey websites. Qualitative quantitative studies included if they explored impact on outcomes condition. The Mixed Methods Appraisal Tool was used appraise quality studies. total 100 papers met inclusion criteria their findings presented in thematic synthesis. Health categorised as: physical health, mental life, social wellbeing, behaviour decision-making, adjustment. Mechanisms reported these related exchanging support, sharing experiences, content expression, comparison. User group characteristics also explored. suggest that can have positive behaviour, adjustment, inconclusive for life. However, there is possibility negative effect anxiety distress, particularly when exposed other members’ difficult experiences. Research comparing different features, as platforms, size, duration needed. particular, future research should be experimental overcome limitations some cross-sectional designs funded by National Institute Care Protection Emergency Preparedness Response. Pre-registration ID: CRD42023399258

Язык: Английский

---

Acceptance of illness and quality of life of patients under long-term home nursing care

Frontiers in Public Health, Год журнала: 2025, Номер 13

Опубликована: Март 31, 2025

Long-term home nursing care is for patients who do not qualify inpatient treatment, and various reasons are unable or unwilling to receive in long-term facilities. Patients receiving such of ages, with varying degrees disabilities that limit their independent functioning. Their condition caused by chronic diseases, traffic accidents genetic diseases. In many cases, a short period time they turn from being professionally, socially active people becoming dependent on third parties. Acceptance one's own illness can reduce the negative feelings associated it, allows one maintain self-esteem great importance subjective feeling life satisfaction. The aim this study was demonstrate whether relationship exists among respondents between level functional capacity, acceptance assessment authors conducted 240 under Subcarpathian Voivodeship Poland. used diagnostic survey as technique. research tool questionnaire containing questions sociodemographic data standardized tools: Barthel Scale, Illness Scale (AIS) Satisfaction Life (SWLS). Mann-Whitney U test Spearman's rho coefficient were statistical analysis. Statistical significance p ≤ 0.05 assumed. average score determined according AIS scale 16.11 ± 6.57. minimum group 8 pts., while maximum 40 pts. course analyses, it turned out only over 65 years age, satisfaction increased increased. correlation statistically significant (p < 0.001) showed clear strength association (Spearman's = 0.450). addition, greater be observed, but case, although 0.05) characterized weak 0.178). age has an impact care. younger patients, lower worse evaluation quality life. respondents' independence duration coverage have positive effect

Язык: Английский

---

Estudio fenomenológico sobre la experiencia vivida por mujeres con síndrome de ovario poliquístico en Chile

Revista Colombiana de Obstetricia y Ginecología, Год журнала: 2025, Номер unknown

Опубликована: Март 28, 2025

Objetivo: describir la experiencia vivida por mujeres con síndrome de ovario poliquístico (SOP) en zona central Chile. Materiales y métodos: estudio cualitativo enfoque fenomenológico interpretativo. Se realizaron entrevistas individuales a siete diagnóstico SOP. Las participantes fueron identificadas través informantes claves mediante un muestreo intencionado. La interpretación los datos se realizó análisis temático. Resultados: resalta el SOP como una condición negativa sus vidas. Los hallazgos este consolidaron dos categorías principales, las cuales hablan alrededor descubrir su lo que significa vivir Conclusión: es importante evaluar salud mental calidad vida adolescentes adultas deben recibir información adecuada sobre síndrome, opiniones tenerse cuenta hora decidir mejor forma manejarlo.

---