Towards the measurement of autistic burnout

Autism, Год журнала: 2023, Номер 27(7), С. 1933 - 1948

Опубликована: Янв. 13, 2023

Autistic burnout has been talked about by autistic adults for some time on blogs and in social media. Now, research describes fatigue, exhaustion other related symptoms experienced people. We need new ways to help identify burnout. In this study, we tested a questionnaire called the AASPIRE Burnout Measure, investigated things that are linked worse also trialled group of Severity Items made. Working with an researcher, made based published definitions (n = 141) who had completed online survey. found was connected masking depression. The Measure tool associated depression but not masking. It very accurate telling apart participants were currently experiencing versus those reporting their past experience. might have problems subscales adding together measure More work is needed how Our recent studies show people experience combination exhaustion, withdrawal concentration thinking. seems be stress daily lives. more understand difference between conditions experiences. develop assessment tools can

Язык: Английский

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The impact of COVID-19 on young people’s mental health, wellbeing and routine from a European perspective: A co-produced qualitative systematic review

PLoS ONE, Год журнала: 2024, Номер 19(3), С. e0299547 - e0299547

Опубликована: Март 20, 2024

Background The impact of the Covid-19 pandemic on young people’s (YP) mental health has been mixed. Systematic reviews to date have focused predominantly quantitative studies and lacked involvement from YP with lived experience difficulties. Therefore, our primary aim was conduct a qualitative systematic review examine perceived YP’s (aged 10–24) wellbeing across Europe. Methods findings We searched MEDLINE, PsycINFO, Embase, Web Science, MEDRXIV, OSF preprints, Google, voluntary sector websites for published 1 st January 2020 15 th November 2022. European were included if they reported data that could be extracted own perspectives their experiences related disruptions wellbeing. Screening, extraction appraisal conducted independently in duplicate by researchers difficulties (co-researchers). Confidence assessed using Evidence Reviews Qualitative Research (CERQual) approach. co-produced an adapted narrative thematic synthesis co-researchers. This study is registered PROSPERO, CRD42021251578. found 82 publications 77 unique synthesis. Most UK (n = 50; 65%); generated during first wave (March-May 2020; n 33; 43%). Across 79,491 participants, views, minoritised ethnicity sexual orientation, marginalised or vulnerable limited. Five synthesised themes identified: negative information restrictions wellbeing; education learning social connection prevent loneliness disconnection; emotional, lifestyle behavioural changes; support. Europe fluctuated pandemic. Challenges similar but coping strategies manage these challenges varied person, study, country. Short-term impacts consequences changing connection, day-to-day lifestyle, set-up. However, identified potential issues areas going forward, therefore stressed importance ongoing long-term support education, post-Covid-19. Conclusions Our map onto complex picture seen regarding health. comparatively little means there urgent need more high-quality research outside and/or about groups ensure all voices are heard everyone getting following prioritised decision-making processes self-care strategies, wellbeing, drive impactful, meaningful policy changes anticipation future systemic crisis.

Язык: Английский

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Career progression for autistic people: A scoping review

Autism, Год журнала: 2024, Номер 28(11), С. 2690 - 2706

Опубликована: Март 13, 2024

Many autistic people are unemployed. Of those who employed, many in roles that do not reflect their skills, qualifications and/or capabilities, and little is known about how progress throughout careers. This study aimed to review synthesise the existing evidence career progression for people. In total, 33 studies met criteria inclusion, though no directly explore topic. Our findings suggest underemployment common within population. Indirectly, we identified several potential barriers facilitators of Possible included personal (e.g. gaps education employment history), relational disclosing an autism diagnosis) organisational factors inadequate support). Adequate support was most frequently discussed facilitator. Future research should seek identify successful supports over long term ensure all able live – work ways meaningful them. Lay abstract Lots Even when they might be given fewer opportunities than non-autistic For example, assumptions people’s differences social communication mean as promotions. Indeed, know jobs lower abilities (known ‘underemployment’). We reviewed tell us something found lots want careers, but there way. told employer being autistic, some were opportunities. Research has also shown get enough history can make it difficult progress. suggested good mentors) help However, much evaluated people, which means useful is. find best allows

Язык: Английский

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Comparing Disclosure and Supports used by Higher-Education Students with Neurodivergent or Mental Health Conditions

Autism in Adulthood, Год журнала: 2025, Номер unknown

Опубликована: Фев. 19, 2025

Язык: Английский

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Brief Report: School support in career development for young adults with autism spectrum disorder

Опубликована: Фев. 1, 2025

Язык: Английский

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Synapse: A co-designed neurodivergent peer support programme for higher education settings

Autism, Год журнала: 2025, Номер unknown

Опубликована: Фев. 24, 2025

Transitioning to higher education can be challenging for neurodivergent students and they particularly vulnerable experiencing stress in this new environment, resulting levels of non-completion. To address issue, study details the co-design a support programme education. It used logic modelling workshop methodology identify short-term long-term outcomes, activities resources required implementation. The model was produced during that involved range stakeholders, including researchers, neurotypical disability service staff at an Irish university. qualitative data were analysed through thematic analysis three key outcomes generated from process: ‘connectedness’, ‘knowledge awareness neurodiversity’ ‘empowerment’. main desired by stakeholders included one-to-one mentoring group-based mentoring, which would allow establish friendships develop sense belonging within implementation factors identified providing dedicated space mentor pairing. A finding did not favour traditional peer labels ‘mentor’ ‘mentee’. Instead, preferred development symbiotic co-mentoring relationship between peers, with both participants being referred as ‘mentors’. Lay abstract Neurodivergent may require social aspects university life. Peer describes where more experienced student helps less advice, knowledge. is effective way students’ transition This wide students, researchers design called Synapse. visual representation proposed (i.e. model) stakeholders. showed or aims agreed upon audio recorded transcripts highlight conversation themes. Stakeholders stated wanted feel connected others belonging, also people learn about neurodiversity reduce stigma finally, empowered take control their lives have voice decision-making. two group mentoring. Uniquely, concerned terminology around particular terms mentee, it inferred unequal power dynamic relationship. believed Synapse should valued treated equally, regardless diagnosis experience. Therefore, all members paired

Язык: Английский

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A Comparison of Neurodivergent and Non-Neurodivergent Students’ Characteristics and Higher Education Experiences in Australia and New Zealand

Autism in Adulthood, Год журнала: 2025, Номер unknown

Опубликована: Апрель 14, 2025

Язык: Английский

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The Benefits of an Autism Peer Network in Higher Education

Neurodiversity, Год журнала: 2025, Номер 3

Опубликована: Апрель 1, 2025

Previous studies have shown that support for autistic university students is not always consistent, accessible, or adaptable to individual needs. Therefore, providing personalised social essential both academic success and wellbeing. The aim of this study was assess, the first time, perceived value potential benefits an autism peer network (APN) in a higher education setting using participatory approach. Eight were interviewed about their experience involvement with APN. These semi-structured interviews included questions related evaluating network, exploring personal comfort communication, understanding impact Data analysed Reflexive Thematic Analysis. theme ‘Sense community’ three subthemes namely sense belonging, identification validation. second ‘Safe space’ which space, physical virtual space. To conclude, creating can provide multiple ranging from inclusion (developing friendships, reducing loneliness) inclusive ultimately supports education.

Язык: Английский

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A Case Study of Factors That Affect Secondary School Mathematics Achievement: Teacher-Parent Support, Stress Levels, and Students’ Well-Being

International Journal of Environmental Research and Public Health, Год журнала: 2022, Номер 19(23), С. 16247 - 16247

Опубликована: Дек. 5, 2022

Psychology is one of the numerous factors that influences students' mathematics achievement, but studies on influence psychology student achievement are still limited. This study analyzes key affecting through teacher-parent support, stress, and well-being in learning mathematics. Data was collected via online questionnaires. Participants 531 students studying at five secondary schools Bandung, Indonesia. The data were analyzed using structural equations modeling approach SMART-PLS 3.0 software. results showed interest most significant factor achievement. Moreover, teachers have a more substantial effect than parents' which does not significantly reduce stress levels. academic emotional support parents reduces levels while increasing their feelings provides essential for school to improve level.

Язык: Английский

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Measuring and validating autistic burnout

Autism Research, Год журнала: 2024, Номер 17(7), С. 1417 - 1449

Опубликована: Апрель 25, 2024

Abstract Researchers have begun to explore the characteristics and risk factors for autistic burnout, but assessment tools are lacking. Our study comprehensively examined compared psychometric properties of unpublished 27‐item AASPIRE Autistic Burnout Measure (ABM), personal work scales Copenhagen Inventory (CBI) evaluate their efficacy as screening measures with a group 238 adults. Exploratory factor analyses (EFA) revealed 4‐factor structure ABM 2‐factor CBI scale (CBI‐P). Factorial validity dimensionality were four exploratory models which indicated unidimensional an overarching ‘Autistic Burnout’ construct, multidimensional CBI‐P comprising two subscales ‘Personal construct. Other reliability indicators included Spearman correlations, analysis variance, receiver operating characteristics, sensitivity, specificity, intra‐class correlations (ICC). The strongly correlated depression, anxiety, stress, fatigue. Unexpectedly, between burnout camouflaging, wellbeing moderate. Potential overlap depression fatigue was through EFA, supported convergent measure, while ICC mixed results. We concluded that Emotional Exhaustion subscale valid preliminary burnout. Testing larger more diverse samples is required further examine ABM, understand relationships masking.

Язык: Английский

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