The lived experience of long COVID: A qualitative study of mental health, quality of life, and coping

PLoS ONE, Год журнала: 2023, Номер 18(10), С. e0292630 - e0292630

Опубликована: Окт. 13, 2023

The majority of people who contract COVID-19 experience a short period symptomatic infection. However, symptoms persist for months or years following initial exposure to the virus in some cases. This has been described as long COVID. Little is known about lived this condition, it only recently emerged. study aimed explore experiences mental health, quality life, and coping among living with A sample 47 adults participated web-based focus groups. Separate groups were held 24 individuals pre-existing health conditions 23 without conditions. Data analyzed using codebook thematic analysis approach. Five themes identified integral COVID experience: Emotional Landscape Long COVID, New Limits Daily Functioning, Grief Loss Former Identity, COVID-related Stigmatization, Learning Cope Persisting Symptoms. These findings illustrate immense impact on life. Minimal differences found between those conditions, both substantially impacted by condition. Attention perspectives necessary inform future directions research clinical practice.

Язык: Английский

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Characterisation, symptom pattern and symptom clusters from a retrospective cohort of Long COVID patients in primary care in Catalonia

BMC Infectious Diseases, Год журнала: 2024, Номер 24(1)

Опубликована: Янв. 15, 2024

Abstract Background Around 10% of people infected by SARS-COV-2 report symptoms that persist longer than 3 months. Little has been reported about sex differences in and clustering over time non-hospitalised patients primary care settings. Methods This is a descriptive study cohort mainly non-hospitalized with persistence months from the clinical onset co-creation Long Covid Catalan affected group using an online survey. Recruitment was March 2020 to June 2021. Exclusion criteria were being admitted ICU, < 18 years age not living Catalonia. We focused on 117 gathered groups performed cluster analysis first 21 days infection, at 22–60 days, ≥ Results analysed responses 905 participants (80.3% women). Median between symptom questionnaire response date 8.7 General (as fatigue) most prevalent no sex, age, or wave although its frequency decreased (from 91.8 78.3%). Dermatological (52.1% women, 28.5% men), olfactory (34.9% 20.9% men) neurocognitive (70.1% 55.8% showed greatest sex. Cluster five clusters predominance Taste & smell (24.9%) Multisystemic (26.5%) baseline _Multisystemic (34.59%) Heterogeneous (24.0%) ≥3 The more men. Menstrual stable time, while transitions occurred . Conclusions both sexes three-time cut-off points. Major observed dermatological, symptoms. increase might suggest adaptation non-specific evolution condition which can hinder detection medical appointments. A carefully collection patients’ participation research may generate useful knowledge presentation

Язык: Английский

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Psychological factors associated with Long COVID: a systematic review and meta-analysis

EClinicalMedicine, Год журнала: 2024, Номер 74, С. 102756 - 102756

Опубликована: Июль 27, 2024

Язык: Английский

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Social Stigma in Children with Long COVID

Children, Год журнала: 2023, Номер 10(9), С. 1518 - 1518

Опубликована: Сен. 7, 2023

There is growing evidence that adults with Long COVID suffer from different sets of stigmata related to their condition. In children COVID, this aspect has never been investigated. This study aims investigate if also experience stigma.Children a previous SARS-CoV-2 infection evaluated at 3 month follow-ups in pediatric post unit were asked fill an online Stigma Scale survey before they assessed by pediatrician. Doctors unaware children's responses when performed diagnosis or full recovery infection, according the World Health Organization definition COVID. Responses scale then compared two cohorts children.224 patients responded questionnaire; 40 diagnosed Children significantly more frequently felt embarrassed about having (p 0.035), physical limitations < 0.001), valued less due 0.003), other peers 0.033), people behaved differently towards them because might be lying since 0.006), respected others 0.017), thought not real disease 0.007), developing sign weakness 0.008), and judge negatively 0.001).Children similar adults, are suffering condition,. These data may have implication should used public, policy makers, healthcare professionals regarding

Язык: Английский

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Social stigma during COVID-19: A systematic review

SAGE Open Medicine, Год журнала: 2023, Номер 11

Опубликована: Янв. 1, 2023

Objectives: Stigmatization was reported throughout the COVID pandemic for COVID-19 patients and close contacts. The aim of this systematic review to comprehensively examine prevalence impact stigmatization during pandemic. Methods: English articles were searched using online databases that included PubMed, Scopus, Embase, Web Science up 24 August 2022. A two-step screening selection process followed utilizing an inclusion exclusion criteria then data extracted from eligible articles. Preferred Reporting Items Systematic Reviews Meta-Analyses checklist followed, risk bias assessed Newcastle-Ottawa Scale. Results: Seventy-six studies inclusion. Twenty-two social stigma due infection with isolation being most commonly stigma. There 20 majority participants experienced infection, which as high 100% in two studies. Participants 16 blaming others second common type stigma, various other types such psychological pressure, verbal violence, avoidance, labeling. effect anxiety by depression, reduction socialization. Conclusion: Findings present have identified COVID-19-related generally focused on its prevalence, type, outcome. Greater awareness topic may assist improving public education pandemics well access support services individuals impacted stigmatization.

Язык: Английский

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Consumer Experience of an Australian Multidisciplinary Long COVID Clinic That Incorporates Personalised Exercise Prescription: A Qualitative Analysis

Health Expectations, Год журнала: 2025, Номер 28(2)

Опубликована: Фев. 28, 2025

In Australia, Long COVID is prevalent in 5%-10% of COVID-19 cases. Few multidisciplinary services exist to support recovery from COVID. To understand the consumer experience and acceptability a novel Australian Recovery Clinic, which incorporates personalised exercise prescription including respiratory peripheral strengthening carefully monitored cardiovascular training. Qualitative study; semi-structured interviews conducted by researcher external clinic delivery. A convenience sample participants who have completed Clinic. Major themes were identified inductive thematic analysis. Fifteen interviewed. 14/15 (93%) described model as acceptable or highly acceptable. Five core identified, (1) encouraging staff light-filled facilities recovery; (2) supervised pacing improve confidence with exercise; (3) peer group therapy augments (4) other augment recovery, (5) importance GP involvement connection participation. Suggestions for improvement included extending duration programme beyond 2 months, reducing wait times increasing staffing levels adjusting schedule broaden access options. The majority found that both pacing, would recommend it others. From perspective, Clinic aids alongside management through combination an individually tailored programme. was valued member our research team. She has been involved study design, analysis, interpretation. also editing manuscript provided advice ensure language used sensitive audience. As meets authorship guidelines, we her author this manuscript. We intend include consumers dissemination these results when published (e.g., social media). registered New Zealand Clinical Trials Registry, ACTRN12622000719730.

Язык: Английский

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Psychiatric and neuropsychiatric sequelae of COVID-19 within 2 years: a multinational cohort study

BMC Medicine, Год журнала: 2025, Номер 23(1)

Опубликована: Март 7, 2025

Язык: Английский

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Enhancing Pediatric Long COVID Care Through Telementoring: Insights From an ECHO Program

Clinical Pediatrics, Год журнала: 2025, Номер unknown

Опубликована: Март 12, 2025

Long COVID affects a significant number of children, yet clinician knowledge gaps and limited access to specialized care hinder effective management. With fewer than 20 pediatric long clinics in the United States, many families must travel distances for care. To address these challenges, ECHO (Extension Community Healthcare Outcomes) program was developed educate health professionals on evidence-based The engaged 94 participants from States Canada via weekly tele-education sessions, recruited through word mouth professional listservs. Pre-surveys (41% response rate) post-surveys (29% were sent attendees. Participants reported statistically improvements knowledge, confidence, competence, self-efficacy ( P < 0.001). This represents valuable initiative facilitate timely interventions empower primary community providers diagnosing, treating, managing populations.

Язык: Английский

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An Adaptive Pacing Intervention for Adults Living With Long COVID: A Narrative Study of Patient Experiences of Using the PaceMe app

Journal of Patient Experience, Год журнала: 2024, Номер 11

Опубликована: Янв. 1, 2024

Adaptive pacing (AP) is a self-management technique which seeks to balance energy and rest in individuals with chronic health conditions. can help people myalgic encephalomyelitis/chronic fatigue syndrome learn how manage their expenditure thereby reducing risk of post-exertional malaise (PEM) other symptoms. Given some symptom similarity, AP also has rehabilitation potential for experiencing disability from long COVID. The purpose this study was explore patient experiences an intervention (the "PaceMe" app) determine its value Twenty-five participants each took part two narrative interviews (at start point at 3-6 months). Data were analyzed using thematic analysis. Our analysis identified 4 themes relating key benefits the PaceMe app: (1) PEM management, (2) Support, (3) Validation, (4) Control Agency. By illuminating critical facts centring voices, these findings contribute better understanding needs those COVID highlight digital as vital component rehabilitation.

Язык: Английский

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Relationships Between Perceived Stigma and Coping Strategies in Patients with Multiple Sclerosis

Jundishapur Journal of Chronic Disease Care, Год журнала: 2024, Номер 13(3)

Опубликована: Март 6, 2024

Background: Patients with Multiple Sclerosis (MS) often experience varying levels of social stigma, which can impact their health. Objectives: This study aimed to explore the relationship between perceived stigma and coping strategies among MS patients. Methods: Conducted from December 2019 June 2020, this cross-sectional correlational involved 100 Participants were recruited a neurologic clinic in Qazvin, Iran, using convenience sampling. Data collection employed Lazarus Coping Strategies Questionnaire Korean version Stigma Scale for Chronic Illness 8-item (SSCI-8). completed these questionnaires at clinic. analysis utilized Pearson’s Spearman’s correlation coefficients. Results: The average age participants was 35.93 ± 7.20 years. Mean scores internal external stigmas 6.47 2.03 8.73 3.48, respectively. Problem-focused most commonly used by Pearson correlations revealed significant positive escape-avoidance (r = 0.391, P < 0.000), seeking support 0.215, 0.031), confronting 0.240, 0.016), self-controlling 0.222, 0.026). Significant associations also noted escape avoidance 0.322, 0.001) 0.016). Inverse found educational level -0.273, 0.006) duration -0.296, 0.003). Conclusions: sclerosis patients experiencing higher tended use more negative strategies. Implementing programs reduce promote effective may enhance physical psychological well-being

Язык: Английский

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