European Journal of Internal Medicine, Год журнала: 2023, Номер 120, С. 34 - 35
Опубликована: Дек. 5, 2023
Язык: Английский
Disability & Society, Год журнала: 2024, Номер unknown, С. 1 - 23
Опубликована: Март 26, 2024
Long Covid is an activity-limiting condition that causes significant long-term impairment can last up to one year or longer and impacts labour participation. 'Episodic disability' apt conceptual framework comprehend the fluctuating impairments of those with barriers they encounter when returning employment. Drawing on 65 narrative interviews, conducted between 2021 2022, from three UK studies involving adults Covid, this article demonstrates how participants experienced a 'spoiled identity', had their 'disability' status challenged due existing in-between (dis)ability classifications 'bodies-at-odds' working environment. The additional 'adjustment' 'administrative' work navigating disabling systems required balance workloads avoid relapse. Utilising 'episodic current sickness absence, return welfare policies are unfit for purpose, requiring take sole responsibility 'rehabilitative work' involved in
Язык: Английский
Процитировано
7
medRxiv (Cold Spring Harbor Laboratory), Год журнала: 2024, Номер unknown
Опубликована: Май 30, 2024
Abstract Background Increasing numbers of adults are living with the health-related consequences Long COVID. The Episodic Disability Framework (EDF), derived from perspectives HIV, characterizes multidimensional and episodic nature challenges (disability) experienced by an individual. Our aim was to determine applicability conceptualize among Methods We conducted a community-engaged qualitative descriptive study involving online semi-structured interviews. recruited who self-identified as COVID via collaborator community organizations in Canada, Ireland, United Kingdom, States. purposively for diversity age, gender identity, ethnicity, sexual orientation, time since initial COVID-19 infection. used interview guide informed EDF explore experiences disability COVID, specifically how were over time. group-based content analysis. Results Of 40 participants, median age 39 years; majority white (73%), women (63%), ≥1 year (83%). Consistent Framework, described episodic, characterized unpredictable periods health illness. Experiences consistent three main components Framework: A) dimensions (physical, cognitive, mental-emotional challenges, difficulties day-to-day activities, social inclusion, uncertainty); B) contextual factors, extrinsic (social support; accessibility environment services; stigma epistemic injustice) intrinsic (living strategies; personal attributes) that exacerbate or alleviate disability; C) triggers initiate episodes disability. Conclusions provides way guidance future measurement disability, rehabilitation approaches enhance practice, research, policy
Язык: Английский
Процитировано
5
Journal of Clinical Medicine, Год журнала: 2024, Номер 13(7), С. 1908 - 1908
Опубликована: Март 26, 2024
Background: Long COVID (LC) is a multisystem clinical syndrome with functional disability and compromised overall health. Information on LC severity types emerging in cross-sectional studies. This study explored the pattern consistency of long over time prospective sample. Methods: Participants completed condition-specific outcome measure C19-YRSm (Yorkshire Rehabilitation Scale modified version) at two assessment points. A cluster analysis for was undertaken both points using k-means partition method. Results: The included data 759 patients mean age 46.8 years (SD = 12.7), 69.4% females, duration symptoms 360 days (IQR 217 to 703 days). first revealed three distinct type clusters: mild (n 96), moderate 422), severe 241). Longitudinal 356 that remained consistent between assessments, 51% switching assessments. Conclusions: its kind demonstrate time, also types, indicating fluctuating nature LC.
Язык: Английский
Процитировано
4
Disability and Rehabilitation, Год журнала: 2024, Номер unknown, С. 1 - 10
Опубликована: Июль 24, 2024
Purpose To identify research priorities related to COVID rehabilitation from the perspectives of persons with lived experiences, clinicians, researchers, community organization and policy representatives.
Язык: Английский
Процитировано
4
Frontiers in Sociology, Год журнала: 2025, Номер 10
Опубликована: Фев. 5, 2025
Introduction Fatigue is a frequent somatic symptom impacting health and well-being lately receiving increased attention as long-term consequence of COVID-19. Emerging evidence suggests that persons afflicted with fatigue symptoms are often stigmatized discriminated because their still poorly understood not recognizable to others. Existing stigma research mainly focused on specific medical conditions domains overlooked intersectional discrimination – the negative amplification effect intersecting social identities. The purpose current study examine perceived in across different domains, also considering discrimination. Materials methods Semi-structured telephone interviews were carried out 19 patients clinically significant fatigue, variety identities like gender, history migration, occupational status. analyzed using structured qualitative content approach consensual coding. Results findings could be subsumed eight practices: (nonverbal) communication, emotional reaction, treatment, leadership responsibility, structural barriers, diagnostic terminology, scientific controversy. Participants reported overlapping experiences several intertwined domains: setting, work, social, public, at an overarching level. Thereby, especially setting level occurred great impact care protection. By applying approach, for certain identities, female gender low status became apparent. Discussion These need further researched addressed intervention strategies increasing resilience public knowledge reduce inequalities.
Язык: Английский
Процитировано
0
Journal of Global Health, Год журнала: 2025, Номер 15
Опубликована: Фев. 6, 2025
Post-viral issues following acute infection with coronavirus disease 2019 (COVID-19), referred to widely as long COVID, are associated episodic, persistent, and disabling symptoms affecting quality of life functional status. Evidence demonstrates a significant impairment course, but there remains limited empirical data profile determine the fluctuating symptom COVID. We devised 16-week, multicentre prospective cohort observation study changes in patient-reported outcomes, biological, physiological, psychological, cognitive parameters diagnosis and/or referral an established COVID clinic. Following baseline assessments, participants completed four face-to-face visits interspersed telephone consultations. Face-to-face included physiological assessment, outcome measures (PROMs), status, respiratory function. Telephone consultations involved PROMs profiling. Patient-reported outcomes improved from week sixteen, demonstrated between visit fluctuations frequency severity. Further findings highlight severity profiles extent status impairment. The presented here episodic relapsing nature should be used help characterise disability. They can inform development COVID-specific guidelines support services that adequately respond reductions patient well-being.
Язык: Английский
Процитировано
0
PLoS ONE, Год журнала: 2025, Номер 20(2), С. e0305187 - e0305187
Опубликована: Фев. 27, 2025
Background Increasing numbers of adults are living with the health-related consequences Long COVID. The Episodic Disability Framework (EDF), derived from perspectives HIV, characterizes multi-dimensional and episodic nature challenges (disability) experienced by an individual. Our aim was to determine applicability conceptualize among Methods We conducted a community-engaged qualitative descriptive study involving online semi-structured interviews. recruited who self-identified as COVID via collaborator community organizations in Canada, Ireland, United Kingdom, States. purposively for diversity age, gender identity, ethnicity, sexual orientation, time since initial COVID-19 infection. used interview guide informed EDF explore experiences disability COVID, specifically how were over time. group-based content analysis. Results Of 40 participants, median age 39 years; majority white (73%), women (63%), ≥ 1 year (83%). Consistent Framework, described episodic, characterized unpredictable periods health illness. Experiences consistent three main components Framework: A) dimensions (physical, cognitive, mental-emotional challenges, difficulties day-to-day activities, social inclusion, uncertainty); B) contextual factors, extrinsic (social support; accessibility environment services; stigma epistemic injustice) intrinsic (living strategies; personal attributes) that exacerbate or alleviate disability; C) triggers initiate episodes disability. Conclusions provides way guidance future measurement disability, rehabilitation approaches enhance practice, research, policy
Язык: Английский
Процитировано
0
Опубликована: Янв. 1, 2025
Процитировано
0
BMC Pulmonary Medicine, Год журнала: 2024, Номер 24(1)
Опубликована: Март 18, 2024
Abstract Background The characteristics of optimal virtual pulmonary rehabilitation (PR) for individuals with post-COVID syndrome (PCS) have not been identified. This study aimed to assess the feasibility, safety, and satisfaction associated a PR program exercise component delivered through group or self-directed sessions. Methods Adults PCS-respiratory symptoms were randomly assigned video conference (PR VC ) SD completed an (aerobic, strengthening, breathing exercises) three times/week eight weeks. sessions led by physiotherapist via Zoom, whereas exercised individually following pre-recorded video. Both groups received personalized recommendations, education related condition, weekly follow up call. Satisfaction was assessed patient survey. Lung function, dyspnea, fatigue, sit-to-stand capacity, health-related quality life, participation pre- post-PR. Results Fourteen PCS (49 ± 9 years, 86% females) 83% All participants satisfied information provided therapist frequency data submission, most duration (88% in ). A higher proportion (88%) level difficulty exercises compared (67%), 84% sample reported positive impact on their health. No adverse events reported. Significant changes capacity ( p = 0.012, Cohen’s r 0.67) questions fatigue 0.027, 0.58), neurocognitive 0.045, 0.53), autonomic 0.024, 0.60) domains DePaul Symptom Questionnaire short-form also found between groups. Conclusion Virtual feasible, safe, well-received PCS. Trial registration NCT05003271 (first posted: 12/08/2021).
Язык: Английский
Процитировано
3
Journal of General Internal Medicine, Год журнала: 2024, Номер unknown
Опубликована: Окт. 8, 2024
Abstract Background Exploring the experiences of Long COVID patients who face challenges with employment may inform improvements in how healthcare systems can provide holistic care for this patient population. Objective Understand perspectives about impact on and well-being among seeking COVID. Design Qualitative study involving one-on-one interviews. Participants Eligible participants were 18 years age or older, spoke English, self-reported as doing well daily life before having COVID-19, reported that COVID-19 was still a significant their three more months following an acute infection. Approach recruited from post-COVID recovery clinic at academic medical center. Interviews conducted August to September 2022. Key Results Among all ( N = 21), most described they not able work capacity equivalent norm pre-COVID-19. For those continued working after infection, effort energy required left little participate other activities made it difficult attend recommended appointments. financial impacts changes including loss income insurance, which compounded by high costs. Changes resulted emotional repercussions feelings self-identity fear judgement work. discussed issues surrounding access strategies address posed employment, learned providers cope symptoms efforts seek disability benefits workplace accommodations. Conclusions Patients due ability Healthcare support these connecting them assistance resources, facilitating appropriate mental health treatment, expediting accommodation requests.
Язык: Английский
Процитировано
3