Psychosocial factors in patients with kidney failure and role for social worker: A secondary data audit DOI Creative Commons
Micaella Sotera Hansen, Wubshet Tesfaye, Kamal Sud

и другие.

Journal of Renal Care, Год журнала: 2022, Номер 49(2), С. 75 - 83

Опубликована: Май 8, 2022

People with kidney failure face a multitude of psychosocial stressors that affect disease trajectory and health outcomes.To investigate factors affecting people before or at start replacement therapy (KRT) supportive palliative care (KSPC) phases illness to explore role social worker during the trajectory.We conducted secondary data audit patients either KRT (Phase 1) KSPC 2) had assessments between March 2012 2020 in an Australian setting.Seventy-nine individuals, aged 70 ± 12 years, least two assessments, one each illness. The median time evaluations Phase 1 2 was 522 (116-943) days. Adjustment treatment (90%) most prevalent issue identified 1, which declined 39% 2. Need for assistance (7.6%-63%; p < 0.001) carer support (7.6%-42%; increased significantly from There significant increase interventions by 2, including counselling (53%-73%; 0.05), provision education information (43%-65%; 0.01), referrals (28%-62%; 0.01).Adults nearing experience immense burden adaptive demands recognisably change course positive played nephrology warrants further investigation.

Язык: Английский

Association between recognition and help-seeking preferences and stigma towards people with mental illness DOI Creative Commons
Louisa Picco, Edimansyah Abdin,

Shirlene Pang

и другие.

Epidemiology and Psychiatric Sciences, Год журнала: 2016, Номер 27(1), С. 84 - 93

Опубликована: Дек. 8, 2016

Aims. The ability to recognise a mental illness has important implications as it can aid in timely and appropriate help-seeking, ultimately improve outcomes for people with illness. This study aims explore the association between recognition help-seeking preferences stigmatising attitudes, alcohol abuse, dementia, depression, obsessive-compulsive disorder (OCD) schizophrenia, using vignette-based approach. Methods. was population-based, cross-sectional survey conducted among Singapore Residents ( n = 3006) aged 18–65 years. All respondents were asked what they think is wrong person vignette who should seek help from. Respondents also administered Personal Perceived sub scales of Depression Stigma Scale Social Distance Scale. Weighted frequencies percentages calculated categorical variables. A series multiple logistic linear regression models performed separately by generate odd ratios 95% confidence intervals relationship preference, beta coefficients stigma recognition. Results. Correct associated less preference from family friends depression schizophrenia. Recognition increased odds endorsing seeking psychiatric hospital while there an psychologist psychiatrist depression. personal perceived OCD however, social distancing dementia. Conclusion. correctly informal sources, whilst health professionals services stigma. These findings re-emphasise need literacy reinforce potential benefits have individuals wider community Singapore.

Язык: Английский

Процитировано

72

Kindness, Listening, and Connection: Patient and Clinician Key Requirements for Emotional Support in Chronic and Complex Care DOI
Jane Bradshaw, Nazlee Siddiqui, David Greenfield

и другие.

Journal of Patient Experience, Год журнала: 2022, Номер 9

Опубликована: Янв. 1, 2022

Emotional support for patients is critical achieving person-centered care. However, the literature evidences an ongoing challenge in embedding emotional within current health services. This study aimed to investigate strategies embed from perspectives of and clinicians. exploratory qualitative that collected data through focus group discussions (FGDs) interviews 11 patients, 2 carers, 7 clinicians multi-disciplinary care teams outpatient complex chronic setting New South Wales, Australia. The FGDs were recorded, transcribed, thematically analyzed. Three main themes emerged experience both clinicians: (1) warmth kindness, (2) deep listening, (3) social connection process treatment. Clinicians' patients' shared these was key Practical including promoting understanding support, enhancing provider's capability deliver building patient's networking opportunities treatment processes discussed facilitate patient

Язык: Английский

Процитировано

22

Components of quality of life in hemodialysis patients from family caregivers’ perspective: a qualitative study DOI Creative Commons
Sima Hejazi, Meimanat Hosseini, Abbas Ebadi

и другие.

BMC Nephrology, Год журнала: 2021, Номер 22(1)

Опубликована: Ноя. 13, 2021

Abstract Background Patients with end-stage kidney disease experience serious complications which affect their lives. Few studies have investigated the patients’ quality of life qualitatively from perspective family caregivers as closest individuals to patients. The are directly involved in progression and observe changes, problems, hemodialysis. This study aimed explain components hemodialysis patients caregivers’ perspective. Methods In this qualitative inductive content analysis, 16 patients, presenting teaching hospitals Tehran, Iran, were enrolled via maximum-variation purposive sampling; sampling continued until reaching data saturation. collection method included in-depth semi-structured interviews. Also, an analysis was carried out based on Elo Kyngas’ method. Results A total 311 codes, 19 subcategories, eight generic categories, three main categories extracted study. (and categories) mental psychological problems (depressive mood, incompatibility reduced tolerance, exhaustion, deprivation basic needs), social disruption (social isolation threats), physical (general disabilities defects normal functioning organs). Conclusion Family can be valuable information sources for formal plan treatment chronically ill who mainly cared at home. present results help us increase existing knowledge impact life. It seems that addressing issues related life, mentioned by caregivers, positively even reduce burden.

Язык: Английский

Процитировано

25

“Alive Day is the Day”: A Qualitative Study of Experiences of Learned Helplessness in Maintenance Haemodialysis Patients DOI Creative Commons
Chunyan Xie, Li Li, Yamin Li

и другие.

Risk Management and Healthcare Policy, Год журнала: 2023, Номер Volume 16, С. 231 - 245

Опубликована: Фев. 1, 2023

Learned helplessness (LH) is a common psychological phenomenon among chronic disease patients. However, LH remains underrecognized in the context of maintenance haemodialysis (MHD) This qualitative study first this topic to be conducted Chinese cultural context, and its purpose explore experiences MHD patients highlight their interpretations LH. We employed research design. A purposive sampling method was used recruit participants. The sample size determined by data saturation. Data were obtained from blood purification centre located Hunan Province, China. collected June September 2022. researchers in-depth, semistructured interviews with participants after obtaining informed consent. Texts transcribed verbatim audio recordings these interviews. processing analysis based on Giorgi's phenomenological approach. Twenty-two respondents completed (aged 29-75 years, including ten females twelve males). Four themes emerged interviews: (1) triggers (hope gone; witnessing renal friends' helplessness; out control; nothing works); (2) being tied down (limitation; perceived loss; social isolation; giving in); (3) I am just loser (self-image disorder; low self-concept; negative attitudes; guilt; abandonment); (4) alive day (fatalism; my duty; downwards comparison). reveals that multiple stressors drive patients' These salient phenomena demonstrate importance recognizing suggest support services should developed alongside framework addresses beginning treatment.

Язык: Английский

Процитировано

7

Perceived barriers and facilitators to chronic kidney disease care among patients in Singapore: a qualitative study DOI Creative Commons

Sun Joon Hwang,

Ngiap Chuan Tan, Sungwon Yoon

и другие.

BMJ Open, Год журнала: 2020, Номер 10(10), С. e041788 - e041788

Опубликована: Окт. 1, 2020

To outline the facilitators and barriers to patients' self-management of predialysis chronic kidney disease (CKD).Qualitative.Three polyclinics in a public primary care institution Singapore.20 patients entered completed study. Inclusion criteria were: (1) English speaking, (2) aged 40 years above, (3) identified by clinical coding as 'DM (diabetes mellitus) nephropathy-overt' nephropathy-incipient', their physicians polyclinic, with an estimated glomerular filtration rate less than 60 mL/min/1.73 m2 (based on electronic health records) (4) aware CKD illness. Exclusion receiving dialysis or had received transplant, suffered from any visual, auditory cognitive impairment which could hinder ability participate study pregnant.We found that major management were lack knowledge awareness CKD, passive attitude toward insufficient patient-physician communication. Major included patient trust satisfaction physician family support. Many reported there was overload information too little guidance how manage condition, especially regarding dietary recommendations.We several among patients. A multi-pronged approach for raising is required: improving communication, implementing workshops home-visits disseminating accurate online about CKD. Strategies should also focus increasing engagement optimising support involving members care. Furthermore, clear recommendations patient-specific advice are needed empower own condition.

Язык: Английский

Процитировано

18

Perspectives on mental health among patients receiving dialysis DOI

Melissa Nataatmadja,

Nicole Evangelidis, Karine Manera

и другие.

Nephrology Dialysis Transplantation, Год журнала: 2020, Номер 36(7), С. 1317 - 1325

Опубликована: Ноя. 30, 2020

Diminished mental health is associated with increased morbidity and mortality may contribute to loss of independence motivation in patients receiving dialysis their caregivers. Increased understanding the patient perspective on triggers, impacts strategies for managing inform ways address conditions this population.

Язык: Английский

Процитировано

18

Patient perspectives of coping with automated peritoneal dialysis DOI
Emily Duncanson, Anna Chur‐Hansen, Shilpanjali Jesudason

и другие.

Peritoneal Dialysis International, Год журнала: 2021, Номер 42(4), С. 344 - 352

Опубликована: Сен. 9, 2021

Patients receiving peritoneal dialysis (PD) experience poor quality of life, depression, anxiety and lifestyle changes. Insights into how patients adjust to cope with PD from a psychological perspective will aid care.Participants were recruited purposively through the Central Northern Adelaide Renal Transplantation Service in South Australia. Ten automated (APD) (5 females 5 males) aged 31 77 years (M = 59.3) participated semi-structured interview. Interview transcripts analysed thematically inductive deductive methods.Five main themes representing participants' experiences perspectives adjusting coping APD identified: (1) Resigned Acceptance, (2) A Bridge Transplant, (3) Navigating Emotions at Milestones Transitions, (4) Professional Support (Sub-themes: Psychological Education Information Delivery (5) Social Enablers (Sub-theme: Hidden View Hiding Illness).Patients employ cognitive, emotional behavioural strategies rely strongly on social supports APD. home aids preservation pre-illness identity, however, also results feelings isolation being misunderstood. distress may be heightened key disease milestones transition periods when professional support should offered. We provide suggestions address patients' psychosocial needs treatment decision-making care.

Язык: Английский

Процитировано

14

Patient experiences of sleep in dialysis: systematic review of qualitative studies DOI
Elaine Cheng, Nicole Evangelidis, Chandana Guha

и другие.

Sleep Medicine, Год журнала: 2021, Номер 80, С. 66 - 76

Опубликована: Янв. 27, 2021

Язык: Английский

Процитировано

12

The cross-lagged association between depressive symptoms and health-related quality of life in patients receiving maintenance hemodialysis: a three-wave longitudinal study DOI
Jieling Chen, Lingling Liu, Jing Chen

и другие.

Quality of Life Research, Год журнала: 2021, Номер 30(12), С. 3463 - 3473

Опубликована: Май 11, 2021

Язык: Английский

Процитировано

12

Effects of Uremic Clearance Granules on p38 MAPK/NF-κB Signaling Pathway, Microbial and Metabolic Profiles in End-Stage Renal Disease Rats Receiving Peritoneal Dialysis DOI Creative Commons
Xiaosheng Li, Jie Zheng, Jian Wang

и другие.

Drug Design Development and Therapy, Год журнала: 2022, Номер Volume 16, С. 2529 - 2544

Опубликована: Авг. 1, 2022

Background: End-stage renal disease (ESRD) is the final stage of chronic kidney (CKD). In clinic, Uremic Clearance Granules (UCG) are mainly used in treatment early CKD and stabilized function. However, benefits mechanisms UCG on ESRD remain unclear. Methods: Rats were randomly divided into four groups: sham group, model peritoneal dialysis (PD) group group. Except for sham-operated was induced by 5/6 nephrectomy other three groups. The PD then subjected to PD. addition, given gavage when Changes body weight rats each monitored. HE Masson staining performed confirm extent fibrosis. Biochemical kits detect blood urea nitrogen (BUN), serum urine creatinine (Scr, Cre), protein (UPr) levels. ELISA rats' inflammatory responses. qRT-PCR, WB, IHC probed determine expression levels NF-κB MAPK. 16S rDNA sequencing analyze composition gut microbiota rats. A liquid chromatograph-mass spectrometer reveal metabolomics changes. Results: increased volume weight, improved It enhanced function decreased BUN, Scr, Upr, Cre, responses, as well MAPK expressions colon tissues relative abundances Bacteroidetes Firmicutes changed response UCG. Serum utilized identify 70 differentiated metabolites, which associated with D-glutamine D-glutamate metabolism, Phenylalanine metabolism. Conclusion: Our study confirmed that alleviated regulating p38 MAPK/NF-κB signaling pathway, microbial metabolic profiles. Keywords: end-stage disease, uremic clearance granules, microbiota, pathway

Язык: Английский

Процитировано

8