Patient and Family Perceptions of Real-Time Access to Electronic Health Information: A Social Media Survey DOI Creative Commons

Caitlan S. Pinotti,

Rajdeep Pooni, Vincent Del Gaizo

et al.

Applied Clinical Informatics, Journal Year: 2025, Volume and Issue: 16(02), P. 327 - 336

Published: March 1, 2025

Abstract Objective This study seeks to understand pediatric rheumatology patients' and caregivers' utilization perceptions of immediate access their electronic health information (EHI) via patient portals. Methods An anonymous, 23-question Qualtrics survey was distributed social media patients families with rheumatic diseases. The link Quick Response (QR) code were posted on disease-specific Facebook accounts. Descriptive statistics used a thematic content analysis performed free-text responses. Results received 253 eligible Nearly 48% participants reported accessing portal >12 times in the last year, while only 0.4% (one respondent) it zero 8% 1 2 times. Following medical appointment, 45% regularly same day as 36% when they get an alert for new results, 0.8% response healthcare provider message. About 98% use laboratory notes, 80% messages, 64% imaging 53% appointments, 28% medications. Thematic found that respondents coordination care advocate themselves or child. emotional impact EHI without explanation variable by respondent, some reporting increased worry less worry. Many (18%) value posting results sites help interpretation. Conclusion demonstrates strong engagement expectation through portal. Although did report input can increase anxiety, perceive tool self-advocacy care, leading stronger sense role member team.

Language: Английский

Use of patient portals to disclose STI test histories to sex partners among U.S. men who have sex with men: A call for research and guidance DOI
Kevon-Mark Jackman, Kaitlyn Atkins, Sarah M. Murray

et al.

International Journal of STD & AIDS, Journal Year: 2025, Volume and Issue: unknown

Published: Jan. 21, 2025

Background This study investigates the use of patient portals for disclosing sexually transmitted infection (STI) test result histories to sexual partners among men who have sex with (MSM) in United States. Methods Using data from 2022-2023 American Men’s Internet Survey, this cross-sectional analysis examined demographic, behavioral, and healthcare-related factors associated MSM’s utilization sharing STI results. Participants ( N = 2601) were surveyed on portal use, testing frequency, partner disclosure practices. Results 18% survey participants used disclose a parrtners, higher prevalences individuals aged 16–37 years old versus 56 older, black non-Hispanic (26.4%) white (16.8%), those reporting nine or more times being tested STIs (30.1%) 1 3 (7.5%). work (33.3% vs 17.7%) HIV pre-exposure prophylaxis (PrEP) (24.2% 13.0%) also had prevalence disclosure. Multivariable Poisson regression robust error variance showed that behavioral stigma family friends [adjusted ratio (aPR) 1.11; p .04] also, four 8 (aPR 2.21; < .001) aPR 3.42; significantly portal-based Conclusion Findings suggest may be viable tools prevention MSM communities, especially increased vulnerability acquisition. Addressing disparities access explaining capabilities enhance role digital health reducing transmission communities.

Language: Английский

Citations

0

Repeated Access to Patient Portal While Awaiting Test Results and Patient-Initiated Messaging DOI Creative Commons
Bryan D. Steitz, Robert W. Turer, Liz Salmi

et al.

JAMA Network Open, Journal Year: 2025, Volume and Issue: 8(4), P. e254019 - e254019

Published: April 8, 2025

Importance Patients have immediate access to test results in the patient portal, which can cause worry. Identifying behaviors associated with worry while awaiting may allow health systems support patients and reduce message volumes. Objective To describe characteristics of who refresh their portal measure association between behavior patient-initiated messaging. Design, Setting, Participants This retrospective cross-sectional study was performed at Vanderbilt University Medical Center, uses a MyChart-based portal. All adult (aged ≥18 years) received outpatient January 1, 2022, December 31, 2023, were included. Exposures Use review results. Main Outcomes Measures The primary outcome proportion refreshed Tests stratified into low-sensitivity (eg, basic metabolic panel) high-sensitivity tissue biopsy) groups using validated categories based on each test’s likelihood being misinterpreted or causing distress. Portal logs used identify behaviors, accessed seeking new Secondary outcomes included messaging as measured multivariable logistic regression. Results A total 968 774 reviewed by 290 349 (mean [SD] age, 47.8 [18.0] years; 66.3% female). for 25.9% more commonly (25 280 64 356 [39.3%]) compared low sensitivity (225 516 904 418 [24.9%]) ( P &amp;lt; .001). enabled notifications had higher odds refreshing (odds ratio, 1.11; 95% CI, 1.06-1.17) 1.54; 1.49-1.59). Each lower increase probability within 24 hours marginal effect, 0.41; 0.34-0.49) 1.03; 0.96-1.11). Conclusion Relevance found an patients’ activity after review. These findings suggest that behavior, potential worry, be characteristic attitudes preferences rather than test.

Language: Английский

Citations

0

Patient and Family Perceptions of Real-Time Access to Electronic Health Information: A Social Media Survey DOI Creative Commons

Caitlan S. Pinotti,

Rajdeep Pooni, Vincent Del Gaizo

et al.

Applied Clinical Informatics, Journal Year: 2025, Volume and Issue: 16(02), P. 327 - 336

Published: March 1, 2025

Abstract Objective This study seeks to understand pediatric rheumatology patients' and caregivers' utilization perceptions of immediate access their electronic health information (EHI) via patient portals. Methods An anonymous, 23-question Qualtrics survey was distributed social media patients families with rheumatic diseases. The link Quick Response (QR) code were posted on disease-specific Facebook accounts. Descriptive statistics used a thematic content analysis performed free-text responses. Results received 253 eligible Nearly 48% participants reported accessing portal >12 times in the last year, while only 0.4% (one respondent) it zero 8% 1 2 times. Following medical appointment, 45% regularly same day as 36% when they get an alert for new results, 0.8% response healthcare provider message. About 98% use laboratory notes, 80% messages, 64% imaging 53% appointments, 28% medications. Thematic found that respondents coordination care advocate themselves or child. emotional impact EHI without explanation variable by respondent, some reporting increased worry less worry. Many (18%) value posting results sites help interpretation. Conclusion demonstrates strong engagement expectation through portal. Although did report input can increase anxiety, perceive tool self-advocacy care, leading stronger sense role member team.

Language: Английский

Citations

0