Instruments for Value Elucidation in Older Adults in Clinical Practice—A Scoping Review

Journal of the American Geriatrics Society, Journal Year: 2025, Volume and Issue: unknown

Published: Jan. 10, 2025

ABSTRACT Background To ensure appropriate care for the individual older adult, an ideal treatment should align with patients' values. However, healthcare professionals struggle how to elucidate patient values effectively. offer guidance professionals, we performed a scoping review, thereby mapping and categorizing instruments specifically developed of adults in clinical practice. Methods A systematic search was conducted from inception up October 2023 PubMed, Psychinfo, CINAHL, Cochrane Library. Articles on clarifying adults' setting were included. elucidating wishes, preferences, or goals excluded. Results After screening 7759 eligible studies, included 37 studies outlining unique instruments. Instruments subdivided into following categories, based which used: “instruments general scope,” “health record‐based interventions,” “advance directives,” planning programs,” “decision support tools.” Values made plain different ways, promoted approaches. We further categorized these approaches alongside axes: “open versus closed,” “process‐oriented decision‐oriented,” “confronting nonconfronting,” “explicit implicit.” Some focused establishing process deliberation, whereas others achieving decisions. Conclusion found large range instruments, ways This review serves as introduction available help clarify By along axes approaching value clarification, selecting instrument.

Language: Английский

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Pioneering psycho-oncology: A collaborative journey for medical and psychology students at ecancer-Tata Medical Center Kolkata Psycho-oncology Congress 2024

ecancermedicalscience, Journal Year: 2025, Volume and Issue: 19

Published: Jan. 17, 2025

Psycho-oncology is an upcoming specialisation that encompasses the psychological and social aspects of cancer care. In integrated psycho-oncology service, consultant psychiatrists clinical psychologists come together with other professionals to treat comorbid psychiatric disorders patients their caregivers. Psycho-oncologists also contribute improving clinician-patient communication, address staff burnout conduct translational research. The ecancer-Tata Medical Center Kolkata Congress, 2024 was initiative encourage multi-disciplinary learning in undergraduate postgraduate medical psychology students early career professionals. Written feedback from 106 participants who comprised 71% (71%, 106/149) pre-registered delegates, showed overwhelming majority found overall experience as 'excellent' (75/106, 70.75%) or 'good' (27/106, 25%). qualitative free-text expressed desire for longer conferences 'spread over two days', eagerness learn about quantitative 'research methods' specific therapeutic techniques used common comorbidities patients. A video providing overview event available here: https://ecancer.org/en/video/12232-reflections-after-the-ecancer-tata-medical-center-kolkata-psycho-oncology-congress-2024. This generated a set educational videos on are online https://ecancer.org/en/conference/1551-ecancer-tmc-kolkata-psycho-oncology-congress.

Language: Английский

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Prioritizing the Values, Wishes, and Needs of Patients with Advanced Cancer: A Secondary Linguistic Analysis

Health Communication, Journal Year: 2025, Volume and Issue: unknown, P. 1 - 9

Published: Feb. 11, 2025

Linguistic research on communication regarding the values, wishes, and needs of patients with advanced cancer in palliative phase is limited, resulting an inadequate understanding clinicians' communication. To explore verbal expressions used by hospital oncology clinicians VWN to examine clinician's speech acts act patterns employed during outpatient consultations. A secondary linguistic analysis was performed. Physicians, nurse practitioners nurses were previously recruited. Content performed what expressed verbally about semi-structured interviews (N = 7). Functional pragmatic conducted identify consultations Speech encompass words/phrases perform functions combinations achieve communicative goals. Clinicians interviewed once and/or observed multiple times. Eleven participated. Three findings reveal VWN: 1) Prioritizing patients' patient-clinician interactions, 2) Trying understand perspectives illness, 3) Seeking facilitate dialogue coping illness. Four describe patterns: Discussing treatment goal, Focusing action, Providing Limited Space Discuss Patients' 4) Responding patient emotions. did not adequately address their communication, thereby limiting opportunities for discuss it. The study's contribute improving training materials care.

Language: Английский

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Digital Health Education for Chronic Lung Disease: Scoping Review

Journal of Medical Internet Research, Journal Year: 2025, Volume and Issue: 27, P. e53142 - e53142

Published: March 18, 2025

Background Chronic lung disease (CLD) is one of the most prevalent noncommunicable diseases globally, significantly burdening patients and increasing health care expenditures. Digital education (DHE) increasingly important in chronic prevention management. However, DHE characteristics impacts CLD are rarely reported. Objective This study aimed to provide an overview existing literature on for CLD, with a focus exploring mediums, content, mechanisms, reported outcomes CLD. Methods We searched PubMed, Web Science, Embase, PsycINFO, The Cochrane Library assistance librarian specialist. Articles were screened by reviewer team ASReview (Utrecht University) EndNote X9 (Clarivate Analytics) based predefined inclusion exclusion criteria PRISMA-ScR (Preferred Reporting Items Systematic Reviews Meta-Analyses extension Scoping Reviews) checklist. Quality assessment was conducted Critical Appraisal Skills Program tool. A descriptive analysis used summarize characteristics, outcomes. Results total 22 studies included this review medium or high quality. They published between 2000 2022, showing publication trend year, mostly developed countries (16/22, 73%). Websites mobile apps (10/22, 45%) widely medium. Education self-management skills primary topic (21/22, 95%), 4/22 (18%) which mentioned mechanisms. majority positive changes awareness (14/16, 88%), clinical (3/6, 50%), feasibility, acceptability, satisfaction (6/8, 75%), lifestyle (3/3, 100%), psychosocial (7/8, 88%). Only 2 cost-effectiveness (2/22, 9%). Conclusions Despite heterogeneity situation, some aspects can be concluded. improve disease, good through different mediums learning content. There still relatively little research among people low- middle-income countries. Future should consider impact cost-effectiveness, duration, frequency, theoretical mechanisms maximize potential impact. It also context services better reflect real world.

Language: Английский

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Assessing the health status of migrants upon arrival in Europe: a systematic review of the adverse impact of migration journeys

Globalization and Health, Journal Year: 2024, Volume and Issue: 20(1)

Published: Sept. 27, 2024

Abstract Background Numerous studies have explored the impact of pre- and post-migration factors on overall health migrant populations. The objective this study is to enhance our understanding additional determinants affecting migrants' by examining migration phase related journeys in European context. Methods We conducted a systematic review published MEDLINE, Embase, Scopus databases from 2003 up January 5, 2024. included observational reporting information status populations recorded upon arrival country situated Europe, transit phase, including specific risk experienced during journey or its characteristics. Title abstract screening were performed using active learning techniques provided ASReview software. results presented qualitatively, with focus publications that formally assessed association between investigated outcomes. was registered PROSPERO, CRD42024513421. Results Out 11,370 records screened, we ultimately 25 studies, all since 2017. Most adopted cross-sectional design quantitative approach, relatively small sample sizes. majority Serbia Italy. Only 14 them different exposures outcomes, mental health, well-being quality life, infectious non-communicable diseases. Conclusion Epidemiological research focusing Europe remains limited, few available facing challenges data collection, analysis, thereby limiting interpretability generalisability their results. These findings underscore need for action, prompting development adequate feasible strategies conduct journeys.

Language: Английский

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Assessing the Health Status of Migrants Upon Arrival in Europe: A Systematic Review of the Adverse Impact of Migration Journeys

Published: Jan. 1, 2024

Language: Английский

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Exploring family health, Support, Self-efficacy and Quality of Life during the cancer trajectory: A protocol for a longitudinal mixed methods multi-center cohort study

Published: July 16, 2024

Introduction A cancer diagnosis not only profoundly impacts individuals but also the very core of their families, reshaping lives in many ways. However, there is a lack focus on well-being and health entire family across adult research. This concerning given that one-third Danish population will get before age 75, suggesting Danes become caregivers during lifetime. In addition, identifying vulnerable families challenging determinant factors for vulnerability are unknown. Aims The principal aim this study to investigate treatment. be done by gathering information various parameters such as perceived support, quality life, self-efficacy patients with trajectory. Additionally, seeks pinpoint particularly contributing vulnerability. Methods mixed-methods follows sequential explanatory design, combining patient-reported outcomes longitudinal, prospective multicenter survey interviews conducted nested sampling participants from survey. total 240 diagnosed prostate-, breast-, gastrointestinal-, lymphoma cancer, designated recruited six different sites Variables health, needs self-efficacy, depression, stress, resilience explored. Survey data collected at baseline, 3, 6, 12, 18 months. (n = 12-15) twice jointly; once treatment phase (3 months) after completion (12 months). Discussion provide new insights into unique challenges navigating complexities cancer. Tracking experiences longitudinally deepen our understanding families' journey. These can inform development targeted interventions support services, ultimately improving care facing cancer-related challenges. Trial Registration: ClinicalTrials.gov: NCT06433349 Protocol version 2.0

Language: Английский

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Exploration of health information needs of persons affected by complex cancers and evaluation of co-designed video-assisted health education.

Research Square (Research Square), Journal Year: 2024, Volume and Issue: unknown

Published: Sept. 8, 2024

Purpose Persons with cancer and their families are given a range of complex information (written verbal) to assist them in managing treatment side effects at home. This study explored the health needs patients family members investigated whether video-assisted education improved understanding for persons cancers. Method A co-design framework consumers clinicians was used identify concepts create videos. Qualitative interviews thematic analysis participant demographics acceptability affected by brain, head neck gastrointestinal were included. Results Eleven conducted members, aged between 39 82 years. The literacy levels reported participants highlighted need help medical forms. Four themes developed: sorting through information, videos, balance caring, presentation. Conclusion Information provided different formats tailored meet individuals’ can reinforce key points from professionals improve outcomes. Video-assisted improves patients’ families’ ability make informed decisions regarding self-care Digital resources may provide way although digital influence access, but this requires further investigation.

Language: Английский

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Patients and clinicians have different priorities when discussing pain in the IBD clinic

BMJ Open Gastroenterology, Journal Year: 2024, Volume and Issue: 11(1), P. e001540 - e001540

Published: Oct. 1, 2024

Pain in inflammatory bowel disease (IBD) is frequently neglected/overlooked, particularly ulcerative colitis, and communication about pain can be suboptimal. The current study juxtaposes clinicians' conceptualisations of patients' with patient narratives. aim was to inform the development a reporting tool provide guidance for better IBD pain.

Language: Английский

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To get through to survive: Exploring the symptom cluster management process during oncological treatment from the perspective of patients with lung cancer – A grounded theory study

European Journal of Oncology Nursing, Journal Year: 2024, Volume and Issue: 74, P. 102764 - 102764

Published: Dec. 8, 2024

Language: Английский

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