Sibling Relationship Dynamics in Families with a Child Diagnosed with a Chronic Mental Disorder versus a Somatic Condition DOI Creative Commons
Florina Rad,

Emanuela Andrei,

Alecsandra Irimie-Ana

et al.

Children, Journal Year: 2023, Volume and Issue: 10(3), P. 587 - 587

Published: March 19, 2023

Recent research still focuses on the psychological impact siblings and problematic relationships in families with children chronic illnesses. Our study evaluates dynamics sibling a child diagnosed disease.We comparatively evaluated degree of empathy, involvement, friendship, rivalry two groups who have pediatric disorder versus mental disorder.The levels involvement/friendship, empathy/care/concern, education/learning were significantly higher group. Where there under age 10, scores tended to be both groups.Coping strategies, emphatic interactions, implications common activities are difficult identify relationship between when one them has disorder. All these negative aspects entail poor quality draw alarm signals regarding need for monitoring intervention familial programs.

Language: Английский

The experiences and perceptions of healthy siblings of children with a long-term condition: Umbrella review DOI Creative Commons
Julie Blamires, Mandie Foster,

Shayne Rasmussen

et al.

Journal of Pediatric Nursing, Journal Year: 2024, Volume and Issue: 77, P. 191 - 203

Published: April 4, 2024

ProblemThe lives of healthy siblings living with a sibling long- term condition are often shaped by the family, type illness, length age child, caregiver demands, and support provided to ill sibling, sibling. While experiences documented in literature parent proxy, on self-reported who has long-term remains scarce.PurposeThis umbrella review aims synthesize reviews children condition.Eligibility criteriaPublished peer-reviewed English language exploring under 24 years old, whose diagnosed condition.SampleUsing developed search strategy, seven electronic databases (CINAHLPlus, Scopus, PubMed, PsycINFO, Cochrane Database Systematic Reviews, Clinical Key, Google Scholar) were searched from 2018 till December 2023. Eleven met inclusion criteria subjected narrative synthesis.ResultsFour themes (adjusting changes, wanting help, ups downs, changes), eight subthemes generated syntheses.ConclusionThis is first undertaken condition. The impact suggests need for healthcare providers organisations provide better emotional, psychological, informational their families.ImplicationsFindings this will inform providers, organisations, researchers, policymakers development future clinical practices research siblings.

Language: Английский

Citations

10

Preventing Cyberbullying and Reducing Its Negative Impact on Students Using E-Parenting: A Scoping Review DOI Open Access
Iyus Yosep, Rohman Hikmat, Ai Mardhiyah

et al.

Sustainability, Journal Year: 2023, Volume and Issue: 15(3), P. 1752 - 1752

Published: Jan. 17, 2023

Families have an important role in preventing cyberbullying and providing first treatment for their children. The negative impact of are psychological problems such as anxiety, depression, stress. One the interventions to reduce is e-parenting. aim this study describe methods e-parenting prevent on students. This used scoping review method. Articles were drawn from CINAHL, PubMed, ProQuest databases. keywords English “Cyberbullying”, “E-parenting”, “Students”. inclusion criteria full text, randomized control trial or quasi-experimental research design, language, student sample, publication period last 10 years (2013–2022). We found 11 articles which discussed results showed that was effective reducing its with three e-parenting, namely prevention program, collaboration school, video support. Most a design. Some Spain. Samples literature range between 35 2530 E-parenting intervention increase parents effects through health school workers.

Language: Английский

Citations

17

Common mental health conditions and considerations in pediatric chronic kidney disease DOI
Katherine Mai, Anne E. Dawson, Lidan Gu

et al.

Pediatric Nephrology, Journal Year: 2024, Volume and Issue: 39(10), P. 2887 - 2897

Published: March 8, 2024

Language: Английский

Citations

5

An investigation of computer‐game addiction, physical activity level, quality of life and sleep of children with a sibling with a chronic condition DOI
Sabiha Bezgin,

Yunus Özkaya,

Yılmaz Akbaş

et al.

Child Care Health and Development, Journal Year: 2024, Volume and Issue: 50(1)

Published: Jan. 1, 2024

Abstract Background It is known that chronic condition also affects siblings without illness. Healthy of children with a and aged 9–14 years healthy sibling illness their parents were included in the study. Aim The aim our study was to examine internet‐game addiction, physical activity, quality life sleep compare them peers sibling. Methods Computer game evaluated respectively by Game Addiction Scale for Children, Child Physical Activity Questionnaire, Children's Sleep Disorder Quality Life Scale. Results While mean age 75 chronically ill 10.65 ± 1.59 years, 10.46 2.09 years. observed more tend computer‐game had lower quality, terms school functionality psychosocial health compared ( p < 0.05). Conclusions revealed families condition, no problems should be supported appropriate approaches, such as increase level activity.

Language: Английский

Citations

2

Coping With COVID‐19: Perspectives of Caregivers of Children and Young People With Chronic Kidney Disease DOI Creative Commons
Caroline C. Piotrowski,

Julie Strong,

Ashley Giesbrecht

et al.

Pediatric Transplantation, Journal Year: 2024, Volume and Issue: 28(5)

Published: July 19, 2024

ABSTRACT Background Caregivers of children and young people with chronic kidney disease (CKD) face challenging circumstances on a daily basis; however, the difficulties they experienced during COVID‐19 pandemic, as well potentially positive experiences, are not yet fully understood. The aim this study was to explore pandemic‐related experiences these caregivers. Methods Twelve caregivers were recruited from hospital‐based pediatric renal program; eight families posttransplant. participated in virtual semistructured interviews conducted between March 2021 November 2022. They provided responses open‐ended questions concerning how pandemic affected their child CKD, family, themselves. Interviews transcribed coded using thematic analysis. Results Four main themes identified: (1) Family Life, which included disruptions routine, reduced social supports, changes quality family relationships; (2) Mental Health Coping, increased anxiety coping strategies; (3) Work School work school; (4) Care Systems, health care public restrictions. Conclusions Despite facing profound challenges, identified both negative aspects experiences. Their strategies highlighted individual resilience characteristics. Implications for providers, including future planning, support transition in‐person care, better address barriers resources discussed.

Language: Английский

Citations

2

Balancing on life's ladder: A meta‐ethnography of the existential experiences of siblings of children with complex care needs DOI Creative Commons
Carina Nygård, Anne Clancy, Gabriele Kitzmüller

et al.

Journal of Advanced Nursing, Journal Year: 2023, Volume and Issue: 80(7), P. 2629 - 2646

Published: Dec. 7, 2023

Abstract Aim To synthesize and interpret existing qualitative research on the existential experiences of siblings children with complex care needs. Design Noblit Hare's interpretive meta‐ethnography. Methods The study has been registered in international prospective register for systematic reviews (PROSPERO). 7‐step procedure was followed reciprocal translation performed to analyse data develop a line argument synthesis. Data Sources A comprehensive literature search five databases, along extensive manual searches, completed November 2022. final sample comprised 18 studies published between 2010 Results argument, expressed through an overarching metaphor, “balancing life's ladder”, illustrates core findings siblings' fluctuating well‐being, encapsulates four third‐order themes: emotional turmoil siblings, interrupted family life, strive be themselves struggle cope. Conclusion Growing up sibling needs made feel invisible, lonely struggling find courage By adopting lifeworld approach, nurses can become aware healthy unmet Future is needed how contribute primary – secondary health settings. Implications provides insight into factors improving their enabling provide more optimized lifeworld‐led clinical practice. Impact Healthcare, nursing education practice should informed by knowledge issues. Nurses are well‐positioned work alongside families family‐centered care. Our have implications policies tailored chronically ill siblings. Reporting Method This review adheres Equator reporting meta‐ethnography (eMERGe) guidelines. Patient or Public Contribution No patient public contribution, because previously studies.

Language: Английский

Citations

4

Life outcomes after paediatric kidney transplantation: a qualitative, biographical study in long-term survivors DOI Creative Commons
Valentin Ritschl, Tanja Stamm, A Selzer

et al.

Archives of Disease in Childhood, Journal Year: 2024, Volume and Issue: 109(3), P. 240 - 246

Published: Jan. 11, 2024

Objective The objective of this study was to analyse the narrative life stories children with end-stage kidney disease (ESKD) and their families determine how health professionals can effectively support these achieve better outcomes. Design Qualitative biographic study. Setting We invited every long-term survivor paediatric transplants at Medical University Vienna between 2008 2013 participate in Participants Nineteen patients (women: n=8, 42%) 34 family members n=22, 65%) were interviewed. had a mean age 7.6 (SD±5.6) years time transplantation 22.2 (SD±5.4) interview. Main outcome(s) measure(s) A qualitative biographical analysis combined computational structured topic models using Latent Dirichlet Allocation. Results overarching finding desire for normality daily survivors but different perceptions what looks like predominance aspect evolving. Different strategies used by (focused on advancement) caregivers (normality all members). Siblings played major role supporting survivors’ social inclusion. Conclusions strong confirms recent findings Standardised Outcomes Nephrology Group initiative, which proposes survival participation as core outcomes chronic disease. Our should be starting point an international effort identify typologies stratified interventions ESKD families, particularly siblings.

Language: Английский

Citations

1

The Other Sibling: Mental Health Effects on a Healthy Sibling of a Child With a Chronic Disease: A Systematic Review DOI Open Access

Maria G Quintana Mariñez,

Mohana Chakkera,

Niriksha Ravi

et al.

Cureus, Journal Year: 2022, Volume and Issue: unknown

Published: Sept. 11, 2022

The Center for Disease Control and Prevention (CDC) defines chronic diseases broadly as conditions that last over one year require ongoing medical attention or limit activities of daily living both. diagnosis a child with disease affects parents' mental health functioning, included in this are the siblings child. impact on sibling involves higher risks anxiety, depression, feelings worry about brother sister's future, social problems. Three databases search were performed, 16 articles assessed systematic review complies inclusion exclusion criteria. those illnesses have reported emotional, behavioral, problems than healthy siblings. More research studies control groups larger samples could contribute to better understanding long-term effects having disease.

Language: Английский

Citations

7

“I won’t ever feel normal”: experience reported through photovoice by children with chronic kidney disease DOI
Alejandro Cerón,

Maria Renee Ortiz Ortiz,

Isabelle Nierman

et al.

Pediatric Nephrology, Journal Year: 2024, Volume and Issue: unknown

Published: Oct. 10, 2024

Language: Английский

Citations

0

Experiences of siblings of children with chronic pediatric conditions: a qualitative systematic review DOI

R Tan,

Pao Yi Chan,

Shefaly Shorey

et al.

European Journal of Pediatrics, Journal Year: 2024, Volume and Issue: 184(1)

Published: Nov. 26, 2024

Language: Английский

Citations

0