Association between sociodemographic variables and delayed patient presentation among surgical neuro-oncology patients in Mexico City: a single institution experience DOI Creative Commons
Maria Punchak, José Alfonso Alvarez-Castro, Jonathan Ramos-Escalante

et al.

Journal of Neuro-Oncology, Journal Year: 2024, Volume and Issue: unknown

Published: Sept. 24, 2024

Abstract Purpose Mexico has the second highest incidence of central and peripheral nervous system cancer cases in Latin America, but clinical research resources to improve oncologic care are biased towards high-income countries. We carried out a retrospective study identify sociodemographic factors associated with more severe presentation among surgical neuro-oncology who underwent surgery at major public referral hospital City. Methods The electronic medical record was reviewed all patients between January 1 December 31, 2022. Descriptive statistics were used characterize patient population outcomes; statistical analysis performed determine association variables advanced presentation. Results A total 366 during period. median age 48 (IQR 17–83). majority female (60.1, n = 220), single (51.4%, 188), 29.2% ( 107) endorsed being primary provider for their family. number dependents per 4 2–50), while monthly income 10269 Mexican pesos (MXN) 2000–13500] travel distance INNN 49 km 22–174). On multivariate analyses, having higher increased odds presenting longer symptom duration p 0.01). Divorced/separated status tumors > 35mL volume 0.04). Primary 0.01) average 0.03) decreased 35mL. Conclusions This is first recognize that certain patients. Further studies needed order decern specific causes delayed this create targeted interventions decrease delays care.

Language: Английский

Experiences of work for people living with a grade 2/3 oligodendroglioma: a qualitative analysis within the Ways Ahead study DOI Creative Commons
Hayley E. Walker, Ben Rimmer,

Lizzie Dutton

et al.

BMJ Open, Journal Year: 2023, Volume and Issue: 13(9), P. e074151 - e074151

Published: Sept. 1, 2023

This study aimed to explore the work experiences of people living with an oligodendroglioma.This was a descriptive qualitative study. One-time semi-structured interviews exploring supportive care needs were conducted; discussed at various points throughout each interview. An inductive thematic analysis undertaken.Participants recruited across UK through four National Health Service hospitals and Brain Tumour Charity research involvement networks.19 grade 2 or 3 oligodendroglioma (mean age 52 years; male n=11). At diagnosis, 16 participants working, studying 1 retired. interview time since diagnosis 9.6 range 1-18 years), seven eight retired (four on medical grounds) unable due illness.Seven themes constructed: (1) physical cognitive limitations; (2) ability productivity; (3) accommodations; (4) changing roles; (5) attitudes clients coworkers; (6) feelings ambitions; (7) financial implications. Fatigue, seizures deficits influenced ability. A stressful environment could exacerbate symptoms. Changes in job roles often required. Employer coworker support integral positive experiences. Work changes result stress strain.This has highlighted, for first time, influences this understudied population. These findings have implications clinicians employers, when considering importance rehabilitation oligodendrogliomas, individually assessed adjustments required accommodate them, should employment be desired.

Language: Английский

Citations

3
Impact of preaneurysmal M1 length in unruptured middle cerebral artery aneurysm: mid-term outcome and single-center experience DOI
Lucas Ribeiro, Antoine Devalckeneer, Martin Bretzner

et al.

Neurochirurgie, Journal Year: 2024, Volume and Issue: 70(4), P. 101569 - 101569

Published: May 14, 2024

Language: Английский

Citations

0
Glioma resource outreach with support: A program to identify and initiate supportive care interventions for unmet needs among adult lower-grade glioma patients DOI

Rachel Garcia Fox,

Ugonma Chukwueke, Timothy S. Sannes

et al.

Neuro-Oncology Practice, Journal Year: 2024, Volume and Issue: 12(1), P. 87 - 99

Published: Aug. 3, 2024

Abstract Background Lower-grade (WHO grades 2–3) gliomas typically affect young and middle-aged adults exhibit isocitrate dehydrogenase (IDH) mutations. For such patients, symptoms related to the tumor associated treatment contribute morbidity erode quality of life. With improved treatment, a better understanding these effects over time is critically needed. Existing data characterizing unmet needs lower-grade glioma patients limited little consensus exists on addressing in clinical practice. Methods In order identify address focus groups among caregivers were initially conducted treated at single academic center. A semi-structured interview guide comprehensively understand was then developed. Each patient-defined need categorized into domains through qualitative content analysis. parallel, database established local regional community-based resources established, dedicated resource specialist provided patient-specific referrals follow-up. Results Eighty-five interviewed. Median age 41 years median from diagnosis 63 months. Approximately 68% had WHO grade 2 60% off therapy. Qualitative analysis identified 5 overarching need: Psychosocial; Neurologic/Cognitive; Lifestyle; Financial; Other Medical. At least one by 71% participants most common Psychosocial (40.7%) Lifestyle (34.9%). Conclusions Our program begins frequently survivorship that spanned major domains. Further research aimed define warranted.

Language: Английский

Citations

0
Association between sociodemographic variables and delayed patient presentation among surgical neuro-oncology patients in Mexico City: a single institution experience DOI Creative Commons
Maria Punchak, José Alfonso Alvarez-Castro, Jonathan Ramos-Escalante

et al.

Journal of Neuro-Oncology, Journal Year: 2024, Volume and Issue: unknown

Published: Sept. 24, 2024

Abstract Purpose Mexico has the second highest incidence of central and peripheral nervous system cancer cases in Latin America, but clinical research resources to improve oncologic care are biased towards high-income countries. We carried out a retrospective study identify sociodemographic factors associated with more severe presentation among surgical neuro-oncology who underwent surgery at major public referral hospital City. Methods The electronic medical record was reviewed all patients between January 1 December 31, 2022. Descriptive statistics were used characterize patient population outcomes; statistical analysis performed determine association variables advanced presentation. Results A total 366 during period. median age 48 (IQR 17–83). majority female (60.1, n = 220), single (51.4%, 188), 29.2% ( 107) endorsed being primary provider for their family. number dependents per 4 2–50), while monthly income 10269 Mexican pesos (MXN) 2000–13500] travel distance INNN 49 km 22–174). On multivariate analyses, having higher increased odds presenting longer symptom duration p 0.01). Divorced/separated status tumors > 35mL volume 0.04). Primary 0.01) average 0.03) decreased 35mL. Conclusions This is first recognize that certain patients. Further studies needed order decern specific causes delayed this create targeted interventions decrease delays care.

Language: Английский

Citations

0